Patients with interstitial lung disease (ILD) have many unmet palliative care needs. The majority of patients with chronic ILD have poor access to a specialist in palliative medicine and that is due to several barriers. The mortality for the ILD patient is high and reaches up to 80% if admitted to the ICU with respiratory failure. Palliative care addresses symptoms in diseases where cure is unlikely or impossible. Palliative care consultation also ensures communication among patients, caregivers and providers regarding treatments, prognosis, and end of life planning. Methods: We performed a literature review on palliative care and ILD, accessing articles published since 2002. We found 71 articles related to the topic. We chose 37 that were most relevant and with no redundancy of information to include in this review. Objectives: Summarize the palliative care needs of patients with ILD, discuss the barriers to receiving palliative care, and summarize clinical practice for providing palliative care to this patient population.
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11.
BrownCEEngelbergRANielsenELCurtisJR. Palliative care for patients dying in the intensive care unit with chronic lung disease compared with metastatic cancer. Ann Am Thorac Soc. 2016;13(5):684–689.
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13.
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14.
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BajwahSYorkeJ. Palliative care and interstitial lung disease. Curr Opin Support Palliat Care. 2017;11(3):141–146.
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MarsaaKGundestrupSJensenJU, et al.Danish Respiratory Society Position Paper: palliative care in patients with chronic progressive non-malignant lung diseases. Eur Clin Respir J. 2018;5(1):1530029.
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23.
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24.
BajwahSDaviesJMTanashHCurrowDCOluyaseAOEkstromM. Safety of benzodiazepines and opioids in interstitial lung disease: a national prospective study. Eur Respir J. 2018;52(6):1801278.
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26.
BajwahSKoffmanJHigginsonIJ, et al. “I wish I knew more…” the end-of-life planning and information needs for end-stage fibrotic interstitial lung disease: views of patients, carers and health professionals. BMJ Support Palliat Care. 2013;3(1):84–90.
27.
KalluriMRichman-EisenstatJ. Early and integrated palliative care to achieve a home death in idiopathic pulmonary fibrosis. J Pain Symptom Manage. 2017;53(6):1111–1115.
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GadeGVenohrIConnerD, et al.Impact of an inpatient palliative care team: a randomized control trial. J Palliat Med. 2008;11(2):180–190.
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LimRKHumphreysCMorissetJHollandAEJohannsonKAO2 Delphi Collaborators. Oxygen in patients with fibrotic interstitial lung disease: an international Delphi survey. Eur Respir J. 2019;54(2):1900421.
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