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Open access

Research article

First published 2021

Burden of cancer trial participation: A qualitative sub-study of the INTERIM feasibility RCT

Chidiebere Nwolise, Pippa Corrie, Ray Fitzpatrick [...]

Chronic Illness

Retricted access

Research article

First published 2026-1

Experiences of participant burden in an Alzheimer's disease research center longitudinal cohort

Theresa F Gierzynski, Jonathan M Reader, Bernardo Flores [...]

Journal of Alzheimer’s Disease

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Research article

First published 2019

Assessing Patient Participation Burden Based on Protocol Design Characteristics

Kenneth Getz, Venkat Sethuraman, Jessica Rine [...]

Therapeutic Innovation & Regulatory Science

Open access

Research article

First published 2025-2

Administrative Burden in the Cafeteria: Evidence from School Meal Participation in Shared Buildings

Jeehee Han, Michah W. Rothbart

The American Review of Public Administration

Retricted access

Research article

First published 2025-8

Does Administrative Burden Affect Welfare Recipients’ Institutional Trust and Political Participation? Evidence from a Recall Experiment

Kim Sass Mikkelsen, Jonas Krogh Madsen, Martin Bækgaard

The American Review of Public Administration

Retricted access

Other

First published 2009-9

Benefits and Burdens of Participation in a Longitudinal Clinical Trial

Jaime Lazovski, Marcelo Losso, Benjamin Krohmal [...]

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2023-2

Caregiver Perspectives on the Benefits,Burdens,and Moral Distress of Participation in Cancer Clinical Trials

Cynthia P. Paidipati, Anessa M. Foxwell, Kim Mooney-Doyle [...]

Journal of Family Nursing

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Research article

First published 2018-7

Development and Preliminary Testing of the Perceived Benefit and Burden Scales for Cancer Clinical Trial Participation

Connie M. Ulrich, Qiuping (Pearl) Zhou, Sarah J. Ratcliffe [...]

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2005-12

Family Burden and Relatives' Participation in Psychiatric Care: Are the Patient's Diagnosis and the Relation to the Patient of Importance?

Margareta Östman, Tuula Wallsten, Lars Kjellin

International Journal of Social Psychiatry

Retricted access

Research article

First published 2019-09

Before Hospice: Symptom Burden,Dementia,and Social Participation in the Last Year of Life

Halima Amjad, Scott H. Snyder, Jennifer L. Wolff [...]

Journal of Palliative Medicine

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