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Open access

Research article

First published 2023-6

Well-Being of Families with a Child with Profound Intellectual and Multiple Disabilities

Siméon T. A. Lahaije, Jorien Luijkx, Aly Waninge [...]

Research and Practice for Persons with Severe Disabilities

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Research article

First published 2017-3

Parents’ experiences of collaborating with professionals in the support of their child with profound intellectual and multiple disabilities

Suzanne LG Jansen, Annette AJ van der Putten, Carla Vlaskamp

Journal of Intellectual Disabilities

Open access

Research article

First published 2021

Exploring the Experiences of Dutch Parents Caring for Children with Profound Intellectual and Multiple Disabilities: A Thematic Analysis of Their Blogs

Liesbeth Geuze, Anne Goossensen

Global Qualitative Nursing Research

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Research article

First published 2022-3

The importance of supportive relationships with general practitioners,hospitals and pharmacists for mothers who ‘give medicines’ to children with severe and profound intellectual disabilities

Carmel Doyle

Journal of Intellectual Disabilities

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Research article

First published 2023-2

Parents’ views on facilitating and inhibiting factors in the development of attachment relationships with their children with severe disabilities

Sien Vandesande, Dorien Steegmans, Bea Maes

Journal of Social and Personal Relationships

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Research article

First published 2008-8

Promoting Step Responses of Children with Multiple Disabilities through a Walker Device and Microswitches with Contingent Stimuli

G. E. Lancioni, C. De Pace, N. N. Singh [...]

Perceptual and Motor Skills

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Research article

First published 2022-2

Fathers’ Involvement in Rearing Children With Profound Intellectual and Multiple Disabilities

Naho Sato, Akiko Araki

Journal of Family Nursing

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Research article

First published 2025-11

Mothers’ Experiences of Providing Complex Home-Based Care for Children with Profound Intellectual and Multiple Disabilities: A Phenomenological Study

Masami Tanaka, Yuta Koto

Creative Nursing

Open access

Review article

First published 2024

Patient-advocate-led global coalition adapting fit-for-purpose outcomes measures to assure meaningful inclusion of DEEs in clinical trials

JayEtta Hecker, Gabrielle Conecker, Chere Chapman [...]

Therapeutic Advances in Rare Disease

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