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Research article

First published 2015-4

The Development of a Preference-Setting Model for the Return of Individual Genomic Research Results

Phoebe L. Bacon, Erin D. Harris, Sonja I. Ziniel [...]

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2015-10

Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research

Ingrid A. Holm, Brittany R. Iles, Sonja I. Ziniel [...]

Journal of Empirical Research on Human Research Ethics

Open access

Research article

First published 2021-12

Participants’ Preferences and Reasons for Wanting Feedback of Individual Genetic Research Results From an HIV-TB Genomic Study: A Case Study From Botswana

Dimpho Ralefala, Mary Kasule, Olivia P. Matshabane [...]

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2023-10

Research Participants’ Preferences for Individual Results of Pharmacogenomics Research: A Case of a Ugandan HIV Research Institute

Sylvia Nabukenya, Catriona Waitt, Ronald Senyonga [...]

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2016-06

Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?

Isabelle Budin-Ljøsne, Deborah Mascalzoni, Sirpa Soini [...]

Biopreservation and Biobanking

Free access

Research article

First published 2012-3

A review of ethical frameworks for the disclosure of individual research results in population-based genetic and genomic research

Isabelle Budin-Ljøsne

Research Ethics

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Research article

First published 2023-7

Return of Individual Research Results: Participant Perspectives in a Longitudinal Community-Based Sample

Jyoti Angal, Barbara Brockevelt, S. Jean Caraway [...]

Journal of Empirical Research on Human Research Ethics

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Editorial

First published 2022-11-22

Disclosing Individual Results in Dementia Research: A Proposed Study Participant’s Bill of Rights

Sarah Walter, Angela Taylor, Jamie Tyrone [...]

Journal of Alzheimer’s Disease

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Research article

First published 2025-11

Recommended approaches to sharing individual research results in Alzheimer's disease research: A multidisciplinary expert Delphi consensus

Valerie Rico, Megan Zelinsky, Paul J Ford [...]

Journal of Alzheimer’s Disease

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Research article

First published 2011-12

The Meaning of Genetic Research Results: Reflections from Individuals with and without a Known Genetic Disorder

R. Jean Cadigan, Marsha Michie, Gail Henderson [...]

Journal of Empirical Research on Human Research Ethics

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