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Retricted access

Research article

First published 2011-12

Epilepsy Patient-Participants and Genetic Research Results as “Answers”

Emily E. Namey, Laura M. Beskow

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2011-9

What Research Participants Want to Know About Genetic Research Results: The Impact of “Genetic Exceptionalism”

Miguel Ruiz-Canela, J. Ignacio Valle-Mansilla, Daniel P. Sulmasy

Journal of Empirical Research on Human Research Ethics

Retricted access

Research article

First published 2011-12

The Meaning of Genetic Research Results: Reflections from Individuals with and without a Known Genetic Disorder

R. Jean Cadigan, Marsha Michie, Gail Henderson [...]

Journal of Empirical Research on Human Research Ethics

Open access

Research article

First published 2025

Participant preferences for the return of non-genetic research results: An interview study of participants from a rheumatoid arthritis trial

Jane S. Kang, Andria Reyes, Christopher Depender [...]

Research Ethics

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Research article

First published 2010-9

Returning Individual Research Results: Development of a Cancer Genetics Education and Risk Communication Protocol

J. Scott Roberts, David I. Shalowitz, Kurt D. Christensen [...]

Journal of Empirical Research on Human Research Ethics

Open access

Research article

First published 2021-12

Participants’ Preferences and Reasons for Wanting Feedback of Individual Genetic Research Results From an HIV-TB Genomic Study: A Case Study From Botswana

Dimpho Ralefala, Mary Kasule, Olivia P. Matshabane [...]

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2018-7

Attitudes Toward Return of Genetic Research Results to Relatives,Including After Death: Comparison of Cancer Probands,Blood Relatives,and Spouse/Partners

Carmen Radecki Breitkopf, Susan M. Wolf, Kari G. Chaffee [...]

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2022-2

Stakeholder Perspectives on Returning Nonactionable Apolipoprotein L1 (APOL1) Genetic Results to African American Research Participants

Kathleen M. West, Kerri L. Cavanaugh, Erika Blacksher [...]

Journal of Empirical Research on Human Research Ethics

Retricted access

Research article

First published 2010-12

Researcher Practices on Returning Genetic Research Results

Christopher Heaney, Genevieve Tindall, Joe Lucas [...]

Genetic Testing and Molecular Biomarkers

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Research article

First published 2021-01-19

Communicating 5-Year Risk of Alzheimer’s Disease Dementia: Development and Evaluation of Materials that Incorporate Multiple Genetic and Biomarker Research Results

Jessica Mozersky, Sarah Hartz, Erin Linnenbringer [...]

Journal of Alzheimer’s Disease

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