Abstract
Background:
Emergency department (ED) visits are critical events for older adults, but little is known regarding their experiences, particularly about their physical needs, the involvement of accompanying family members, and the transition back to the community.
Objective:
To explore experiences of an ED visit among patients aged 75 and older.
Methods:
In a mixed-methods study, a cohort of patients aged 75 and older (or a family member) discharged from the ED back to the community was recruited from 4 urban EDs. A week following discharge, structured telephone interviews supplemented with open-ended questions were conducted. A subsample (76 patients, 32 family members) was purposefully selected. Verbatim transcripts of responses to the open-ended questions were thematically analyzed.
Results:
Experiences related to physical needs included comfort, equipment supporting mobility and autonomy, help when needed, and access to drink and food. Family members required opportunities to provide patient support and greater involvement in their care. At discharge, patients/families required adequate discharge education, resolution of their health problem, information on medications, and greater certainty about planned follow-up medical and home care services.
Conclusions:
Our findings suggest several areas that could be targeted to improve patient and family perceptions of the care at an ED visit.
Introduction
Emergency department (ED) visits are critical events for older adults who often present with complex physical health problems, functional, and often cognitive impairment (1). Senior Friendly Hospital Initiatives (SFHI) (2) and geriatric ED guidelines (3) recommend protocols identifying and assessing those at risk of functional decline and other adverse outcomes after discharge, connecting with homecare and medical services in the community, and adapting the ED environment to their needs. As such, understanding both patient and family experiences of ED care can inform quality improvement initiatives (4) as older patients are usually accompanied by family members or friends who play an important role in their care (5).
A review of qualitative studies and surveys addressing older patients’ perceptions of ED care identified several domains of experiences (6). Among these domains, those that are common to all age groups, that is, interpersonal attributes of care, waiting times, and communication, have been studied (7,8). However, domains that are more relevant to older adults, that is, physical needs, the needs of family members, and transitional care needs, have been less fully investigated (6).
Previous studies have mostly focused on ED experiences of older patients with specific conditions, for example, living with chronic diseases (9), receiving end-of-life care, or admitted to hospital from ED (10 -13). Few studies involving small samples, however, have investigated ED care and postdischarge experiences among older patients returning to their original residence after an ED visit (14,15). This vulnerable population, known to be at increased risk of functional decline (16), merits further attention. In addition, family members’ experiences have seldom been taken into account (5,17). Moreover, patient interviews were usually conducted either during the ED visit (18,19), which would give incomplete information on transitional care, or 6 to 12 months following the ED visit (9,17,20), which might have led to recall bias.
Rationale for the Study
This study was conducted in the context of a multisite project. A previous quantitative phase involved the development of experience measures among older patients discharged to the community from the ED (21). The current report, using a qualitative descriptive approach (22), aims to describe the lived experiences of ED care and discharge processes among patients 75 years and older (or their family members) discharged to their original residence with a particular focus on those domains that are more relevant to older patients.
Method
Setting
We selected 4 university-affiliated EDs in 2 cities based on the results of a 2013/14 survey of elder friendly care at 76 Quebec EDs (23). Taking into account the feasibility of allocating research staff, we limited the EDs for this study to those located in Montreal and Quebec City (2 EDs in each). In a series of meeting with study partners (experts in geriatric ED care across Canada) and members of the research team, the results of the survey were used to select 4 EDs that were similar in size, staffing, and volume of visits of patients aged 75 and older, but with different patterns of implementation of geriatric ED services (3). Appendix A shows the key characteristics of 4 EDs. Institutional research ethics boards of all participating hospitals approved the study protocol.
Sample
A cohort of patients aged 75 and older discharged to their original residence (own home, residence, nursing home) was recruited from July 2014 to February 2016. We targeted patients aged 75 or older since this age group reflects a higher prevalence of frailty and is often the recommended cut point for the delivery of geriatric services such as the SFHI in Quebec (24). During weekday work hours, 3 trained research assistants (RAs) identified patients aged 75 years and older in ED clinical registries. They approached all ambulatory (walk-in or waiting room) patients; these patients are less likely to be admitted and mostly discharged home. Patients who are placed on ED beds (locally termed stretchers) are either acutely ill or cannot tolerate staying seated and often expected to be admitted to hospital. RAs approached bed patients only if they were expected to be discharged back to their original residence according to ED clinical staff. An accompanying proxy (family member or friend) was invited to participate if a patient was too ill, cognitively impaired, or not able to communicate in English or French (judged by ED clinical staff, families, and RAs). Eligibility criteria for proxies were ability to answer questions in English or French, residence in the province of Quebec, and reachable by telephone after the ED discharge. Potentially eligible patients or proxies signed informed consent forms and completed a face-to-face baseline questionnaire in the ED. This questionnaire included language spoken at home, country of birth, living arrangements, marital status, years of education, and the Identification of Seniors at Risk screening questionnaire for functional decline (25).
RAs recruited patients systematically from ED logs and balanced the number of ED bed with ambulatory patients. At the time of recruitment, it was often not known whether or not a bed patient would be admitted. Patients became eligible once the discharge was confirmed in ED registries. Patients admitted to hospital were excluded. This process was designed to allow the recruitment of patients whose discharges were confirmed during out of work hours or weekends. Some information on ED visits was retrieved from ED registries: patient sex, age, autonomy code (ambulatory vs bed), the Canadian Triage and Acuity Scale (immediate to urgent [scores 1-3] vs less urgent to nonurgent [scores 4-5]) (26), and dates and times of arrival and discharge.
Follow-up interviews
RAs conducted telephone interviews with participants 1 week after discharge and administered a structured questionnaire comprising 26 items representing potential problematic experiences (21).
The telephone survey included open-ended questions to explore in-depth the lived experiences of the ED care and discharge processes and to identify other experiences not covered by the questionnaire. Both patients and families were asked the same questions, with minor adjustments to family members (Appendix B). A purposive subsample of participants, who provided in-depth feedback to those open-ended questions and were judged by the RAs to have introspection (27), was flagged for the qualitative analysis. Termination of data collection was not based on data saturation (redundancy) by design, and analysis took place after data collection was completed (28). The same RA recruited and conducted the interview with each participant, which established a priori social contact between the interviewers and participants.
Analysis
We compared the characteristics of the ED visits and patient demographics in our purposeful subsample and to those who were not selected for the qualitative analysis, using χ2 tests (29) with the significance level at .05. The analyses were conducted using SAS version 9.4.
Qualitative segments of tape-recorded interviews, lasting 5 to 15 minutes, were transcribed verbatim. D.C-S. examined the quality of the de-identified transcripts and stored them in QDA Miner 4.0 software. We used a hybrid approach, deductive–inductive thematic analysis (30), whereby the data were mainly analyzed in the light of predetermined 3 domains of experiences considered to be more relevant to older patients (physical needs, the needs of family members, transitional care needs) in the literature (6) (deductive). Domains of experiences that are common to all age groups (interpersonal attributes of care, communication, waiting times), and other patterns inductively emerging from the data (e.g., appreciation of ED care) were also analyzed, but not reported in this paper.
Comparisons within each interview and between different interviews were conducted as follows: (a) 2 bilingual coders (D.C-S. and one study RA with expertise in qualitative research) independently coded the first 25 transcripts and developed a preliminary codebook; (b) D.C-S. coded the remaining transcripts using the preliminary codebook and updated the codebook; (c) using the updated codebook, the RA independently coded 30 randomly selected transcripts from the remaining transcripts (the software determined 94% agreement), the 2 coders discussed disagreements until reaching consensus, and (d) the main findings were further validated with other 2 team members (F.D. and J.M.) and illustrated with quotes. We believe that we reached data saturation with the subsample included in the analysis since there were no more emerging patterns in the data after coding about two-thirds of the transcripts.
Results
Of 843 eligible patients contacted in the ED by an RA, 481 (57%) patients or their proxies provided written consent. Of the 481 who consented, 412 (85.6%) completed the 1-week interview (Figure 1). Among 108 selected participants, 32 family members (26 children, 5 spouses, and 1 friend) completed the interviews on behalf of patients. Table 1 shows baseline patient characteristics in the larger cohort, comparing the purposeful subsample selected for the qualitative analysis to the sample including those excluded. Both groups were similar in general, although the subsample was more highly educated than those excluded.

Recruitment flow chart in 4 emergency departments.
Patient Characteristics.a
Abbreviation: ISAR, Identification of Seniors at Risk, Bold value indicates the significance at the alpha level of 0.05.
a n = 412.
b Immediate (1) (n = 2), very urgent (15 minutes; 2) (n = 25).
c Senior residence, nursing home, or rehabilitation center.
Emerging subthemes categorized under the 3 domains are described in detail below, in descending order, from most to least frequent for a given domain, with illustrative verbatim extracts from the transcripts. Additional representative quotes are provided in Table 2. Since patient and family perspectives were comparable in general, we report overall experiences without stratification by informant.
Summary of Thematic Analysis Findings and Illustrative Quotes.a
Abbreviation: ED, emergency department.
a Subthemes under each domain were tabulated in descending order, from most to least frequent for a given domain.
Domain 1: Older Patients’ Physical Needs
This theme was defined as the most basic of all older patients’ needs while staying in the ED, having to do with physical survival and autonomy. It encompassed the following 4 subthemes: comfort, equipment supporting mobility and autonomy, help when needed, and access to drink and food.
Comfort
Many participants expressed the lack of elements such as dimmed lights and silence at night enabling them to sleep. Many requested adjustments to room temperature and the provision of an extra blanket when needed. The ceiling lights could have different settings…if the person is completely lying on their back, she always has those lights in her eyes. P42_ED3_translated We ask for a blanket, they tell us that they have no budget. It was my daughter who brought me a blanket. I was freezing, shivering…P44_ED4_translated
Equipment supporting mobility and autonomy
The availability of the equipment needed to maintain mobility and autonomy, such as wheelchairs and walkers or other specific equipment in the washrooms, was reported to be essential by many participants. Listen, to be able to take off clothes in the bathroom comfortably, it’s not easy. There’s no chair, there’s no bar to hold on to, there’s nothing. P87_ED2_translated
Help when needed
Participants also appreciated receiving help when they needed, specifically for going to the bathroom, putting their clothes on, getting onto high beds, or calling their families. Receiving help was critically important for patients with mobility problems. I am disabled; I am waiting for hip surgery. I have a lot of back pain, and I have difficulty moving around. And she told me: “Go to the bathroom over there. Go to the bathroom.” So I went to the bathroom. I had [intravenous] perfusion. P38_ED3_translated
Access to Drink and Food
Access to drink and food when thirsty or hungry was vital for some participants. Well the only thing that I really minded, and I was there quite a long time before I found that fountain, was a lack of water. I guess I was in shock, among other things, you get thirsty, and of course I hadn’t had anything to eat since breakfast. By the time the evening came, I was truly thirsty. P176_ED1 I was not well served, no. Go to the hospital, wait 14 hours, not be able to go to the toilet, not be able to have a glass of water, not be able to eat, not be able to sleep! P8_ED2_translated
Domain 2: The Needs of Family Members
This theme was defined as the needs of family members or friends to assist and comfort their relatives while accompanying them in the ED. The 2 recurring subthemes were ED care practices and policies fostering family presence and participation in care and enough space for family members to be beside the patient.
Emergency Department Care Practices and Policies Involving Family
Some participants emphasized the need for ED care practices that foster family presence and participation in care. Participants also wanted to see an ED policy giving families unlimited access to their relatives in order to be able to provide them the physical and psychological support they needed. Good contact with the patient and the family, who was, as a matter of fact, me and my mother. Really, he [doctor] spoke very honestly. And it wasn’t like: “What is she doing here? She doesn’t belong here.” P264_ED2_daughter_translated Well I find it very very good…It’s the hospital of our choice…it always seemed like a family hospital. P146_ED1_daughter
Space for family beside patients
Families expressed the need for space to accompany their relatives who have mobility, cognitive, or sensory problems and require regular help. She [mother] can’t see, and she is deaf. It’s not easy. I always stayed with her. So we were sitting next to her. P248_ED4_daughter_translated I had an exam in a room there, an ultrasound, and my daughter stayed with me. Then, I went to a room in the emergency room, and my daughter stayed with me in the room. P38_ED3_translated
Domain 3: Transitional Care Needs
Six subthemes classified under this domain were discharge information, resolution of health problems, plans for further medical care, medications, safe transport, and home care services.
Discharge Information
Many participants felt that either they did not receive the discharge information they needed, in person or in a written format, or that the purpose of the written document was not explained. Elsewhere, they always give me a paper that says what they have, what they did, and all that I give to the residence nurse or her doctor or a copy to each person, but this time, I left with nothing. P257_ED3_friend_translated They could give me a little more information like a date [for the operation]. Now, I am living with uncertainty, with a big question mark. P354_ED2_translated
Resolution of Health Problems
Some patients felt that they were rushed to discharge without resolving the health problems led to their ED visit. Anxious about not having resolutions, some participants sought help elsewhere or considered returning to the ED. If they could have kept me longer…because I was given my discharge on Monday and I am still suffering from the same problems. P87_ED2_translated My problem that I had when I left home to go to the hospital, I have the same problem. 203_ED4_translated
Plans for Further Medical Care
Some participants expressed a need for reassurance about their further medical care and other diagnostic procedures through follow-up calls from the ED or access to specialists. Although in most cases they had to wait for the service to which they were referred, which is not under control of the ED, a few felt that they did not receive the appropriate process they needed. When you have hip pain or knee pain, maybe they think: “They will not die of it. We will treat him tomorrow.” If I had been given a specialist, access to a specialist faster, I think it is what I need. P188_ED3_translated He [doctor] told me: “We’ll meet again, I’ll call you back,” but he did not tell me when. P35_ED3_translated
Medication
Another important concern was about the lack of information provided before discharge about medications especially when new medications were prescribed or changed. When asked if participants received information on the reasons for prescribing new medications, how to use them or their potential side effects, they reported that they usually sought this information from the community pharmacists. As well, a few mentioned having difficulty obtaining the medication after the visit either because they were discharged at night or because the medication was unavailable at their pharmacy. I learned them [potential side effects] when I received the antibiotics with the letter including all information. Yes, at the pharmacy. P305_ED4_translated Because I got to the pharmacy 10 minutes before it closed, and they didn’t have any. They [ED staff] sent me home with a prescription that I couldn’t fill…It’s very stressful when you’re trying to take care of your elderly mother and you don’t have the medication necessary for them. P296_ED1_daughter
Safe Transport
Some patients underscored the need for staff to help find appropriate transport back home. One thing I appreciated was the doctor who discharged me from the hospital. He made sure I was going home and that someone was coming to pick me up. The nurse came and told me where I could call a taxi…Everyone seemed to be preoccupied that I had a safe return home. P232_ED3_translated
Home Care Services
A few participants expressed uncertainties about whether they would receive expected home care services or what would happen if they became unable to live alone, to travel when needed, or to perform activities of daily living. The doctor asked himself to know “If Mrs X fell down, would this be a good time to assess if she is able to remain at that residence?”, or “Should we do an evaluation to see if she needs to receive additional services or to change her residence?” The fact that the doctor was concerned about that was a plus point, in my opinion, very positive. P257_ED3_friend_translated No, they did not clean [the wound]. I have to do it myself, and I am not able to. It is too hard. I try to call [community health center], try to see if maybe they can send me someone. I’ve not heard from them yet. P210_ED1_translated
Discussion
Emergency departments play a central role in older adults’ care transitions between the hospital and community (15). This qualitative study provided a better understanding of patients’ physical needs, while in the ED, family caregivers’ involvement in care, and experiences of patients and their families transitioning back into the community. Our findings highlight several areas that could be addressed by EDs to more appropriately respond to patients’ physical needs, enable accompanying family members to participate in care, and improve patient and family education around the time of discharge.
Meeting older patients’ physical needs in the ED, attention to physical comfort, making mobility equipment available, providing timely assistance during the ED stay, and access to food and drink were sometimes poorly addressed. There appears to be a sense of urgency to address these fundamental aspects of care. The EDs could increase patients comfort by adjusting the room temperature, providing extra blankets, or reducing lights and noise at night (3). More staffing or revision of roles may resolve time concerns in the ED environment so that the staff can assist dependent patients more actively with their activities of daily living. EDs should ensure nutritional intake and hydration by making food and beverages available on demand (3). Screening for high risk of functional decline at triage and in-depth assessments on those who screened positive (31) could help staff identify patients with special physical needs and plan their ED care. Moreover, in order to increase staff’s ability to perform best practices for preventing deconditioning, physical space should accommodate easy access to washrooms and mobilization with walkers or wheelchairs. Patients’ autonomy and independent functioning should also be facilitated with appropriate and accessible equipment such as adjustable beds and comfortable chairs (3). Volunteers may accompany older patients without accompanying family members within the fast-paced ED environment and help prevent potential decline (32). All of these measures could prevent deterioration and iatrogenic complications associated with deconditioning in the ED.
Our findings reinforced the importance of considering the needs of families accompanying patients in the ED. Enough space at the bedside allowing families to stay closer to their older relatives and become active participants in their care was reported to be fundamental. This finding parallels the literature supporting families’ role in older patients’ care. For example, as older ED patients often become anxious while waiting, having families to support them can help to alleviate this problem (19). Families are also knowledgeable about patients’ baseline level of functional capacity and their medication, which is essential for staff to know when planning further care and management at home. Families feel more satisfied when they are able to take care of their relatives, collaborate with the staff as an active participant, and provide psychological support (5). As such, ED care practices nurturing partnership with families and allocating time for ED staff to communicate with them should be established. In view of the aging population and increasing ED visits by patients with significant cognitive impairment, it has been suggested that the dyad of the older patient and their family member must be the unit of care in the ED (17).
We identified several transitional care needs as patients were returning to the community. Many participants confirmed the need for personalized and comprehensible discharge information to ensure the continuity of their care in the community. Implementing interventions targeting staff–patient communication (33) or patient-oriented discharge summaries (34) may have the potential to reduce ED return visits. Patient and families should also be given the opportunity to ask questions. Some patients complained about lack of resolution of their health problems. This could indicate inadequate patient education on what symptoms to expect or information on self-management, or possibly that they had been discharged with unrecognized problems. Filling the new ED prescriptions was often stressful, and community pharmacists were found to be a good resource to obtain instructions on new medications. It was also felt that patient referrals for further medical care were not followed up appropriately. In fact, coordination among the different health professionals is particularly important for this population who often may need different or additional services after ED visits. As such, when there are doubts, either the family doctor should be informed about recommended follow-up appointments or community services, or ED staff might do this follow-up.
Limitations and Strengths
Although we aimed for maximum variation in 4 selected EDs, participants were from the same geographical area, extrapolation to the general older population is limited. Our purpose in this qualitative study was to explore subthemes of patient experiences. For those wishing to quantify the experiences of older adults of ED care, we suggest using our previously published validated measures (21). Also, this study provides a report of interesting/relevant lines of inquiry on the 3 predetermined domains, which somewhat limits seeing all types of experiences. The difference in education level in the subsample was another limitation. This study also had some strengths. We fully described the characteristics of the subsample which was large and diverse (patients/families, ambulatory/bedside, multicultural). The internal validity was optimized: standardized telephone interview procedures by trained RAs with participants in their home setting minimized social desirability bias, the short-time lapse between the ED visit and the interviews minimized recall bias, and intercoder reliability was measured. Finally, our research designed by an interdisciplinary team fostered reflection and the adoption of multiple perspectives on the phenomenon under study.
Conclusions
Despite the existence of evidence-based geriatric ED guidelines, in our sample of 4 hospitals, patient and family experiences were often inconsistent with these recommendations. Our findings reinforced the fact that, locally, each ED could improve their care of older adults, particularly those who are unable to communicate and/or are not mobile. More emphasis is needed on preparation for the transition back home; this could be accomplished through appropriate patient education and collaboration with community-based care providers—the family doctor, community pharmacist, and home care services. Future research and quality improvement should address these areas by engaging ED and community care providers in addition to patients and family members.
Footnotes
Appendix A
Appendix B
Authors’ Note
J.M., F.D., N.V., S.C., A.V., and T.T.M.V. conceived and designed the study and obtained research funding. D.C-S., J.M., and F.D. supervised the conduct of the study and data collection. P-A.L., R.M., and S.B. facilitated research ethics approval and data acquisition at the participating institutions and assisted with interpretation of data. F.D. and J.M. provided advice on data analysis. D.C-S. analyzed the qualitative data and drafted the manuscript, and all authors contributed substantially to its revision. D.C-S. takes responsibility for the paper as a whole. Portions of this work was presented at the 45th Annual Scientific and Educational Meeting of the Canadian Association on Gerontology, October 2016 and St. Mary’s Hospital Research Centre Seminar Series, October 2017, in Montreal, Quebec, Canada.
Acknowledgments
The authors acknowledge Mona Magalhaes, MA, for her help with data collection and intercoder reliability of the qualitative analysis and Eric Belzile, MSc, for performing the statistical analysis.
Declaration of Conflicting Interests
The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
Funding
The author(s) disclose receipt of the following financial support for the research and/or publication of this article: This study was supported by the Quebec Research Fund—Health (#25234) and St. Mary’s Hospital Foundation (Montreal, Quebec).
