Privacy and Confidentiality Practices for Research with Health Information in Canada

Internal memorandum of the Policy and Consultation Branch, Health Canada, Canada's Health System (Aug. 1996) (on file with author).

Canada Health Act, R.S.C., ch. C-6 (1985) (Can.).

National Forum on Health, Canada Health Action: Building on the Legacy. The Final Report of the National Forum on Health (Ottawa: Minister of Public Works and Government Services, 1997).

Statistics Act, R.S.C., ch. S-19 (1985) (Can.).

Privacy Act, R.S.C., ch. P-21 (1985) (Can.).

Canadian Institute for Health Information, Legislation Protecting Personal Health Information in Canada and Overseas (Ottawa: Canadian Institute for Health Information, 1995).

Privacy Act, R.S.C., ch. P-21, at § 8(2) (1985) (Can.).

An Act Respecting Access to Documents Held by Public Bodies and the Protection of Personal Information, R.S.Q., ch. A-2.1 (1993) (Que.); and An Act Respecting the Protection of Personal Information in the Private Sector, R.S.Q., ch. 17 (1993) (Que).

Freedom of Information and Protection of Privacy Act, S.B.C., ch. 61 (1992) (B.C.).

Freedom of Information and Protection of Privacy Act, S.A., ch. F-18.5 (1994) (Alta.).

Freedom of Information and Protection of Privacy Act, S.S., ch. F-22.01 (1990–91) (Sask.).

Freedom of Information and Protection of Privacy Act, R.S.O., ch. F-31 (1990) (Ont.).

Freedom of Information and Protection of Privacy Act, S.N.S., ch. 5 (1993) (N.S.).

Access to Information and Protection of Privacy Act, S.N.W.T., ch. 20 (1994) (N.W.T.).

Access to Information and Protection of Privacy Act, S.Y., ch. 1 (1995) (Yukon).

Freedom of Information and Protection of Privacy Act, R.S.M., ch. 50 (1997) (Man.); and Personal Health Information Act, R.S.M., ch. 51 (1997) (Man.).

The Privacy Act, R.S.B.C., ch. 336 (1979) (B.C.).

The Privacy Act, R.S.S., ch. P-24 (1978) (Sask.).

The Privacy Act, R.S.M., ch. P-125 (1987) (Man.).

The Privacy Act, Nfld.R.S., ch. P-22 (1980) (Nfld.).

See, for example, Public Hospitals Act, R.S.O., ch. P-40, reg. 965, § 22 (1990) (Ont.).

See, for example, Health Disciplines Act, R.S.O., ch. 4 (1990) (Ont.).

National Population Health Survey, Statistics Canada, Special Tabulations (Ottawa: Statistics Canada, 1997).

Statistics Canada Policy Manual, Policies on Microdata Release, Record Linkage and Discretionary Release (Ottawa: Statistics Canada, 1997).

Statistics Canada, User Documentation for Public Use Microdata File on Individuals (CD-ROM) (Ottawa: Supply and Services Canada, 1994); and Census of Canada (1991).

See Statistics Canada Policy Manual, supra note 24.

See id.

National Health Information Council, Health Information for Canada Report of the National Task Force on Health Information (Ottawa, 1991).

Waterhouse Price , External Review of the Canadian Institute for Health Information, Executive Summary (Ottawa: Price Waterhouse, May 1997).

Canadian Institute for Health Information, Privacy and Confidentiality of Health Information at CIHI (Ottawa: Canadian Institute for Health Information, 1995).

Canadian Standards Association, Model Code for the Protection of Personal Information (Etobicoke: Canadian Standards Association, CAN/CSA-Q830-96, Mar. 1996).

Canadian Organization for the Advancement of Computers in Health (COACH), Security and Privacy Guidelines for Health Information Systems (Edmonton: COACH, 1995).

British Columbia Ministry of Health and Centre for Health Services and Policy Research, University of British Columbia, Access Policy for Research Uses of Health Data (Victoria: Apr. 1996) (on file with author).

At this time, there is no mechanism to collect the latter types of information at the national level from provincial data bases. Part of CIHI's task is to identify information needs at a national level and to develop standards for data collection so that national data bases can be established beyond what presently exists.

Freedom of Information and Protection of Privacy Act, S.B.C., ch. 61 (1992) (B.C.).

Personal communication with Charles Burchill, Manitoba Centre for Health Policy and Evaluation, Winnipeg (Apr. 1997).

Personal communication with Ivan Williams J. , Deputy Director of Research, Institute for Clinical Evaluative Sciences, Toronto (Apr. 1997).

Information Highway Advisory Committee, Connection, Community, Content, The Challenge of the Information Highway (Ottawa: Supply and Services, 1995).

National Forum on Health, supra note 3, at 28.