This qualitative descriptive study aimed to explore expectations of patients and healthcare experts for an online self-management program for rheumatoid arthritis. Participants were recruited from rheumatology clinics, medical centers, and universities in Taiwan. Individual face-to-face, semi-structured interviews were conducted with patients (n = 16) and healthcare experts (n = 7). Content analysis of the interview data resulted in five subthemes for expectations of an online self-management program: information about how the disease trajectory would impact future health status, availability of opportunities for self-monitoring, opportunities to interact with fellow patients and healthcare providers, simplicity and ease-of-use of the program, and methods to facilitate patient-motivation. These subthemes formulated two overarching themes: content and format. An online self-management program for patients with rheumatoid arthritis should provide evidence-based information about disease variables and behaviors aligned with the specific needs of the individual and adopt strategies that encourage and increase motivation and confidence.
AzevedoR.BernardesM.FonsecaJ.LimaA. (2015). Smartphone application for rheumatoid arthritis self-management: Cross-sectional study revealed the usefulness, willingness to use and patients’ needs. Rheumatology International, 35(10), 1675–1685. https://doi.org/10.1007/s00296-015-3270-9
2.
BarlowJ.WrightC.SheasbyJ.TurnerA.HainsworthJ. (2002). Self-management approaches for people with chronic conditions: A review. Patient Education and Counseling, 48(2), 177–187. https://doi.org/10.1016/s0738-3991(02)00032-0
BywallK. S.VeldwijkJ.HanssonM. G.KihlbomU. (2019). Patient perspectives on the value of patient preference information in regulatory decision making: A qualitative study in Swedish patients with rheumatoid arthritis. The Patient Patient-Centered Outcomes Research, 12(3), 297–305. https://doi.org/10.1007/s40271-018-0344-2
5.
ChenS. H.HuangY. P.ShaoJ. H. (2017). Effects of a dietary self-management programme for community-dwelling older adults: A quasi-experimental design. Scandinavian Journal of Caring Sciences, 31(3), 619–629. https://doi.org/10.1111/scs.12375
6.
ChenS. H.ShaoJ. H. (2012). ‘Have you had your bowl of rice?’: A qualitative study of eating patterns in older Taiwanese adults. Journal of Clinical Nursing, 21(1–2), 2–10. https://doi.org/10.1111/j.1365-2702.2011.03885.x
7.
ChenS. H.ShyuY. I.KoY. S.KungH. L.ShaoJ. H. (2016). Perceptions about eating experiences of low-literate older adults with heart disease: A qualitative study. Journal of Advanced Nursing, 72(4), 802–812. https://doi.org/10.1111/jan.12876
8.
CohenA. C.ZimmermanF.PrelipM.GlikD. (2017). A smartphone application to reduce time-to-notification of sexually transmitted infections. American Journal of Public Health, 107(11), 1795–1800. https://doi.org/10.2105/AJPH.2017.303999
9.
CreswellJ. W. (2003). Research design: Qualitative, quantitative, and mixed methods approaches (2nd ed.). SAGE Publications, Inc.
10.
des BordesJ. K. A.GonzalezE.Lopez-OlivoM. A.ShethiaM.NayakP.Suarez-AlmazorM. E. (2018). Assessing information needs and use of online resources for disease self-management in patients with rheumatoid arthritis: A qualitative study. Clinical Rheumatology, 37(7), 1791–1797. https://doi.org/10.1007/s10067-018-4047-9
11.
DougadosM.SoubrierM.PerrodeauE.GossecL.FayetF.GilsonM.CeratoM. H.PouplinS.FlipoR. M.ChabrefyL.MouterdeG.Euller-ZieglerL.SchaeverbekeT.FautrelB.SarauxA.Chary-ValckenaereI.ChalesG.DernisE.RichetteP.MarietteX.. . .RavaudP. (2015). Impact of a nurse-led programme on comorbidity management and impact of a patient self-assessment of disease activity on the management of rheumatoid arthritis: Results of a prospective, multicentre, randomised, controlled trial (COMEDRA). Annals of the Rheumatic Diseases, 74(9), 1725–1733. https://doi.org/10.1136/annrheumdis-2013-204733
12.
DuresE.HewlettS. (2012). Cognitive-behavioural approaches to self-management in rheumatic disease. Nature reviews. Rheumatology, 8(9), 553–559. https://doi.org/10.1038/nrrheum.2012.108
13.
DwarswaardJ.BakkerE. J.van StaaA.BoeijeH. R. (2016). Self-management support from the perspective of patients with a chronic condition: A thematic synthesis of qualitative studies. Health Expectations, 19(2), 194–208. https://doi.org/10.1111/hex.12346
14.
GraneheimU. H.LundmanB. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24(2), 105–112. https://doi.org/10.1016/j.nedt.2003.10.001
15.
GubaE. G.LincolnY. S. (1983). Effective evaluation. Jossey-Bass-Publishers.
16.
HoodC. R. (2017). Diabetes and mHealth: Using smart phones, apps, and other technologies: Can we create “smarter” diabetic patients through electronic self-management of disease?Podiatry Management, 36(9), 61–66.
JansenY. J.FoetsM. M.de BontA. A. (2010). The contribution of qualitative research to the development of tailor-made community-based interventions in primary care: A review. European Journal of Public Health, 20(2), 220–226. https://doi.org/10.1093/eurpub/ckp085
19.
KuoC. C.WangH. H. (2012). Applying self-management intervention studies to patients with chronic illness: A systematic review. Journal of Nursing & Healthcare Research, 8(1), 50–60.
20.
LorigK. R.RitterP. L.LaurentD. D.PlantK. (2008). The internet-based arthritis self-management program: A one-year randomized trial for patients with arthritis or fibromyalgia. Arthritis & Rheumatism, 59(7), 1009–1017. https://doi.org/10.1002/art.23817
21.
MacLeanL. M.MeyerM.EstableA. (2004). Improving accuracy of transcripts in qualitative research. Qualitative Health Research, 14(1), 113–123. https://doi.org/10.1177/1049732303259804
NguyenA. D.FrenshamL. J.WongM. X.MeslinS. M.MartinP.LauA. Y.BaysariM. T.DayR. O. (2018). MHealth app patient testing and review of educational materials designed for self-management of gout patients: Descriptive qualitative studies. JMIR mHealth and uHealth, 6(10), e182. https://doi.org/10.2196/mhealth.9811
24.
NightingaleR.HallA.GelderC.FriedlS.BrennanE.SwallowV. (2017). Desirable components for a customized, home-based, digital care-management app for children and young people with long-term, chronic conditions: A qualitative exploration. Journal of Medical Internet Research, 19(7), e235. https://doi.org/10.2196/jmir.7760
25.
ProtheroL.GeorgopoulouS.de SouzaS.BosworthA.BearneL.LemppH. (2017). Patient involvement in the development of a handbook for moderate rheumatoid arthritis. Health Expectations, 20(2), 288–297. https://doi.org/10.1111/hex.12457
26.
RantalaA.PikkarainenM.PölkkiT. (2020). Health specialists' views on the needs for developing a digital gaming solution for paediatric day surgery: A qualitative study. Journal of Clinical Nursing, 29(17-18), 3541–3552. https://doi.org/10.1111/jocn.15393
27.
RaskM. T.JakobsenP. R.ClemensenJ.RosendalM.FrostholmL. (2021). Development of an eHealth programme for self-management of persistent physical symptoms: A qualitative study on user needs in general practice. BMC Family Practice, 22, 33–33. https://doi.org/10.1186/s12875-021-01380-5
28.
RevenäsÅ.OpavaC. H.AhlénH.BrusewitzM.PetterssonS.ÅsenlöfP. (2016). Mobile internet service for self-management of physical activity in people with rheumatoid arthritis: Evaluation of a test version. RMD Open, 2, e000214. https://doi.org/10.1136/rmdopen-2015-000214
SandelowskiM. (2010). What’s in a name? Qualitative description revisited. Research in Nursing & Health, 33(1), 77–84. https://doi.org/10.1002/nur.20362
32.
ShaoJ. H.ChenS. H. (2019, April) Randomized control trial of a self-management intervention for heart failure older adults in Northern Taiwan. Collegian, 26(2), 288–294. https://doi.org/10.1016/j.colegn.2018.08.006
33.
ShaoJ. H.ChuangY. H.ChenS. H. (2015). A multi-perspective focus-group approach to revise items in a dietary self-efficacy scale for older Taiwanese adults. Collegian, 22(1), 83–90. https://doi.org/10.1016/j.colegn.2013.11.007
34.
ShaoJ. H.YuK. H.ChenS. H. (2021). Effectiveness of a self-management program for joint protection and physical activity in patients with rheumatoid arthritis: A randomized controlled trial. International Journal of Nursing Studies, 116, 103752. https://doi.org/10.1016/j.ijnurstu.2020.103752
35.
ShigakiC. L.SmarrK. L.SivaC.GeB.MusserD.JohnsonR. (2013). RAHelp: An online intervention for individuals with rheumatoid arthritis. Arthritis Care & Research, 65(10), 1573–1581. https://doi.org/10.1002/acr.22042
36.
SokS. R.RyuJ. S.ParkS. H.SeongM. H. (2019). Factors influencing self-care competence in Korean women with rheumatoid arthritis. Journal of Nursing Research, 27(2), e16. https://doi.org/10.1097/jnr.0000000000000279
37.
StinsonJ.Ahola KohutS.ForgeronP.AmariaK.BellM.KaufmanM.LucaN.LucaS.HarrisL.VictorC.SpiegelL. (2016). The iPeer2Peer program: A pilot randomized controlled trial in adolescents with Juvenile Idiopathic Arthritis. Pediatric Rheumatology, 14(1), 48. https://doi.org/10.1186/s12969-016-0108-2
ThomasR.HewlettS.SwalesC.CrampF. (2019). Keeping physically active with rheumatoid arthritis: Semi-structured interviews to explore patient perspectives, experiences and strategies. Physiotherapy, 105(3), 378–384. https://doi.org/10.1016/j.physio.2018.09.001
40.
TongA.SainsburyP.CraigJ. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357. https://doi.org/10.1093/intqhc/mzm042
41.
Usher-SmithJ. A.WintherL. R.SheferG. S.SilarovaB.PayneR. A.GriffinS. J. (2017). Factors associated with engagement with a web-based lifestyle intervention following provision of coronary heart disease risk: Mixed methods study. Journal of Medical Internet Research, 19(10), e351–8871. https://doi.org/10.2196/jmir.7697
42.
van KruijssenV.van StaaA.DwarswaardJ.In ‘t VeenJ. C.MennemaB.AdamsS. A. (2015). Use of online self-management diaries in asthma and COPD: A qualitative study of subjects’ and professionals’ perceptions and behaviors. Respiratory Care, 60(8), 1146–1156. https://doi.org/10.4187/respcare.03795
43.
WhiteheadL.SeatonP. (2016). The effectiveness of self-management mobile phone and tablet apps in long-term condition management: A systematic review. Journal of Medical Internet Research, 18(5), e97. https://doi.org/10.2196/jmir.4883
44.
World Health Organization. (2011). mHealth: New horizons for health through mobile technologies. Global observatory for eHealth series (Vol. 3). Author.
