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Retricted access

Research article

First published 2013-10

Participants' Recall and Understanding of Genomic Research and Large-Scale Data Sharing

Jill Oliver Robinson, Melody J. Slashinski, Tao Wang [...]

Journal of Empirical Research on Human Research Ethics

Retricted access

Research article

First published 2024-6

“I’m telling you my story,not publishing a blog”: Considerations and suggestions on data sharing in qualitative health psychology research on sensitive topics

Gabriela Gore-Gorszewska

Journal of Health Psychology

Open access

Research article

First published 2022-10

Informed consent in a tuberculosis genetic study in Cameroon: information overload,situational vulnerability and diagnostic misconception

Ali Ibrahim Mohammed-Ali, Eyoab Iyasu Gebremeskel, Emmanuel Yenshu [...]

Research Ethics

Open access

Research article

First published 2015-7

Addressing Global Data Sharing Challenges

George C. Alter, Mary Vardigan

Journal of Empirical Research on Human Research Ethics

Open access

Review article

First published 2025

A scientometric review of health data sharing for secondary use: Insights,frontiers and the path ahead

Michelle A Krahe, Rebekah Eden, Jason D Pole [...]

Health Information Management Journal

Retricted access

Research article

First published 2012-7

Perspectives on Human Microbiome Research Ethics

Amy L. McGuire, Laura S. Achenbaum, Simon N. Whitney [...]

Journal of Empirical Research on Human Research Ethics

Retricted access

Research article

First published 2016-7

Did I Tell You That? Ethical Issues Related to Using Computational Methods to Discover Non-Disclosed Patient Characteristics

Kenrick D. Cato, Walter Bockting, Elaine Larson

Journal of Empirical Research on Human Research Ethics

Retricted access

Research article

First published 2010-9

Glad You Asked: Participants' Opinions of Re-Consent for DbGap Data Submission

Evette J. Ludman, Stephanie M. Fullerton, Leslie Spangler [...]

Journal of Empirical Research on Human Research Ethics

Retricted access

Research article

First published 2019-2

Experts’ Perspectives on Key Ethical Issues Associated With HIV Phylogenetics as Applied in HIV Transmission Dynamics Research

Farirai Mutenherwa, Douglas R. Wassenaar, Tulio de Oliveira

Journal of Empirical Research on Human Research Ethics

Retricted access

Editorial

First published 2023-9

Personal data in biomedical research

Vijaya Prasanna Parimi, Arun Kumar Kedia, Vinod Ravindran

Journal of the Royal College of Physicians of Edinburgh

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