Preferences regarding Return of Genomic Results to Relatives of Research Participants,Including after Participant Death: Empirical Results from a Cancer Biobank

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See Amendola L. M. , “Patient's Choices for Return of Exome and Genome Sequencing Results to Relatives in the Event of their Death,” Journal of Law, Medicine & Ethics 43, no. 3 (2015): 476–485.

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Amendola , supra note 2; Bollinger J. M. , “Public Preferences Regarding the Return of Individual Genetic Research Results: Findings from a Qualitative Focus Group Study,” Genetics in Medicine 14, no. 4 (2012): 451–457; Meulenkamp T. M. , “Communication of Biobanks' Research Results: What Do (Potential) Participants Want?” American Journal of Medical Genetics 152 Part A, no. 10 (2010): 2482–2492; Murphy J. , “Public Expectations for Return of Results from Large-Cohort Genetic Research,” American Journal of Bioethics 8, no. 11 (2008): 36–43.

See Wolf S. M. , “Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations,” Journal of Law, Medicine & Ethics 43, no. 3 (2015): 440–463.

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Grant R. C. , “Prevalence of Germline Mutations in Cancer Predisposition Genes in Patients with Pancreatic Cancer,” Gastroenterology 148, no. 3 (2015): 556–564; McWilliams R. R. , “Prevalence of CDKN2A Mutations in Pancreatic Cancer Patients: Implications for Genetic Counseling,” European Journal of Human Genetics 19, no. 4 (2011): 472–478.

McWilliams R. R. , “Nucleotide Excision Repair Pathway Polymorphisms and Pancreatic Cancer Risk: Evidence for Role of MMS19L,” Cancer, Epidemiology, Biomarkers & Prevention 18, no. 4 (2009): 1295–1302.

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Koenig B. A. , “Returning Incidental Findings to Family Members of Deceased Research Participants: Perspectives from a Cancer Biobank,” (Program #2360M), Presented at the 64th Annual Meeting of the American Society of Human Genetics, October 20, 2014, San Diego, CA; Koenig B. A. , “Should Return of ‘Incidental Findings’ Include Family Members of Deceased Research Participants? Findings from a Cancer Biobank,” Presented at the 16th Annual Meeting of the American Society for Bioethics and Humanities, October 17, 2014, San Diego, CA.

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Bollinger J. M. , “Public Preferences Regarding the Return of Individual Genetic Research Results: Findings from a Qualitative Focus Group Study,” Genetics in Medicine 14, no. 4 (2012): 451–457; see Meulenkamp , supra note 4; Murphy , supra note 4.

Amendola , supra note 2.