For this study, the researchers used a grounded theory approach to explore the perspectives of parents with children who have CHARGE syndrome regarding their children's physical education experiences. Participants included 10 mothers of children with CHARGE syndrome ages 6 to 23 years old. The parents completed a demographic survey and participated in a semi-structured interview where they discussed their perspectives on their child’s physical education services. The interviews were audio-recorded, transcribed, and analyzed using an open coding analysis. Three independent themes were revealed: (a) holistic expectations, (b) multifaceted barriers, and (c) facilitators to quality physical education. The perspectives shared by parents indicated that parents do find physical education services, an important part of the educational program. However, the existing programs did not meet the parents’ expectations specific to programming for children with CHARGE syndrome.
AnJ.GoodwinD. L. (2007). Physical education for students with spina bifida: Mothers’ perspectives. Adapted Physical Activity Quarterly, 24(1), 38–58.
2.
AnJ.HodgeS. R. (2013). Exploring the meaning of parental involvement in physical education for students with developmental disabilities. Adapted Physical Activity Quarterly, 30(2), 147–163.
3.
BashinskiS. M. (2015). Communication programming for learners with CHARGE syndrome: Augmenting comprehension and expression. Perspectives on Augmentative and Alternative Communication, 24(3), 86–93.
ChaapelH.ColumnaL.LytleR.BaileyJ. (2013). Parental expectations about adapted physical education services. Journal of Special Education, 47(3), 186–196.
6.
CohenL.ManionL.MorrisonK. (2011). Research methods in education (7th ed.). New York, NY: Routledge.
7.
ColumnaL.Fernández-VivóM.LiebermanL.ArndtK. (2015). Recreational physical activity experiences among Guatemalan families with children with visual impairments. Journal of Physical Activity and Health, 12(8), 1119–1127.
8.
ColumnaL.LiebermanL. J. (2011). Promoting language through physical education: Using sign language and Spanish to engage everyone. Human Kinetics.
9.
ColumnaL.PyferJ.SenneT. A. (2011). Physical recreation among immigrant Hispanic families with children with disabilities. Therapeutic Recreation Journal, 45(3), 214–233.
10.
ColumnaL.PyferJ.SenneT. A.VelezL.BridenthrallN.CanabalM. Y. (2008). Parental expectations of adapted physical educators: A Hispanic perspective. Adapted Physical Activity Quarterly, 25(3), 228–246.
11.
ColumnaL.StreeteD. A.HodgeS. R.DillonS. R.MyersB.NorrisM. L.. . . HeffernanK. S. (2018). Parents’ beliefs about physical activity for their children with visual impairments. Adapted Physical Activity Quarterly, 35(4), 361–380.
12.
CreswellJ. W. (2016). 30 essential skills for the qualitative researcher. SAGE.
13.
FidlerD. J.LawsonJ. E.HodappR. M. (2003). What do parents want?: An analysis of education-related comments made by parents of children with different genetic syndromes. Journal of Intellectual & Developmental Disability, 28(2), 196–204.
14.
HaegeleJ. A.SutherlandS. (2015). Perspectives of students with disabilities toward physical education: A qualitative inquiry review. Quest, 67(3), 255–273.
15.
HaegeleJ. A.XiheZ.DavisS. (2017). The meaning of physical education and sport among elite athletes with visual impairments. European Physical Education Review, 23(4), 375–391.
16.
Haibach-BeachP.PerreaultM.FosterE.LiebermanL. (2019). Gross motor skill performance in children with and without CHARGE syndrome: Research to practice. Research in Developmental Disabilities, 91, Article 103423. https://doi.org/10.1016/j.ridd.2019.05.002
17.
HaibachP. S.LiebermanL. J. (2013). Balance and self-efficacy of balance in children with CHARGE syndrome. Journal of Visual Impairment & Blindness, 107(4), 297–309.
18.
HersmanB. L.HodgeS. R. (2010). High school physical educators’ beliefs about teaching differently abled students in an urban public school district. Education and Urban Society, 42(6), 730–757.
ImelG.HartshorneT. S.SlavinL. J.KanouseS. K. (2020). Participation in and barriers to recreation in CHARGE Syndrome. Palaestra, 34, 38–43.
21.
KozubF. M.LienertC. (2003). Attitudes toward teaching children with disabilities: Review of literature and research paradigm. Adapted Physical Activity Quarterly, 20(4), 323–346.
22.
LalaniS. R.SafiullahA. M.FernbachS. D.HarutyunyanK. G.ThallerC.PetersonL. E.. . . HefnerM. (2006). Spectrum of CHD7 mutations in 110 individuals with CHARGE syndrome and genotype-phenotype correlation. The American Journal of Human Genetics, 78(2), 303–314.
23.
LeeJ.HaegeleJ. A.ChangS. H. (2017). Satisfaction of parents of children with autism spectrum disorder toward physical education teachers. Physical Educator, 74(4), 715–729.
24.
LiebermanL.HaibachP.SchedlinH. (2012). Physical education and children with CHARGE syndrome: Research to practice. Journal of Visual Impairment & Blindness, 106(2), 106–119.
25.
LytleR.LavayB.RizzoT. (2010). What is a highly qualified adapted physical education teacher?The Journal of Physical Education, Recreation & Dance, 81(2), 40–50.
26.
MerriamS. B. (1998). Qualitative research and case study applications in education. San Francisco, CA: Jossey-Bass.
27.
PerkinsK.ColumnaL.LiebermanL.BaileyJ. (2013). Parents’ perceptions of physical activity for their children with visual impairments. Journal of Visual Impairment & Blindness, 107(2), 131–142.
28.
RossS. M.BogartK. R.LoganS. W.CaseL.FineJ.ThompsonH. (2016). Physical activity participation of disabled children: A systematic review of conceptual and methodological approaches in health research. Frontiers in Public Health, 4, Article 187.
29.
ŠtěrbováD.KudláčekM. (2014). Deaf-blindness: Voices of mothers concerning leisure-time physical activity and coping with disability. Acta Gymnica, 44(4), 193–201.
30.
StraussA.CorbinJ. (1998). Basics of qualitative research techniques. SAGE.
31.
ThelinJ. W.SwansonL. A. (2006). CHARGE syndrome: Multiple congenital anomalies including disorders of all senses and speech, language, feeding, swallowing, and behavior. The ASHA Leader, 11(14), 6–42.
WilhelmsenT.SørensenM. (2017). Inclusion of children with disabilities in physical education: A systematic review of literature from 2009 to 2015. Adapted Physical Activity Quarterly, 34(3), 311–337.
