Sage Journals: Discover world-class research

Retricted access

Research article

First published 2012-7

Outcome Measures in Study Registries

Hans-Theo Forst, Robert Paarlberg

Therapeutic Innovation & Regulatory Science

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Research article

First published 2015-1

Characterization of Missing Data in Clinical Registry Studies

Aaron B. Mendelsohn, Nancy A. Dreyer, Pattra W. Mattox [...]

Therapeutic Innovation & Regulatory Science

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Research article

First published 2016

Participants at the Leiden Site of the REGISTRY Study: A Demographic Approach

Verena Baake, Ellen P. Hart, Reineke Bos [...]

Journal of Huntington's Disease

Open access

Research article

First published 2024

A Prospective Multi-Centered Registry-Based Observational Study for Patients With Cancer: Design and Rationale for Korean Medicine Cancer Registry (KMCARE)

Jee Young Lee, Hayun Jin, Su Bin Park [...]

Integrative Cancer Therapies

Retricted access

Research article

First published 2012-12

Unequal care for dying patients in Sweden: a comparative registry study of deaths from heart disease and cancer

Margareta Brännström, Lena Hägglund, Carl Johan Fürst [...]

European Journal of Cardiovascular Nursing

Retricted access

Research article

First published 2020-2

Positive predictive value of acute and chronic pancreatitis diagnoses in the Danish National Patient Registry: A validation study

Jakob Kirkegård, Marie R. Mortensen, Ida R. Johannsen [...]

Scandinavian Journal of Public Health

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Research article

First published 2024-12

National health registries – a ‘goldmine’ for studying non-communicable disease occurrence in Norway – the NCDNOR project

Wenche Nystad, Vidar Hjellvik, Inger K. Larsen [...]

Scandinavian Journal of Public Health

Open access

Research article

First published 2026

Evaluating the patterns of use and safety of lenalidomide treatment in myelodysplastic syndromes: a European,observational multi-registry study

Iris Kim, Aidan Makwana, Victoria Ezenma [...]

Therapeutic Advances in Drug Safety

Open access

Research article

First published 2019

The initiation,design,and establishment of the Desmoid Tumor Research Foundation Patient Registry and Natural History Study

Kelly A Mercier, Darragh M Walsh

Rare Tumors

Free access

Research article

First published 2018-12

Intraductal Papillary Mucinous Neoplasms of The Pancreas: A Nationwide Registry-Based Study

L. Aronsson, B. Andersson, R. Andersson [...]

Scandinavian Journal of Surgery

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