Genetic Screening and Disability Insurance: What Can We Learn from the Health Insurance Experience?

Kass N. , “Insurance for the Insurers: The Use of Genetic Tests,” Hastings Center Report 22, no. 6 (1992): 6–11.

The first three sections of this paper are based extensively on a previous work by the author entitled, “Insurance for the Insurers: The Use of Genetic Tests.” See id.

Anderson O. , The Uneasy Equilibrium: Private and Public Financing of Health Services in the United States, 1875–1965 (New Haven: Yale University Press, 1968).

Murray T. , “Genetics and the Moral Mission of Health Insurance,” Hastings Center Report 22, no. 6 (1992): 12–17.

Id.

See Kass , supra note 1.

Id.

Clifford K. A. and Iuculano R. P. , “AIDS and Insurance: The Rationale for AIDS-Related Testing,” Harvard Law Review 100 (1987): 1808.

Musco T. and Wildsmith T. , Individual Health Insurance: Access and Affordability (Washington, D.C.: Health Insurance Association of America, October 2002).

Employee Benefit Research Institute, Employment-Based Health Care Benefits and Self-Funded Employment-Based Plans: An Overview (Washington, D.C.: Employee Benefit Research Institute, April 2000).

Id.

Pollitz K. Sorian R. and Thomas K. , How Accessible Is Individual Health Insurance for Consumers in Less Than Perfect Health? (Washington D.C.: Henry J. Kaiser Family Foundation, June 2001).

Id.

Id.

See Kass , supra note 1.

Id.

Id.

The Ad Hoc Committee on Genetic Testing/Insurance Issues, “Background Statement: Genetic Testing and Insurance,” American Journal of Human Genetics 56 (1995): 327–331.

See Kass , supra note 1.

Id.

The Kaiser Family Foundation and the Health Research Educational Trust, Survey of Employer-Sponsored Health Benefits, 2002 Annual Survey, available at <http://www.kaisernetwork.org/health_cast/uploaded_files/ACF4D93.pdf> (last visited March 19, 2007).

See Employment Benefit Research Institute, supra note 10; Kaiser Family Foundation, supra note 21.

See Kaiser Family Foundation, supra note 21.

See the Ad Hoc Committee on Genetic Testing/Insurance Issues, supra note 18; American Academy of Actuaries, Genetic Information and Medical Expense Insurance, June 2000.

NIH/DOE Working Group on Ethical, Legal, and Social Implications of Human Genome Research, “Genetic Information and Health Insurance,” Human Gene Therapy 4 (1993): 789–808 [hereinafter cited as NIH/DOE Working Group].

See the Ad Hoc Committee on Genetic Testing/Insurance Issues, supra note 18.

Id.

Id.

See NIH/DOE Working Group, supra note 25.

Hudson K. , “Genetic Discrimination and Health Insurance: An Urgent Need for Reform,” Science 270 (1995): 391–393.

Id.

See Kass , supra note 1.

Ostrer H. , “Insurance and Genetic Testing: Where Are We Now?” American Journal of Human Genetics 52 (1993): 565–577.

Rothenberg K. , “Genetic Information and the Workplace: Legislative Approaches and Policy Challenges,” Science 275 (1997): 1755–1757.

See NIH/DOE Working Group, supra note 25.

Id.

See Ostrer , supra note 33.

Gostin L. Hodge J. and Calvo C. , Genetics, Policy, and Law: A Report for Policymakers (Washington, D.C.: National Conference of State Legislatures, September 2001).

Id.

See Rothenberg , supra note 34.

Id.

Plaza C. , The Health Insurance Portability and Accountability Act of 1996 (Washington, D.C.: National Conference of State Legislatures, September 2001).

Andrews L. , Future Perfect: Confronting Decisions about Genetics (New York: Columbia University Press, 2001): 5–7; Roche P. A. and Annas G. J. , “Protecting Genetic Privacy,” Nature Reviews Genetics 2 (2001): 392–396; Watson M. and Greene C. , “Points to Consider in Preventing Unfair Discrimination Based on Genetic Disease Risk: A Position Statement of the American College of Medical Genetics,” Genetics in Medicine 3 (2001): 436; Geller G. , “Genetic Testing for Susceptibility to Adult-Onset Cancer: The Process and Content of Informed Consent,” JAMA 277 (1997): 1467–1474.

See the Ad Hoc Committee on Genetic Testing/Insurance Issues, supra note 18.

See Roche and Annas , supra note 43.

Green M. and Botkin J. , “‘Genetic Exceptionalism’ in Medicine: Clarifying the Differences between Genetic and Nongenetic Tests,” Annals of Internal Medicine 138 (2003): 571–575.

See Gostin Hodge and Calvo , supra note 38.

See Kass , supra note 1.

See Gostin Hodge and Calvo , supra note 38.

See Murray , supra note 4.

See Kass , supra note 1.

National Center for Health Statistics, Health Insurance Coverage in the United States, available at <http://www.cdc.gov/nchs/fastats/hinsure.htm> (last visited March 19, 2007).

Bank World , Data and Statistics for Health by Country, available at <http://www.worldbank.org/data/databytopic/health.html> (last visited March 19, 2007).

Id.

Light D. , “The Practice and Ethics of Risk-Rated Health Insurance,” JAMA 267 (1992): 2503–2508; Himmelstein D. U. Woolhandler S. , and the Writing Committee of the Working Group on Program Design, “A National Health Program for the United States,” New England Journal of Medicine 320 (1989): 102–108; Light D. , “Universal Health Care: Lessons from the British Experience,” American Journal of Public Health 93 (2003): 25–30.

See Ostrer , supra note 33.

Id.

Id.

See Ad Hoc Committee on Genetic Testing/Insurance Issues, supra note 18.

See Ostrer , supra note 33.