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Open access

Research article

First published 2023-07-25

Becoming a research participant: Decision-making needs of individuals with neuromuscular diseases

Véronique Gauthier, Marie-Eve Poitras, Mélissa Lavoie [...]

Translational Science of Rare Diseases

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Research article

First published 2017-4

Children’s Decision-Making Involvement About Research Participation: Associations With Perceived Fairness and Self-Efficacy

Victoria A. Miller, Chris Feudtner, Abbas F. Jawad

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2004-09

Assessment of a Decision Aid to Assist Genetic Testing Research Participants in the Informed Consent Process

J.R. Sorenson, C. Lakon, T. Spinney [...]

Genetic Testing and Molecular Biomarkers

Open access

Research article

First published 2023-3

A qualitative investigation of reasoning behind decisions to decline participation in a research intervention: A study-within-a-trial

Christopher P Dwyer, Anusha Moses, Fionnuala M Rogers [...]

Journal of Health Psychology

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Research article

First published 2019-7

Parents’ Perspectives on Decisions to Participate in Pediatric Clinical Research: Results From a Focus Group Study With Laypeople

Krista Tromp, Suzanne van de Vathorst

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2018-4

Personal Control Over Decisions to Participate in Research by Persons With Histories of Both Substance Use Disorders and Criminal Justice Supervision

Donna T. Chen, Tomohiro M. Ko, Ashleigh A. Allen [...]

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2017-6

Simulated Motivations: Understanding Influences on Medical Professionals Decision Making to Participate in Human Factors Research Studies

Daniel J. Hoffman, Natalie C. Benda, Rollin J. Fairbanks [...]

Proceedings of the International Symposium on Human Factors and Ergonomics in Health Care

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Research article

First published 1994-09

Participant Observation and Informed Consent: Relationships and Tactical Decision-Making in Nursing Research

Joy Merrell, Anne Williams

Nursing Ethics

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Research article

First published 2011-12

Qualitative research in evidence-based medicine: Improving decision-making and participation in randomized controlled trials of cancer treatments

Suzanne Audrey

Palliative Medicine

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Research article

First published 2021-1

‘There’s more to life than money and health’: Family caregivers’ views on the role of Power of Attorney in proxy decisions about research participation for people living with dementia

Victoria Shepherd, Richard Griffith, Kerenza Hood [...]

Dementia

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