Most of the literature about hemophilia has been from a medical perspective and
about men. This on-going project has been to document the lives and ‘voices’ of
women who have a bleeding disorder, their experiences with the medical
community, and the course of their diagnosis and treatment. The women in this
study were predominantly Caucasian (92%), were currently married (66.7%), had
(68.9%), and of those women who had children, the majority of their children
(67.9%), both boys and girls, as well as other family members(63.3%) had some
type of bleeding disorder. Findings revealed there was on average, a 14 year gap
between the first bleeding episode and the diagnosis of a bleeding disorder.
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menstrual bleeding as teenagers. Treatments for menstrual bleeding included D
and C's (42.9%) and hysterectomies (34.5%), while referrals to Hemophilia
Treatment Centers for a consultation were rare.
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