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Research article

First published 2021-12

Participants’ Preferences and Reasons for Wanting Feedback of Individual Genetic Research Results From an HIV-TB Genomic Study: A Case Study From Botswana

Dimpho Ralefala, Mary Kasule, Olivia P. Matshabane [...]

Journal of Empirical Research on Human Research Ethics

Retricted access

Research article

First published 2011-12

The Meaning of Genetic Research Results: Reflections from Individuals with and without a Known Genetic Disorder

R. Jean Cadigan, Marsha Michie, Gail Henderson [...]

Journal of Empirical Research on Human Research Ethics

Retricted access

Research article

First published 2016-06

Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?

Isabelle Budin-Ljøsne, Deborah Mascalzoni, Sirpa Soini [...]

Biopreservation and Biobanking

Free access

Research article

First published 2012-3

A review of ethical frameworks for the disclosure of individual research results in population-based genetic and genomic research

Isabelle Budin-Ljøsne

Research Ethics

Retricted access

Research article

First published 2010-9

Returning Individual Research Results: Development of a Cancer Genetics Education and Risk Communication Protocol

J. Scott Roberts, David I. Shalowitz, Kurt D. Christensen [...]

Journal of Empirical Research on Human Research Ethics

Retricted access

Meeting report

First published 2015-10

Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families

Conrad V. Fernandez, P. Pearl O'Rourke, Laura M. Beskow

The Journal of Law,Medicine & Ethics

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Research article

First published 2018-10

Adolescent and Parental Attitudes About Return of Genomic Research Results: Focus Group Findings Regarding Decisional Preferences

Michelle L. McGowan, Cynthia A. Prows, Melissa DeJonckheere [...]

Journal of Empirical Research on Human Research Ethics

Retricted access

Research article

First published 2011-12

Epilepsy Patient-Participants and Genetic Research Results as “Answers”

Emily E. Namey, Laura M. Beskow

Journal of Empirical Research on Human Research Ethics

Retricted access

Research article

First published 2007-06

Discrimination and stigmatization in work organizations: A multiple level framework for research on genetic testing

Lizabeth A. Barclay, Karen S. Markel

Human Relations

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Research article

First published 2011-9

What Research Participants Want to Know About Genetic Research Results: The Impact of “Genetic Exceptionalism”

Miguel Ruiz-Canela, J. Ignacio Valle-Mansilla, Daniel P. Sulmasy

Journal of Empirical Research on Human Research Ethics

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