Family-centered care for children with cerebral palsy: A meta-analysis of perspectives from children,caregivers,and professionals through the measure of processes of care

Abstract

Children with cerebral palsy (CP) and their families face a wide range of healthcare services. Evidence suggests that this care should be family-centered (FCC). The purpose of this systematic review and meta-analysis was to gather the existing evidence about the experience of children with CP, families, and professionals with FCC through the Measure of Processes of Care (MPOC) and analyze the different perspectives in the population groups, determining which aspects of this model are more entrenched and which need special attention to improve. A search of the peer-reviewed literature in five databases was conducted. The included studies were assessed using the relevant Joanna Briggs Institute tool and a meta-analysis was performed. Fifteen articles were included, in which any version of the MPOC was used for both families and professionals. However, no article reporting the experience of children was found. The domains related to “Information provided” were the lowest rated by families and professionals, so special attention should be paid to this. The highest average score was for “Respectful care,” both families and professionals agree that the treatment provided is characterized by respect and dignity. Recommendations are provided to start collecting this kind of information for children with CP.