Neonatal death is a significant public health indicator. To provide adequate care for mothers and considering that this loss is one of the bereavements that impact occupations, identity, and social participation, it is necessary to study it. The purpose of this study was to understand motherhood in the bereavement process and self-knowledge and to describe the mother’s perception about participating in a support group for neonatal loss.
Methods:
This is a case study that used semistructured interviews and a timeline with a woman who experienced neonatal loss. Thematic analysis was used to analyze the data, which was triangulated with the timeline description.
Findings:
Three categories emerged, which dealt with the impacts on the bereaved mother’s life, the mother’s occupational identity, and participation in a support group.
Conclusion:
It was concluded that the mother’s strategies and her support network were essential for her recovery. In addition, the construction and recognition of maternal identity require time, reframing, and support. Participation in a support group also had a positive impact on bereavement.
Alvarez-CalleMChavesC (2023) Posttraumatic growth after perinatal loss: A systematic review. Midwifery121: 103651.
2.
AttigT (2001) Relearning the world: Making and finding meanings. In: NeimeyerR (ed.) Meaning Reconstruction and the Experience of Loss. Washington, DC: American Psychological Association, pp.33–53.
3.
CarneiroVMSPMenezesRA (2020) Narratives of gestational and neonatal loss: Contemporary sensitivities. In: Proceedings of the 32nd Brazilian Anthropology Meeting (ABA 2020), Virtual Meeting, Brazil, 7–10 December 2020.
4.
ConsonniEBPeteanEBL (2013) Loss and grief: Experiences of women who terminated pregnancy due to lethal fetal malformation. Ciência & Saúde Coletiva18: 2663–2670.
5.
CostaESCoêlhoAFFMCandeiaRMS, et al. (2021) Difficulties, fears, and expectations of pregnant women during the gestational period. Saúde Coletiva11: 8560–8565.
6.
CreswellJWMillerDL (2000) Determining validity in qualitative inquiry. Theory Into Practice39(3): 124–130.
7.
DahdahDF (2019) The process of grief elaboration and occupational responses in the daily lives of grieving mothers. Doctoral Dissertation, Universidade Federal de São Carlos, São Carlos, Brazil.
8.
DahdahDFBombardaTBFrizzoHCF, et al. (2019) Systematic review on grief and occupational therapy. Cadernos Brasileiros de Terapia Ocupacional27: 186–196.
9.
DelgadoLCoboJGiménezC, et al. (2023) Initial impact of perinatal loss on mothers and their partners. International Journal of Environmental Research and Public Health20: 1304.
10.
DoneganGNoonanMBradshawC (2023) Parents’ experiences of pregnancy following perinatal loss: An integrative review. Midwifery121: 103673.
11.
DunbarSBRobertsE (2006) An exploration of mothers’ perceptions regarding mothering occupations and experiences. Occupational Therapy in Health Care20: 51–73.
12.
DyregrovKDyregrovAJohnsenI (2014) Experiências positivas e negativas da participação em grupos de luto: Um estudo qualitativo. Journal of Death and Dying68: 45–62.
13.
EklundMVPrindsCMørkS, et al. (2022) Parents’ religious/spiritual beliefs, practices, changes and needs after pregnancy or neonatal loss—A Danish cross-sectional study. Death Studies46: 1529–1539.
14.
FerigatoSHSilvaCRAmbrosioL (2018) The corporeality of pregnant women and occupational therapy: Possible actions in primary health care. Cadernos Brasileiros de Terapia Ocupacional26: 768–783.
15.
FigueiredoLSAlmeidaMPPM (2019) Can pain be healed? Evaluation of the effectiveness of psychotherapy in preventing pathological grief. Undergraduate Thesis, Universidade do Sul de Santa Catarina—UNISUL, Tubarão, Brazil.
16.
FonsêcaMCLR (2021) Maternal grief in the gravid-puerperal period: Psychological implications for women experiencing gestational or neonatal loss. Undergraduate Thesis, Centro Universitário – UNDB, São Luís, Brazil.
17.
GandolfiFRRGomesMFPReticenaKO, et al. (2019) Changes in women’s life and body during pregnancy. Brazilian Journal of Surgery and Clinical Research27: 126–131.
18.
GilliesJNeimeyerR (2006) Loss, grief and the search for significance: Toward a model of meaning reconstruction in bereavement. Journal of Constructivist Psychology19: 31–65.
19.
GomesCAFerreiraCALPinheiroGBA, et al. (2023) Virtual support group for gestational and neonatal grief: Experiences from a teaching maternity hospital. Presented at: Congresso Nacional de Inovações em Saúde (CONAIS), 4th edition.
20.
GordoMB (2022) Pregnancy loss and the grieving process: What women and their partners share. Journal of Infant, Child, and Adolescent Psychotherapy21: 252–261.
21.
HanishKKMarguliesICoganAM (2019) Evaluation of an occupation-based retreat for women after pregnancy or infant loss. American Journal of Occupational Therapy73: 7305345030.
22.
HoppesS (2005) When a child dies the world should stop spinning: An autoethnography exploring the impact of family loss on occupation. American Journal of Occupational Therapy59: 78–87.
23.
HoppesSSegalR (2010) Reconstructing meaning through occupation after the death of a family member: Accommodation, assimilation, and continuing bonds. American Journal of Occupational Therapy64: 133–141.
24.
HorneJCorrSEarleS (2005) Becoming a mother: A study exploring occupational change in first-time motherhood. Journal of Occupational Science12: 176–183.
25.
JesusRCA (2020) The grieving process following the diagnosis of lethal fetal anomaly and perinatal palliative care assistance. Master’s Thesis, Obstetrics and Gynecology, Faculdade de Medicina, Universidade de São Paulo, São Paulo, Brazil.
26.
LemosLFSCunhaACB (2015) Conceptions of death and mourning: Female experience with gestational loss. Psicologia: Ciência e Profissão, 35: 1120–1138.
27.
LopesBGCarlettoMRIvastcheschenT, et al. (2021) Maternal feelings in face of perinatal death. Revista de Pesquisa: Cuidado é Fundamental Online13: 1493–1498.
28.
LunaIJMoréCO (2017) Narratives and reconstruction of meaning in the bereavement process. Revista M. Estudos sobre a morte, os mortos eo morrer2: 152–172.
29.
MedeirosAPIgnácioES (2023) Birth and death: The erasure of grief during perinatality. Revista de Psicologia17: 253–272.
30.
MenegatDDahdahDFBombardaTB, et al. (2021) Process of constructing maternal occupational identity interrupted by grief. Cadernos Brasileiros de Terapia Ocupacional29: e2134.
31.
MinayoMCS (2013) The Challenge of Knowledge: Qualitative Research in Health, 13th edn. São Paulo: Hucitec.
32.
OliveiraCMde SilvaADRamalhoC, et al. (2022) Effects of marital satisfaction and the usefulness of rituals in the experience of grief in miscarriage. Cogitare Enfermagem27: e82691.
33.
PapachristouZPantelakiNMetallinouD (2023) The memory box in neonatal loss. European Journal of Midwifery7(Supplement 1): A155.
34.
PascoalM (2012) Group work with the bereaved. Psicologia em Estudo17: 725–729.
35.
PrezottoKHOliveiraRRPellosoSM, et al. (2021) Trend of preventable neonatal mortality in the States of Brazil. Revista Brasileira De Saúde Materno Infantil21: 291–299.
36.
RoeckerSMaiLDBaggioSC, et al. (2012) Demands for care in the face of pregnancy and birth of babies with malformations. Revista De Enfermagem Da UFSM2: 252–263.
37.
SacilotiIPBombardaTB (2022) Abordagem ao luto: Aspectos exploratórios sobre a assistência de terapeutas ocupacionais. Cadernos Brasileiros De Terapia Ocupacional30: e3264.
38.
SouzaAMCorreaVAC (2009) Understanding grief in occupational activities. Revista NUFEN1: 131–148.
StanhopeKKKapilaPHossainA, et al. (2024) Understanding the relationship between gender representation in county government and perinatal outcomes to Black, White, and Hispanic birthing people in Georgia. Women’s Health Reports5: 201–210.
41.
YinRK (2001) Case Study Research: Design and Methods, 2nd edn. Porto Alegre: Bookman.
