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Retricted access

Research article

First published 2010-1

Technical and Policy Approaches to Balancing Patient Privacy and Data Sharing in Clinical and Translational Research

Bradley Malin, David Karp, Richard H. Scheuermann

Journal of Investigative Medicine

Open access

Research article

First published 2025

Navigating Privacy in Health Data Sharing: A Patient-Centric Approach to Health Information Exchange

Joanna L. Seeley, Donna G. Curtis Maillet, Sarah Balcom [...]

Healthcare Management Forum

Retricted access

Research article

First published 2016-10

Patient Perspectives on Gender Identity Data Collection in Electronic Health Records: An Analysis of Disclosure,Privacy,and Access to Care

Hale M. Thompson

Transgender Health

Retricted access

Research article

First published 2010-12

Patient Data: Property,Privacy & the Public Interest

Marc A. Rodwin

American Journal of Law & Medicine

Open access

Article commentary

First published 2025-1

Protecting Patient Privacy: A Suggested Framework for Deploying Extended Reality Technologies

Rick Beberman, Jesse Courtier, Darren Straker

Journal of Medical Extended Reality

Free access

Research article

First published 2013-6

Aggregate health data in the United States: Steps toward a public good

Joshua Rolnick

Health Informatics Journal

Retricted access

Research article

First published 2018-6

Big Data and the Opioid Crisis: Balancing Patient Privacy with Public Health

John Matthew Butler, William C. Becker, Keith Humphreys

The Journal of Law,Medicine & Ethics

Retricted access

Research article

First published 2021-1

The Age of Patient Big Data: Projects beef up as privacy concerns are allayed

Malorye Allison Branca

Inside Precision Medicine

Open access

Research article

First published 2023-10

Health Research with Data in a Time of Privacy: Which Information do Patients Want?

Miriam Beusink, Folkert Koetsveld, Sonja van Scheijen [...]

Journal of Empirical Research on Human Research Ethics

Open access

Research article

First published 2024-7

Putting patients at the center of health information exchange design: An exploration of patient preferences for data sharing

Abdulrahman M Jabour

Health Informatics Journal

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