Sage Journals: Discover world-class research

Open access

Research article

First published 2023

Emerging roles and opportunities for rare disease patient advocacy groups

Amy M. Patterson, Megan O’Boyle, Grace E. VanNoy [...]

Therapeutic Advances in Rare Disease

Retricted access

Other

First published 2001-2

Customer Relationship Management in the Pharmaceutical Industry: The Role of the Patient Advocacy Group

Francis Buttle, Jorge Boldrini

Journal of Medical Marketing: Device,Diagnostic and Pharmaceutical Marketing

Retricted access

Research article

First published 2017-3

Advocacy is essential to supporting women with pre-eclampsia

Eleni Tsigas

Obstetric Medicine

Retricted access

Other

First published 2011-06

Patient Advocacy Groups Concealing Drug Company Funding,University Study Says

Biotechnology Law Report

Open access

Review article

First published 2025

Enhancing and leveraging principal investigator and patient advocacy group collaboration in rare disease clinical research-meeting report from the rare Diseases Clinical Research Network

Kristen Wheeden, Sheridan Meyers, Kristin Anthony [...]

Therapeutic Advances in Rare Disease

Open access

Review article

First published 2024

STXBP1: fast-forward to a brighter future – a patient organization perspective

James R. Goss, Benjamin Prosser, Ingo Helbig [...]

Therapeutic Advances in Rare Disease

Retricted access

Other

First published 2010-5

Transparency as a Means to Increase Clinical Trial Enrollment

Barbara J. Godlew, Patricia Furlong

Therapeutic Innovation & Regulatory Science

Open access

Research article

First published 2025-8

Advocating for Professional Advocates in Nursing and Midwifery

Hilary Engward, Sally Goldspink, Nieky van Veggel [...]

Policy,Politics,& Nursing Practice

Retricted access

Research article

First published 2022-6

Impact of Education on Student Nurses' Advocacy and Ethical Sensitivity

Demirören Nesime, Akın Belgin

Nursing Ethics

Open access

Review article

First published 2024

Establishing resources and increasing awareness to advance research on Dentatorubral-pallidoluysian atrophy toward a treatment: a patient organization perspective

Silvia Prades, Andrea Compton, Jeffrey B. Carroll

Therapeutic Advances in Rare Disease

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