This narrative paper describes the influences behind the development of, and key components of a specialist younger-onset dementia service located in metropolitan Victoria, Australia.
Conclusion:
The Melbourne Young-Onset Dementia Service was established in 2013 and provides diagnosis and ongoing care for people with younger-onset dementia and their families, through collaboration with other medical units, allied health and community services. It is potentially a model for other younger-onset dementia services nationally and internationally.
RossorMNFoxNCMummeryCJ, et al. The diagnosis of young-onset dementia. Lancet Neurol2010; 9: 793–806.
2.
RoddaJCarterJ.A survey of UK services for younger people living with dementia. Int J Geriatr Psychiatry2016; 31: 957–959.
3.
DraperBCationsMWhiteF, et al. Time to diagnosis in young-onset dementia and its determinants: the INSPIRED study. Int J Geriatr Psychiatry2016; 31: 1217–1224.
4.
van VlietDde VugtMEBakkerC, et al. Time to diagnosis in young-onset dementia as compared with late-onset dementia. Psychol Med2013; 43: 423–432.
5.
LoiSMGohAMYMocellinR, et al. Time to diagnosis in younger-onset dementia and the impact of a specialist diagnostic service. Int Psychogeriatr. Epub ahead of print 28 August 2020. doi: 10.1017/S1041610220001489
6.
LoiSMEratneDGohAMY, et al. A 10 year retrospective cohort study of inpatients with younger-onset dementia. Int J Geriatr Psychiatry2021; 36(2): 294–301.
7.
WoolleyJDKhanBKMurthyNK, et al. The diagnostic challenge of psychiatric symptoms in neurodegenerative disease: rates of and risk factors for prior psychiatric diagnosis in patients with early neurodegenerative disease. J Clin Psychiatry2011; 72: 126–133.
8.
GiebelCEasthamCCannonJ, et al. Evaluating a young-onset dementia service from two sides of the coin: staff and service user perspectives. BMC Health Serv Res2020; 20: 187.
9.
SansoniJDuncanCGrootemaatP, et al. Younger onset dementia. Am J Alzheimers Dis Other Demen2016; 31: 693–705.
10.
CarterJEOyebodeJRKoopmansR.Young-onset dementia and the need for specialist care: a national and international perspective. Aging Ment Health2018; 22: 468–473.
11.
WithallA.The challenges of service provision in younger-onset dementia. J Am Med Dir Assoc2013; 14: 230–232.
12.
Department of Human Services. Review of the cognitive dementia and memory services. Latrobe University, Victoria, Australia2003.
13.
Alzheimer’s Australia. Annual report. 2007.
14.
Baptcare. Research paper: BANC PASS cross sector partnership: a successful collaboration and a pathway to better outcomes for people with younger-onset dementia. Victoria, 2016.