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Open access

Brief report

First published 2021-07-30

Improving Care and Empowering Adults Living with SMA: A Call to Action in the New Treatment Era

Maggie C. Walter, Claudia Chiriboga, Tina Duong [...]

Journal of Neuromuscular Diseases

Free access

Brief report

First published 2016-8-30

What Matters Most: A Perspective From Adult Spinal Muscular Atrophy Patients

Michael Hunter, Chad Heatwole, Elizabeth Luebbe [...]

Journal of Neuromuscular Diseases

Open access

Research article

First published 2021-07-30

A Canadian Adult Spinal Muscular Atrophy Outcome Measures Toolkit: Results of a National Consensus using a Modified Delphi Method

Jeremy Slayter, Victoria Hodgkinson, Josh Lounsberry [...]

Journal of Neuromuscular Diseases

Free access

Meeting report

First published 2020

Measuring Outcomes in Adults with Spinal Muscular Atrophy – Challenges and Future Directions – Meeting Report

V.A. Sansone, M.C. Walter, S. Attarian [...]

Journal of Neuromuscular Diseases

Open access

Research article

First published 2025-5

Patient-reported assessment of bulbar function in spinal muscular atrophy (SMA): Validation of a self-report scale

Maureen A Lefton-Greif, Lisa Belter, Jill Jarecki [...]

Journal of Neuromuscular Diseases

Open access

Research article

First published 2021

The Cure SMA Membership Surveys: Highlights of Key Demographic and Clinical Characteristics of Individuals with Spinal Muscular Atrophy

Lisa Belter, Jill Jarecki, Sandra P. Reyna [...]

Journal of Neuromuscular Diseases

Retricted access

Research article

First published 2020-4

Shared Medical Appointments: An Academic-Community Partnership to Improve Care Among Adults With Type 2 Diabetes in California Central Valley Region

Carolina Noya, Abbey Alkon, Elizabeth Castillo [...]

The Science of Diabetes Self-Management and Care

Open access

Research article

First published 2025-9

Thinking outside the box: A re-evaluation of Canadian recommended outcome measures in adult spinal muscular atrophy – report of a national consensus workshop

Colleen O’Connell, Xavier Rodrigue, Victoria Hodgkinson [...]

Journal of Neuromuscular Diseases

Open access

Research article

First published 2019

Cost of illness of spinal muscular atrophy (SMA) in Italy

Andrea Marcellusi, Chiara Bini, Jacopo Casiraghi [...]

Global & Regional Health Technology Assessment: Italian;Northern Europe and Spanish

Open access

Research article

First published 2025-5

Ensuring Safe Medication Assessment for Older Adults: A Pilot Study

Kristina Rosengren, Charlotta Szemberg

Home Health Care Management & Practice

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