This study examined family quality of life (FQOL) of Turkish families who have children with intellectual disabilities (ID) and autism. To research the perceptions of FQOL and relevant predictive relationships, data were gathered from 3,009 families who have children with ID and autism. The data were collected by using a Socio-demographic Family Information Form, Beach Center Family Quality of Life Scale, and the Family Support Scale. The FQOL and subdomain perceptions of families who have children with ID and autism were slightly above a moderate level; the highest perceptions were in the Family Interaction domain, and the lowest perceptions were in the Physical/Material Well-Being domain. We computed significant positive correlations between overall FQOL perception and family social support domains as well as between overall FQOL perception and sociodemographic variables. In the prediction of overall FQOL perception, the variable that mostly explained total variance was emotional support. For the covariates of care support, household/income, information support, socioeconomic status, age of child, type of disability, and affiliation support, the ability to predict FQOL was weak. Conversely, age of mothers, employment status of mothers, and material support domain were not important predictors in FQOL.
AcunaE., & RodriguezC. A. (2004). The treatment of missing values and its effect in the classifier accuracy. Technical paper. Department of Mathematics, University of Puerto Rico at Mayaguez. Retrieved August 7, 2013, from http://academic.uprm.edu/∼eacuna/IFCS04r.pdf.
2.
AinbinderJ.BlanchardL.SingerG. H. S.SullivanM.PowersL. K.MarquisJ. (1998). A qualitative study of parent to parent support for parents of children with special needs. Journal of Pediatric Psychology, 23, 99–109.
3.
AkkokF.AskarP., & KaranciN. (1992). The prediction of stress in parents of a child with disability [Ozurlu Bir Cocuga Sahipanne-babalardaki Stresin Yordanmasi]. Journal of Special Education [Ozel Egitim Dergisi], 1, 9–13.
4.
ArslanC.DenizE., & HamartaE. (2002). Investigation of life satisfaction of parents of a child with disability in the aspects of some variables [Engelli Cocugu Olan Ailelerin Yasam Doyumlarinin Bazi Degiskenler Acisindan Incelenmesi]. XI. National Special Education Congress, 2001. Konya: Egitim Kitabevi Pub.
5.
BakkalogluH. C., & SucuogluB. (2000). Investigation of mother-baby interaction comparing with normal babies and babies with special needs [Normal ve Zihin Engelli Bebeklerde Anne Bebek Etkilesiminin Karsilastirmali Olarak Incelenmesi]. Ozel Egitim Dergisi [Journal of Special Education], 2, 47–58.
6.
Balcells-BalcellsA.GinéC.Guàrdia-OlmosJ., & SummersJ. A. (2010). Family quality of life: Adaptation to Spanish population of several family support questionnaires. Journal of Intellectual Disability Research, 55, 1151–1163.
7.
BayatM. (2005). How family members' perceptions of influences and causes of autism may predict assessment of their family quality of life. Unpublished doctoral dissertation, Loyola University, Chicago.
BesikciH., & OzkardesO. (2002). The attitude of fathers of children with autism and fathers of normal children and structure of family [Otistik Olan ve Olmayan Normal Cocuklara Sahip Babalarin Tutumlari ve Aile Yapilari]. XII. National Special Education Congress; Methods-Approaches-Strategies (Pub. No. 193), Ankara: University Education Sciences Institute.
10.
BirkanB. (2001). The affect of Little Steps courses on mothers with children with special education needs in getting the ability of application [Kucuk Adimlar Kursu'nun Gelisimsel Geriligi Olan Cocuga Sahip Annelerin KucukAdimlari Uygulama Becerilerini Kazanmalarina Etkisi]. Unpublished doctoral dissertation, Anadolu University, Eskisehir, Turkey.
11.
BrownI. (2008). Comparison of trends in eight countries. INspire!, 2, 9–32.
12.
BrownI.AnandS.IsaacsB.BaumN., & FungW. L. A. (2003). Family quality of life: Canadian results from an international study. Journal of Developmental and Physical Disabilities, 15, 207–230.
BrownR. I. (2006). Editorial. Journal of Policy and Practice in Intellectual Disabilities, 3, 209–210.
15.
BrownR. I.HongK.ShearerJ.WangM., & WangS. (2010). Family quality of life in several countries: Results and discussion of satisfaction in families where there is a child with a disability. In KoberR. (Ed.), Enhancing the quality of life of people with intellectual disability. From theory to practice (pp. 255–264). Dordrecht: Springer.
16.
BrownR. I.MacAdam-CrispJ.WangM., & IarocciG. (2006). Family quality of life when there is a child with a developmental disability. Journal of Policy and Practice in Intellectual Disabilities, 3, 238–245.
17.
BuyukozturkS. (2007). Data analysis book for social sciences [SosyalBilimlerIcinVeriAnaliziKitabi] (8th ed.). Ankara: PegemAkademi Pub.
18.
CagliU.AkolP.KarahanM.BecerenH. B.TufurM.TokluogluC. (2006). Researchers Association Socioeconomic Status (SES) Scale-2006 Couple Households Form [Arastirmacilar Dernegi (ARDER) Sosyo-Ekonomik Statu (SES) Olcegi-2006 Esli Hane Formu]. Istanbul: Researchers Association.
19.
CagranB.SchmidtM., & BrownI. (2011). Assessment of the quality of life in families with children who have intellectual and developmental disabilities in Slovenia. Journal of Intellectual Disability Research, 55, 1164–1175.
20.
CakirY., & PalabiyikR. (1997). Social support of youth, reliability and validity study of Multidimensional Scale of Perceived Social Support [Genclerde Sosyal Destek, Cok Boyutlu Algilanan Sosyal Destek Olceginin Guvenilirlikve Gecerlilik Calismasi]. Kriz, Dergisi, 5, 15–24.
21.
CantrellK. K. (2007). Predictors of quality of life of mothers of children with intellectual disabilities. Unpublished doctoral dissertation, University of Denver, USA.
22.
CaronJ.TempierR.MercierC., & LéouffreP. (1997). Components of social support and quality of life in severely mentally ill, low-income individuals and in the general population, 4th Annual Conference of the International Society for Quality of Life Research 4–9 November 1997, Vienna, Austria. Quality of Life Research, 7, 613–747.
23.
CavkaytarA. (1999). The affect of a family education program in teaching self-care and home based skills [Zihin Engellilere Ozbakim ve Ev Ici becerilerinin Ogretiminde Bir Aile Egitimi Programininetkililigi]. Eskişehir: Anadolu University, Faculty of Education Pub., 61.
24.
CavkaytarA.BatuS.KartalB.CetinO. B., & GullupinarF. (2004). The description of family characteristics with developmentally disabled children, and family adjustment process [Gelisimsel Geriligi Olan Cocuga Sahip Ailelerin Aile Ozelliklerinin ve Yasadiklarinin Betimlenmesi]. Report. (College Board Rep. No. 030512). Eskisehir, Turkey: Anadolu University.
25.
CelikR. R. (2003). Determining opinion of parents who have children with intellectual disabilities on parental involvement in school (A Study in Bursa) [Zihin Engelli Cocugu Olan Anne-Babalarin Okulda Anne-Baba KatiliminaIliskin Goruslerinin Belirlenmesi (Bursa Ilinde Bir Arastirma)]. (Unpublished master dissertation). Anadolu University, Eskisehir, Turkey.
26.
ClarkM.BrownR., & KarrapayaR. (2011). An initial look at the quality of life of Malaysian families that include children with disabilities. Journal of Intellectual Disability Research, 56, 45–60.
27.
CobbS. (1976). Social support as a moderator of life stress. Psychosomatic Medicine, 38, 300–314.
28.
CrowleyM. J., & KazdinA. E. (1998). Child psychosocial functioning and parent quality of life among clinically referred children. Journal of Child and Family Studies, 7, 233–251.
29.
DalakerJ. (1999). U.S. Bureau of the Census, Current population reports, Series P, 60–207, Poverty in the United States: 1998. Washington, DC: U.S. Government Printing Office. (ERIC Document Reproduction Service No. ED 446 208).
30.
DavisK., & Gavidia-PayneS. (2009). The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilities. Journal of Intellectual & Developmental Disability, 34, 153–162.
31.
DillmanD. A.SmythJ. D., & ChristianL. M. (2009). Internet, mail, and mixed-model surveys: The tailored design method (3rd ed.). New Jersey: John Wiley & Sons, Inc.
32.
DunstC. J.TrivetteC. M., & CrossA. (1986). Mediating influences of social support: Personal, family and child outcomes. American Journal of Mental Deficiency, 90, 403–417.
33.
EkerD.ArkarH., & YaldizH. (2001). Factor structure, validity and reliability of revised form of the multidimensional scale of perceived social support [Cok Boyutlu Algilanan Sosyal Destek Olcegi'nin Gozden Gecirilmis Formunun Faktor Yapisi, Gecerlikve Guvenirligi]. Turkish Journal of Psychiatry [Turk Psikiyatri Dergisi], 12, 17–25.
34.
EmersonE. (2010). Deprivation, ethnicity and the prevalence of intellectual and developmental disabilities. Journal of Epidemiology Community Health, 66, 218–224.
35.
EmersonE.GrahamH., & HattonC. (2006). Household income and health status in children and adolescents: Cross sectional study. European Journal of Public Health, 16, 354–360.
36.
EnwefaR. L.EnwefaS. C., & JenningsR. (2006). Special education: Examining the impact of poverty on the quality of life of families of children with disabilities. Forum on Public Policy. Retrieved June 15 2010 from http://www.forumonpublicpolicy.com/archive06/enwefa.pdf.
37.
EvcimenE. (1996). Determination of the needs of parents (mothers and fathers) who have children with special needs [Zihin Engelli Cocugu Olan Ailelerin (Anne ve Babalarin) Gereksinimlerinin Belirlenmesi]. Unpublished master dissertation, Anadolu University, Eskisehir, Turkey.
38.
FieldA. (2005). Discovering statistics using SPSS (2nd ed.). London: Sage.
39.
FowlerJ. F. (2009). Survey research methods (4th ed.). Thousand Oaks, CA: Sage Publications, Inc.
40.
FujiuraG. T., & ParishS. L. (2007). Emerging policy challenges in intellectual disabilities. Mental Retardation and Developmental Disabilities Research Reviews, 13, 188–194.
41.
GallagherJ. J.BeckmanP., & CrossA. H. (1983). Families of handicapped children: Sources of stress and its amelioration. Exceptional Children, 50, 10–19.
42.
HambletonR. (1994). Guidelines for adapting educational and psychological tests: A progress report. European Journal of Psychological Assessment, 10, 229–244.
43.
HambletonR. K.MerendaP. F., & SpielbergerC. D. (2005). Adapting educational and psychological tests for cross-cultural assessment. New Jersey: Taylor & Francis.
44.
HambletonR. K., & PatsulaL. (1999). Increasing the validity of adapted tests: Myths to be avoided and guidelines for improving test adaptation practices. Journal of Applied Testing Technology, 1, 1–30.
45.
HastingsR. P., & BrownT. (2002). Behavior problems of children with autism, parental self-efficacy, and mental health. American Journal on Mental Retardation, 107, 222–232.
46.
HoffmanL.MarquisJ.PostonD.SummersJ. A., & TurnbullA. (2006). Assessing family outcomes: Psychometric evaluation of the Beach Center Family Quality of Life Scale. Journal of Marriage and Family, 68, 1069–1083.
47.
HornsteinS., & McWilliamR. A. (2007). Measuring family quality of life in families of children with autism spectrum disorders. Paper presented at the 2007 Annual Conference of the Division for Early Childhood, Niagara Falls, Ontario, Canada.
48.
HuX.WangM., & FeiX. (2012). Family quality of life of Chinese families of children with intellectual disabilities. Journal of Intellectual Disability Research, 56, 30–44.
49.
IreysH. T.ChernoffR.SteinR. E. K.De VetK. A., & SilverE. J. (2001). Outcomes of community-based family-to-family support: Lessons learned from a decade of randomized trials. Children's Services: Social Policy, Research, and Practice, 4, 202–216.
50.
JokinenN. S. M. (2008). Family quality of life in the context of aging and intellectual disability. Unpublished doctoral dissertation, Graduate Division of Educational Research, University of Calgary, Alberta, Canada.
51.
KanerS. (2004). The examination of stress, social support and life satisfaction of parents who have children with disabilities [Engelli Cocuklari Olan Anababalarin Algiladiklari Stres, Sosyal Destekve Yasam Doyumlarinin Incelenmesi]. Ankara: Ankara University.
52.
KarakayaB. (2006). Interaction between social stratification theories and segmentation studies on socioeconomic status in Turkey. Unpublished doctoral dissertation, Marmara University, Istanbul, Turkey.
53.
KaryeliogluS. (2002). Communication problems of parents who have children with special needs [Zihin Engelli Cocuklara Sahip Ailelerde Iletisim Sorunlari], Unpublished master dissertation, Ege University, Izmir, Turkey.
54.
KayaN. (2007). Did you forget, did assimilation? Minorities in the education system of Turkey. Report, Minority Rights Group International.
55.
KorfaliD. K.UstubiciA., & De ClerckH. (2010). Turkey country and research areas report. Istanbul: Koc University Reports.
56.
KozaliogluG., & EkberzadeH. (1994). Research of depression and anxiety of parents who have children with special needs [Zihin Ozurlu Cocuklarin Ailelerinde Depresyonve Kaygi Arastirmasi]. Marmara Universitesi Ataturk Egitim Fakultesi Dergisi, 6, 161–167.
57.
KyzarK. B.TurnbullA. P.SummersJ. A., & GomezV. A. (2012). The relationship of family support to family outcomes: A synthesis of key findings from research on severe disability. Research and Practice for Persons With Severe Disabilities, 37, 31–44.
58.
LindholmM. M. (2007). Stress, coping and quality of life in families raising children with autism. Unpublished doctoral dissertation, California School of Professional Psychology Alliant International University.
59.
LittleR. J., & RubinD. B. (2002). Statistical analysis with missing data (2nd ed.). New York: John Wiley & Sons.
60.
Languages, Literatures, and Linguistics: LLL. (2012). Turkish language program. Department of Languages, Literatures, and Linguistics. Syracuse: NY: Syracuse University. Retrieved November 4, 2012, from http://newlll.syr.edu/index.php?pgm=Turkish&page=home.
61.
LunskyY., & BensonB. A. (2001). Association between perceived social support and strain and positive and negative outcome for adults with mild intellectual disability. Journal of Intellectual Disability Research, 45, 106–114.
62.
MannanH. (2005). Examining family outcomes in early childhood services for families of children with disabilities. Unpublished doctoral dissertation, University of Kansas, Lawrence, KS.
63.
MannanH.SummersJ. A.TurnbullA. P., & PostonD. J. (2006). A review of outcome measure in early childhood programs. Journal of Policy and Practice in Intellectual Disabilities, 3, 219–228.
64.
Md-SidinS.SambasivanM., & IsmailI. (2010). Relationship between work-family conflict and quality of life an investigation into the role of social support. Journal of Managerial Psychology, 25, 58–81.
65.
Memur-Sen. (2011). The hunger and the poverty thresholds in Turkey. Ankara: Confederation of Public Servants Trade Unions (Memur-Sen).
66.
MeralB. F., & CavkaytarA. (2013). Turkish adaptation, validity and reliability study of the Beach Center Family Quality of Life Scale [Beach Center Aile Yaşam Kalitesi Ölçeǧi'nin Türkçe Uyarlama, Geçerlik ve Güvenirlik Çalişmasi]. Education and Science [Egitim ve Bilim], 38(170), 48–60.
67.
MertE. (1997). Determination of needs of mothers and fathers who have children with different special needs [Farkli Ozur Grubunda Cocugu Olan Anne Babalarin Gereksinimlerinin Belirlenmesi]. Unpublished master dissertation, Abantİzzet Baysal University, Bolu, Turkey.
68.
Ministry of National Education. (2006). Special education services regulation. Ankara: Ministry of National Education.
69.
Ministry of National Education. (2010). Numbers of school and students. Ankara: Ministry of National Education Statistics.
70.
National Research Council. (2002). Minority students in special and gifted education. Washington, DC: National Academy Press.
71.
OzeanN. (2004). Effectiveness of family education program on teaching toilet skills to children with intellectual disabilities [Zihin Ozurlu Cocuklara Tuvalet Becerisi Ogretimine Yonelik Aile Egitimi Programinin Etkililigi]. Unpublished doctoral dissertation, Anadolu University, Eskisehir, Turkey.
72.
OzcelikI.IskenderM., & KocM. (1997). Determining effectiveness of the group of family guidance application on the attitudes of parents who have children with disabilities [Grup Aile Rehberlik Uygulamasmm Zihinsel Engelli Çocuklara Sahipanne Baba Tutumlari Üzerindeki Etkililiǧin Belirlenmesi]. Presentation. IV. Natonal Educationa Sciences Congress, Eskişehir, Turkey.
73.
OzenA. (1999). Teaching effective communication skills which are necessary to work with education specialists to the mothers who have children with developmental disabilities [Gelisimsel Yetersizliǧ Oolan Cocuklarin Annelerine Egitim Uzmanlariyla Calisirken Gerekli Olan Etkiliiletisim Becerilerinin Kazandirilmasi]. Unpublished doctoral dissertation, Anadolu University, Eskisehir, Turkey.
ParkJ. (2001). How to define and measure outcomes of early intervention: An examination of family quality of life. Unpublished doctoral dissertation, University of Kansas, Lawrence, KS.
76.
ParkJ.HoffmanL.MarquisJ.TurnbullA.PostonD.MannanH. (2003). Toward assessing family outcomes of service delivery: Validation of a family quality of life survey. Journal of Intellectual Disability Research, 47, 367–384.
77.
ParkJ.TurnbullA., & TurnbullH. R. (2002). Impacts of poverty on quality of life in families of children with disabilities. Exceptional Children, 68, 151–170.
78.
PittmanJ. F., & LloydS. A. (1988). Quality of family life, social support, and stress. Journal of Marriage and Family, 50, 53–67.
79.
PostonD.TurnbullA.ParkJ.MannanH.MarquisJ., & WangM. (2003). Family quality of life: A qualitative inquiry. Mental Retardation, 41, 313–328.
80.
SacksG. (2006). Comparing the presence and importance quality of life variables for student with emotional and behavioral disorders and student without disabilities. Unpublished doctoral dissertation, Lehigh University, Bethlehem, PA.
81.
SchalockR. L. (1994). Quality of life, quality enhancement, and quality assurance: Implications for program planning and evaluation in the field of mental retardation and developmental disabilities. Evaluation and Training in Mental Retardation and Developmental Disabilities, 29, 90–101.
82.
SchmidtM., & KoberR. (2010). Quality of life of families with children with intellectual disabilities in Slovenia. In KoberR. (Ed.), Enhancing the qulaity of life of people with intellectual disability. From theory to practice (pp. 363–376). Dordrecht: Springer.
83.
SharifzadehV. S. (2011). Families with Middle Eastern roots. In LynchE. W. & HansonM. J. (Eds.), Developing cross-cultural competence (4th ed., pp. 392–430). Baltimore: Paul H. Brookes.
84.
HoG. Shun-Yao (2005). Chinese immigrant families with develop mentally delayed children: Level of acculturation and quality of life. Unpublished doctoral dissertation, Wright Institute Graduate School of Psychology, USA.
85.
SingerG. H. S.MarquisJ.PowersL.BlanchardL.DiVenereN.SantelliB. (1999). A multi-site evaluation of Parent to Parent programs for parents of children with disabilities. Journal of Early Intervention, 22, 217–219.
86.
SPSS. (2009). PASW® Statistics 18. Chicago: SPSS Inc.
87.
SteelR.PoppeL.VandeveldeS.Van HoveG., & ClaesC. (2011). Family quality of life in 25 Belgian families: Quantitative and qualitative exploration of social and professional support domains. Journal of Intellectual Disability Research, 1433, 1–13. doi: 10.1111/j.1365–2788.2011.01433.x
88.
SucuogluB.KucukerS., & KanikN. (1993). Parental involvement to education of children with special needs [Anne Babalarin Ozurlu Cocuklarin Egitimlerine Katilimlari] (No. 1, pp. 318–331). Egitim Bilimleri Kongresi Bildirileri. Adana: Cukurova Universitesi Yayinlari.
89.
SummersJ. A.MarquisJ.MananH.TurnbullA. P.FlemingK.PostonD. J. (2007). Relationship of perceived adequacy of services, family-professional partnerships, and family quality of life in early childhood service programmes. International Journal of Disability, Development and Education, 54, 319–338.
90.
SvrakaE.LogaS., & BrownI. (2011). Family quality of life: Adult school children with intellectual disabilities in Bosnia and Herzegovina. Journal of Intellectual Disability Research, 1434, 1–8. doi: 10.1111/j.1365–2788.2011.01434.x
91.
TangC. C.HuangK.LinC.LinJ. D.ChenY. C.LouS. J. (2005). Family quality of life for young children with special needs: The measurement tool development in Taiwan. Taiwan Research on Disability, 3, 33–53.
92.
TanzerN., & SimC. Q. E. (1999). Adapting instruments for use in multiple languages and cultures: A review of the ITC guidelines for test adaptations. European Journal of Psychological Assessment, 15, 258–269.
93.
TienC. L. (2003). Predictors of the rating of quality of life in young children and families in early intervention services. Unpublished doctoral dissertation, University of North Carolina, Chapel Hill, NC.
Turkish Statistical Institute. (2009). Study on life satisfaction (Publication No. 3186). Ankara: Turkish Statistical Institute Official Statistics-6.
96.
TurnbullA. P.SummersJ. A.LeeS. H., & KyzarK. (2007). Conceptualization and measurement of family outcomes associated with families of individuals with intellectual disabilities. Mental Retardation and Developmental Disabilities Research Reviews, 13, 346–356.
97.
TurnbullA. P.TurnbullH. R.AgostaJ.ErwinE.FujiuraG.SingerG. (2005). Support of families and family life across the lifespan. In LakinC. & TurnbullA. P. (Eds.), National goals and research for persons with intellectual and developmental disabilities (pp. 217–256). Washington, DC: American Association on Mental Retardation.
98.
UlasanelM. (1994). The relations between the level of anxiety and personal adaptation process of the child with special needs [Anne Babalarin Durumluk ve Surekli Kaygi Duzeyleri Ile Zihin Engelli Cocugu Kisisel Uyum Sureci Arasindaki Iliskiler]. Unpublished master dissertation, Anadolu University, Eskisehir, Turkey.
99.
VuranS. (2000). The effectiveness of informing mothers who have children with special needs about conferment and teaching criticizing, returning and conferment [Zihin Engelli Cocuk Annelerine Odullendirme ve Elestirmenin Kazandirilmasinda Bilgilendirme, Donut Verme ve Odullendirmenin Etkililigi]. Antakya, Turkey: Zirem Pub.
100.
WangM. (2004). Perspectives of fathers and mothers in assessing FQOL in early intervention programs. Unpublished doctoral dissertation, University of Kansas, Lawrence, KS.
101.
WangM.SummersJ. A.LittleT.TurnbullA.PostonD., & MannanH. (2006). Perspectives of fathers and mothers of children in early intervention programmes in assessing family quality of life. Journal of Intellectual Disability Research, 50, 977–988.
102.
WangM.TurnbullA. P.SummersJ. A.LittleT. D.PostonD. J.MannanH. (2004). Severity of disability and income as predictors of parents' satisfaction with their family quality of life during early childhood years. Research and Practice for Persons With Severe Disabilities, 29, 82–94.
103.
ZabriskieR. B., & McCormickB. P. (2003). Parent and child perspectives of family leisure involvement and satisfaction with family life. Journal of Leisure Research, 35, 163–189.
104.
ZimetG. D.DahlemN. W.ZimetS. G., & FarleyG. K. (1988). The multidimensional scale of perceived social support. Journal of Personality Assessment, 52, 30–41.
105.
ZunaN. I.SeligJ. P.SummersJ. A., & TurnbullA. P. (2009). Confirmatory factor analysis of a family quality of life scale for families of kindergarten children without disabilities. Journal of Early Intervention, 31, 111–125.
106.
ZunaN. I.SummersJ. A.TurnbullA.XuX., & XuS. (2010). Theorizing of family quality of life. In KoberR. (Eds.), Enhancing the quality of life of people with intellectual disabilities: From theory to practice, (pp. 241–279). New York: Springer.
