We explore representations of well-being in adolescents with Type 1 diabetes in order to better understand their expectations and needs in therapeutic patient education. In total, 28 interviews were performed and then submitted to thematic content analysis and lexicometric analysis. Results show the intervention of psychosocial processes in the relationship that adolescents maintain with well-being and self-management. More specifically, we observed that well-being is impacted by areas of tension between the expectations of adolescents and the therapeutic objectives expressed by health professionals. These tensions should be taken into account in the conception, implementation, and evaluation of therapeutic education programs.
AlbertsJDuntonGF (2008) The role of temporal orientation in reactive and proactive illness management. Psychology & Health23(2): 175–193.
2.
ApostolidisTDanyL (2012) Pensée sociale et risques dans le domaine de la santé: le regard des représentations sociales [Social thought and risks in the health filed: The social representations perspective]. Psychologie Française57(2): 67–81.
3.
ArnettJJ (2006) What does it mean to be an adult? Young people’s conceptions of adulthood. In: BatlerLTamis-LeMondaCS (eds) Child Psychology: A Handbook of Contemporary Issues. New York: Psychology Press, pp. 471–489.
4.
BanduraA (1986) The Exercise of Control. New York: W. H. Freedman.
5.
BanduraA (2004) Health promotion by social cognitive means. Health Education & Behavior31(2): 143–164.
6.
BarlowJHEllardDR (2006) The psychosocial well-being of children with chronic disease, their parents and siblings: An overview of the research evidence base. Child Care, Health and Development32(1): 19–31.
7.
BourdieuP (1992) Sociology in Question. Beverly Hills, CA: SAGE.
8.
CaillaudSKalampalikisN (2013) Focus groups and ecological practices: A psychosocial approach. Qualitative Research in Psychology10(4): 382–401.
9.
CameronJFAminRde BeaufortC, et al. (2014) ISPAD clinical practice consensus guidelines 2014: Diabetes in adolescence. Pediatric Diabetes15(20): 245–256.
10.
CapraraGVStecaPGerbinoM, et al. (2006) Looking for adolescents’ well-being: self-efficacy beliefs as determinants of positive thinking and happiness. Epidemiologia E Psichiatria Sociale15(1): 30–43.
11.
CharmazK (2006) Constructing Grounded Theory: A Practical Guide through Qualitative Analysis. London: SAGE.
12.
ColsonSFonteDCôtéJ, et al. (2016a) Évolution du profil socio-cognitif et clinique d’adolescents diabétiques de type 1 ayant suivi un programme d’éducation thérapeutique: étude pilote [Evolution of the socio-cognitive and clinical profile of adolescents with Type 1 diabetes who follow a therapeutic education program: a pilot study]. Éducation Thérapeutique Du Patient/Therapeutic Patient Education8(1): 10102.
13.
ColsonSCôtéJHamelV, et al. (2016b) An integrative review of the quality and outcomes of diabetes education programs for children and adolescents. The Diabetes Educator42(5): 549–584.
14.
CorsaroWA (1990) The underlife of the nursery school: young children’s social representations of adult rules. In: DuveenGLloydB (eds) Social Representations and the Development of Knowledge. Cambridge: Cambridge University Press, pp. 11–26.
15.
DanermarkBEnglundUGermundssonP, et al. (2013) French and Swedish teachers’ social representations of social workers. European Journal of Social Work17(4): 491–507.
16.
DarbyshirePMacDougallCSchillerW (2005) Multiple methods in qualitative research with children: more insight or just more?Qualitative Research5(4): 417–436.
17.
DenzinNLincolnY (1998) Emerging the field of qualitative research. In: DenzinNLincolnY (eds) Strategies of Qualitative Inquiry. London: SAGE, pp. 1–34.
18.
DodgeRDalyAHuytonJ, et al. (2012) The challenge of defining wellbeing. International Journal of Wellbeing2(3): 222–235.
19.
EymardC (2010) Des modèles de l’éducation et de la santé à l’activité d’éducation thérapeutique [From health education models to therapeutic education activity]. In: FoucaudJBuryJBalcou-DebusscheM (eds) Éducation thérapeutique du patient. Modèles, pratiques et évaluation. Saint-Denis: Éditions INPES, pp. 39–53.
20.
FlickU (1992) Triangulation revisited: Strategy of validation or alternative?Journal for the Theory of Social Behaviour22(2): 176–197.
21.
FlickU (2014) An Introduction to Qualitative Research. London: SAGE.
22.
FonteDApostolidisTLagouanelle SimeoniMC (2014) Compétences psychosociales et éducation thérapeutique du patient diabétique de type 1: une revue de la littérature [Psychosocial skills and therapeutic education of patients with Type 1 diabetes: A systematic review]. Santé Publique26(6): 763–777.
23.
ForgeardMJCJayawickremeEKernM, et al. (2011) Doing the right thing: Measuring wellbeing for public policy. International Journal of Wellbeing1(1): 79–106.
24.
FoucaultM (2008) The Birth of Biopolitics. New York: Palgrave Macmillan.
25.
GarnierCCucumelCQuesnelM (1996) How representations of cooperation are created and developed among day care children: An exploratory study. Revue Internationale De Psychologie Sociale9(1): 19–48.
26.
GuarnacciaCGiannoneFFalgaresG, et al. (2015) Differences in social representation of blood donation between donors and non-donors: An empirical study. Blood Transfusion4: 1–7.
27.
HallPAFongGTChengAY (2012) Time perspective and weight management behaviors in newly diagnosed Type 2 diabetes: A mediational analysis. Journal of Behavioral Medicine35(6): 569–580.
28.
HamzahSRSuandiTKraussSE, et al. (2014) Youth hedonistic behaviour: Moderating role of peer attachment on the effect of religiosity and worldview. International Journal of Adolescence and Youth19(4): 419–433.
29.
JodeletD (1989) Les Représentations Sociales [Social Representations]. Paris: Presses Universitaires de France.
30.
JodeletD (2003) Apercus sur les méthodologies qualitatives [Insights on qualitative methodologies]. In: MoscoviciSBuschiniF (eds) Les Méthodes Des Sciences Humaines. Paris: Presses Universitaires de France, pp. 139–162.
31.
JodeletD (2006) Place de l’expérience vécue dans les processus de formation des representations sociales [Place of lived experience in the formation process of social representations]. In: HaasV (ed.) Les Savoirs Du Quotidien [Transmission, Appropriations, Représentations]. Rennes: Presses Universitaires De Rennes, pp. 235–255.
32.
JodeletD (2008) Le mouvement de retour vers le sujet et l’approche des représentations sociales [The return movement towards the subject and the social representations approach]. Connexions89(1): 25–46.
33.
JodeletD (2013) La place des représentations sociales dans l’éducation thérapeutique [Place of social representations in patient education]. Éducation Permanente195(2): 37–46.
34.
JoffeHStaerkleC (2007) The centrality of the self-control ethos in western aspersions regarding outgroups: A social representational approach to stereotype content. Culture & Psychology13(4): 395–418.
35.
KalampalikisN (2003) L’apport de la méthode Alceste dans l’analyse des représentations sociales [Contribution of Alceste method in analysis of social representations]. In: AbricJC (ed.) Méthodes D’étude Des Representations Sociales. Paris: Erès, pp. 147–163.
36.
KalampalikisN (2004) Les focus groups, lieux d’ancrages [Focus groups, places of anchorages]. Bulletin De Psychologie57(3): 281–289.
37.
KalampalikisNApostolidisT (2016) La perspective sociogénétique des représentations sociales [The socio-genetic perspective of social representations]. In: Lo MonacoGDelouvéeSRateauP (eds) Les Representations Sociales: Théories, Méthodes Et Applications. Paris: De Boeck, pp. 69–83.
38.
KarlsenBIdsoeTDirdalI, et al. (2004) Effects of a group-based counseling programme on diabetes-related stress, coping, psychological well-being and metabolic control in adults with Type 1 or Type 2 diabetes. Patient Education and Counseling53(3): 299–308.
39.
KruegerRACaseyMA (2008) Focus Groups: A Practical Guide for Applied Research. Thousand Oaks, CA: SAGE.
40.
LangeKSwiftPPankowskaE, et al. (2014) ISPAD clinical practice consensus guidelines 2014: Diabetes education in children and adolescents. Pediatric Diabetes15(20): 77–85.
41.
LuntPLivingstoneS (1996) Rethinking the focus groups in media and communication research. Journal of Communication46(2): 79–93.
42.
LuyckxKMoonsPWeetsI (2011) Self-classification as an adult in patients with Type 1 diabetes: Relationships with glycemic control and illness coping. Patient Education and Counseling85(2): 245–250.
43.
MichaudPASurisJCVinerR (2007) The Adolescent with a Chronic Condition: Epidemiology, Developmental Issues and Health Care Provision. Geneva: WHO.
44.
MoscoviciS (1984) The phenomenon of social representations. In: FarrRMMoscoviciS (eds) Social Representations. Cambridge: Cambridge University Press, pp. 3–70.
45.
MoscoviciS (2001) Why a theory of social representations? In: DeauxKPhilogeneG (eds) Representations of the Social. Oxford: Blackwell, pp. 8–35.
46.
MoscoviciS (2008) Psychoanalysis: Its Image and Its Public. Cambridge: Polity Press.
47.
ReinertM (1983) Une méthode de classification descendante hiérarchique. Application à l’analyse lexicale par contexte [A method of a top-down hierarchical classification: Application to lexical analysis by context]. Cahiers De L’analyse Des Données7: 187–198.
48.
ReinertM (1986) Un logiciel d’analyse lexicale (ALCESTE) [A lexical analysis software (ALCESTE)]. Cahiers De L’analyse Des Données4: 471–484.
49.
RewersMJPillayKde BeaufortC, et al. (2014) ISPAD clinical practice consensus guidelines 2014: Assessment and monitoring of glycemic control in children and adolescents with diabetes. Pediatric Diabetes20: 102–114.
50.
RoseN (2000) Government and control. British Journal of Criminology40: 321–339.
51.
SmithJA (1995) Semi-structured interviewing and qualitative analysis. In: SmithJAHarreRvan LangenhoveL (eds) Rethinking Methods in Psychology. London: SAGE, pp. 9–26.
52.
SwiftPG (2009) Diabetes education in children and adolescents. Pediatric Diabetes10(12): 51–57.
53.
VrangalovaZSavin-WilliamsRC (2011) Adolescent sexuality and positive well-being: A group-norms approach. Journal of Youth and Adolescence40(8): 931–944.
54.
World Health Organization (WHO) (1948) Preamble to the Constitution of the World Health Organization as Adopted by the International Health Conference. New York: WHO.
55.
World Health Organization (WHO) (1998) Therapeutic Patient Education. Copenhagen: WHO.
