Providing Emotional Support to Parents and Caregivers of Infants and Toddlers With Visual Impairments

Allred K. W. (2015). Engaging parents of students with disabilities: Moving beyond the grief model. Improving Schools, 18(1), 46–55. https://doi.org/10.1177/1365480214553745

Allred K. W. Hancock C. (2012). On death and disability: Reframing educators’ perceptions of parental response to disability. E-Disability Studies Quarterly, 32(4). https://doi.org/10.18061/dsq.v32i4.1737

Anthony T. (2014). Family supports and early intervention services for the youngest children with visual impairments. Journal of Visual Impairment & Blindness, 108(6), 514–519. https://doi.org/10.1177/0145482X1410800612

Barnett D. Clements M. Kaplan-Estrin M. Failka J. (2003). Building new dreams: Supporting parents’ adaptation to their child with special needs. Infants & Young Children, 16(3), 184–200. https://doi.org/10.1097/00001163-200307000-00002

Bray L. Carter B. Sanders C Blake L. Keegan K. (2017). Parent-to-parent peer support for parents of children with a disability: A mixed method study. Patient Education and Counseling, 100(8), 1537–1543. https://doi.org/10.1016/j.pec.2017.03.004

Breighton C. Wills J. (2019). How parents describe the positive aspect of parenting their child who has intellectual disabilities: A systematic review and narrative analysis. Journal of Applied Research in Intellectual Disabilities, 32(5), 1255–1279. https://doi.org/10.1111/jar.12617

Brotherson M. J. Summers J. A. Naig L. A. Kyzar K. Friend A. Epley P. Gotto G. S. IV Turnbull A. P. (2010). Partnership patterns: Addressing emotional needs in early intervention. Topics in Early Childhood Special Education, 30(1), 32–45. https://doi.org/10.1177/0271121409360068

Carollo S. (2022, February 10). Linking arms: Support groups for parents of children who are blind or visually impaired. FamilyConnectBlog. https://familyconnect.org/blog/familyconnect-blog/linking-arms-support-groups-for-parents-of-children-who-are-blind-or-visually-impaired/

Chen D. (1999). Center-based programs for infants with visual impairments and their families:“natural” or “unnatural” learning environments. Journal of Visual Impairment & Blindness, 93(6), 390–392. https://doi.org/10.1177/0145482X9909300610

Chen D. (2014). Interactions between young children and caregivers: The context for early intervention services. In Chen D. (Ed.), Essential elements in early intervention: Visual impairments and multiple disabilities (2nd ed., pp. 34–84). AFB Press.

Coleman E. (2011). Grieving. FamilyConnectBlog. https://familyconnect.org/blog/raising-a-child-who-is-blind-and/grieving/

Collins S. (2015). Hope and helping in social work. Practice: Social Work in Action, 27(3), 197–213. https://doi.org/10.1080/09503153.2015.1014335

Division for Early Childhood (DEC). (2014). DEC recommended practices in early intervention/early childhood special education 2014. https://www.dec-sped.org/dec-recommended-practices

Division for Early Childhood. (2020). Initial practice-based professional standards for early childhood special educators 2020. https://www.dec-sped.org/ei-ecse-standards

Ely M. S. Ostrosky M. M. (2018). Applying the foundational concepts from early intervention services provided to young children with visual impairments: A literature review. Journal of Visual Impairment & Blindness, 112(3), 225–238. https://doi.org/10.1177/0145482X1811200302

Ely M. S. Ostrosky M. M. Burke M. M. (2020). Self-efficacy of providers of early intervention services to young children with visual impairments and their families. Journal of Visual Impairment & Blindness, 114(2), 114–126. https://doi.org/10.1177/0145482X20913138

Gallagher P. A. Fialka J. Rhodes C. Aceneaux C. (2002). Rethinking denial. Young Exceptional Children, 5(2), 11–17. https://doi.org/10.1177/109625060200500202

Gilkerson L. (2004). Reflective supervision in infant-family programs: Adding clinical process to nonclinical settings. Infant Mental Health Journal, 25(5), 424–439. https://doi.org/10.1002/imhj.20017

Grygas-Coogle C. Hanline M. F. (2016). An exploratory study of family-centered help-giving practices in early intervention: Families of young children with autism spectrum disorder. Child and Family Social Work, 21(2), 249–260. https://doi.org/10.1111/cfs.12148

Hanson M. J. (2011). Diversity in service settings. In Lynch E. L. Hanson M. J. (Eds.), Developing cross-cultural competence: A guide for working with children and their families (4th ed., pp. 2–19). Paul H. Brookes Publishing.

Hanson M. J. Lynch E. L. (2013). Understanding families: Supportive approaches to diversity, disability, and risk (2nd ed.). Paul H. Brookes Publishing.

Hatton D. Chen D. Snyder D. Smyth C. Greeley K. Anthony T. Ely M. Lind L. Hillier L. Dewald H. P. (2018). Family centered practices for infants and toddlers with visual impairments: A position paper for the Division on Visual Impairments and Deafblindness, Council for Exceptional Children. https://community.cec.sped.org/dvi/resourcesportal/positionpapers

Jeong J. Franchett E. E. Ramos de Oliveira C. V. Rehmani K. Yousafzai A. K. (2021) Parenting interventions to promote early child development in the first three years of life: A global systematic review and meta-analysis. PLoS Med 18(5), e1003602. https://doi.org/10.1371/journal.pmed.1003602

Kelly J. F. Zukerman T. Rosenblatt S. (2008). Promoting first relationships: A relationship-focused early intervention approach. Infants & Young Children, 21(4), 285–295. https://doi.org/10.1097/01.IYC.0000336541.37379.0e

Klein D. M. Chen D. (2008). Home visiting practices with infants with disabilities: An exploratory study. Early Childhood Services, 2(4), 207–223.

Kubler-Ross E. (1969). On death and dying: What the dying have to teach doctors, nurses, clergy and their families. Routledge.

Law M. King S. Stewart D. King G. (2002). The perceived effects of parent-led support groups for parents of children with disabilities. Physical and Occupational Therapy in Pediatrics, 21, (2–3), 29–48. https:// doi.org/10.1080/J006v21n02_03

Lee Y. H. (2015). The meaning of early intervention: A parent’s experience and reflections on interactions with professionals using a phenomenological ethnographic approach. International Journal of Qualitative Studies on Health and Well-Being, 10(1), 1–10. https://doi.org/10.3402/qhw.v10.25891

Mahoney G. (2009). Relationship focused intervention (RFI): Enhancing the role of parents in children’s developmental outcomes. International Journal of Early Childhood Special Education (INT-ECSE), 1(1), 79–94. https://doi.org/10.20489/intjecse.107978

McMilliam R. A. Scott S. (2001) A support approach to early intervention: A three-part framework. Infants & Young Children, 13(4), 55–66. https://doi.org/10.1097/00001163-200113040-00011

Mereoiu M. Abercrombie S. Murray M. (2016). One step closer: Connecting parents and teachers for improved student outcomes. Cogent Education, 3(1), 12430793. https://doi.org/10.1080/2331186X.2016.1243079

Sakkalou E. Sakki H. O’reilly M. A. Salt A. T. Dale N. J. (2018). Parenting stress, anxiety, and depression in mothers with visually impaired infants: A cross-sectional and longitudinal cohort. Developmental Medicine & Child Neurology, 60(3), 290–298. https://doi.org/10.1111/dmcn.13633

Scorgie K. Wilgosh L. Sobey D. (2004). The experience of transformation in parents of children with disabilities. Theoretical considerations. Developmental Disabilities Bulletin, 32(1), 84–110. https://files.eric.ed.gov/fulltext/EJ848193.pdf

Smedley K. (2021, March 19). Thriving is better than surviving: My journey to raising successful, resilient, and courageous blind children. FamilyConnectBlog. https://familyconnect.org/blog/familyconnect-a-parents-voice/thriving-is-better-than-surviving-my-journey-to-raising-successful-resilient-and-courageous-blind-children/

Thistle J. J. McNaughton D. (2014). Teaching active listening skills to pre-service speech-language pathologists: A first step in supporting collaboration with parents of young children who require AAC. Language, Speech, and Hearing Services in Schools, 46(1), 44–55. https://doi.org/10.1044/2014_LSHSS-14-0001

Topornycky J. Golparian S. (2016). Balancing openness and interpretation in active listening. Collected Essays on Learning and Teaching, 9, 175–184. https://files.eric.ed.gov/fulltext/EJ1104498.pdf

Turnbull A. Turnbull H. R. Erwin E. J. Soodak L. C. Shogren K. A. (2015). Families, professionals and exceptionality: Positive outcomes through partnerships and trust (7th ed.). Pearson.

van den Broek E. G. C. van Eijden A. J. P. M. Overbeek M. M. Kef S. Sterkenburg P. S. Schuengel C. (2017). A systematic review of the literature on parenting young children with visual impairments and the adaptions of video-feedback intervention to promote positive parenting (VIPP). Journal of Developmental & Physical Disabilities, 29(3), 503–545. https://doi.org/10.1007/s10882-016-9529-6

Waters C. L. Friesen A. (2019). Parent experiences of raising young children with multiple disabilities: Transition to preschool. Research and Practice for Persons with Severe Disabilities, 44(1), 20–36. https://doi.org/10.1177/1540796919826229