Sexuality is a holistic concept that involves more than the sexual act. Despite being a quality of life domain that promotes meaningful existence, it is an aspect of life that is often avoided by health care practitioners.
Method:
In this Heideggerian phenomenological study, conversational interviews were conducted with 13 people with motor neurone disease, and 10 of their partners, in order to understand their experiences of sexuality and intimacy.
Findings:
The findings provide evidence for the value of touch in people's lives and shed light upon the impact that assistive equipment has on intimacy, sexual expression and maintaining emotional and physical connection between couples. None of the people interviewed had previously been given the opportunity to discuss these issues with their occupational therapist.
Conclusion:
There is a place in occupational therapy practice for discussing the value of emotional and physical connection for individuals in the context of any equipment provided.
American Occupational Therapy Association (2002) Occupational Therapy Policy Framework: Domain and process. American Journal of Occupational Therapy, 56(6), 609–39.
2.
BeghiEMillulAMicheliAVitelliELogroscinoG, for the SLALOM Group (2007) Incidence of ALS in Lombardy, Italy. Neurology, 68(2), 141–45.
3.
BennerP, ed (1994) Interpretive phenomenology: Embodiment, caring and ethics in health and illness. London: Sage.
4.
BowdenGBlissJ (2008) Does using a hospital bed have an impact on the meaning of home?British Journal of Community Nursing, 13(12), 556–62.
5.
BowdenGBlissJ (2009) Does a hospital bed impact on sexuality expression in palliative care?British Journal of Community Nursing, 14(3), 122–26.
6.
BowlingA (2005) Measuring health: A review of quality of life measurement scales. Maidenhead: Open University Press.
7.
ChapparoCRankaJ (2000) Clinical reasoning in occupational therapy. In: HiggsJJonesM, eds. Clinical reasoning in the health professions. 2nd ed. Oxford: Butterworth Heinemann, 265–77.
8.
College of Occupational Therapists (2009) Curriculum guidance for pre-registration education. London: COT.
9.
ConineTEvansJ (1982) Sexual reactivation of chronically ill and disabled adults. Journal of Allied Health, 11(4), 261–70.
10.
CouldrickL (1998a) Sexual issues within occupational therapy, part 1: Attitudes and practice. British Journal of Occupational Therapy, 61(12), 538–44.
11.
CouldrickL (1998b) Sexual issues: An area of concern for occupational therapists?British Journal of Occupational Therapy, 61(11), 493–96.
12.
CouldrickL (2005) Sexual expression and occupational therapy. British Journal of Occupational Therapy, 68(7), 315–18.
13.
DavisSTaylorB (2006) From PLISSIT to Ex-PLISSIT. In: DavisS, ed. Rehabilitation: The use of theories and models in practice. Edinburgh: Churchill Livingstone, 101–29.
14.
Department of Health (2001) The expert patient: A new approach to chronic disease management for the 21st century. London: DH.
15.
DiekelmannNIronsideP (2006) Hermeneutics, In: FitzpatrickJ, ed. Encyclopaedia of nursing research. 2nd ed. New York: Springer Publishing, 260–62.
16.
DrauckerCB (1999) The critique of Heideggerian hermeneutical nursing research. Journal of Advanced Nursing, 30(2), 360–73.
17.
FoleyG (2004) Quality of life for people with motor neurone disease: A consideration for occupational therapists. British Journal of Occupational Therapy, 67(12), 551–53.
18.
HeideggerM (1977) The question concerning technology. In: The question concerning technology and other essays. Translated by LovittW. New York: Harper Collins, 3–35 (Original work published in 1954).
19.
HeideggerM (2007) Being and time. 29th ed. Translated by MaquarrieJRobinsonE. Oxford: Blackwell Publishing (Original work published in 1927).
20.
International Association for the Study of Sexuality and Culture in Society (n.d.) Diversity policy. Available at: http://www.iasscs.org/ Accessed 13.05.11.
21.
KahnD (2000) How to conduct research. In: CohenZKahnDSteevesR, eds. Hermeneutic phenomenological research: A practical guide for nurse researchers. London: Sage, 57–70.
22.
Kaub-WittemerDvon SteinbüchelNWasnerMLaier-GroeneveldGBorasioG (2003) Quality of life and psychosocial issues in ventilated patients with amyotrophic lateral sclerosis and their caregivers. Journal of Pain and Symptom Management, 26(4), 890–96.
23.
KielhofnerG (2008) Model of Human Occupation: Theory and application. 4th ed. Baltimore, MD: Lippincott Williams and Wilkins.
MacKeyS (2005) Phenomenological nursing research: Methodological insights derived from Heidegger's interpretive phenomenology. International Journal of Nursing Studies, 42(2), 179–86.
26.
MarsdenRBotellR (2010) Discussing sexuality with patients in a motor neurone disease clinic. Nursing Standard, 25(15–17), 39–45.
27.
McAlonanS (1996) Improving sexual rehabilitation services: The patient's perspective. American Journal of Occupational Therapy, 50(10), 826–34.
28.
NeistadtM (1986) Sexuality counselling for adults with disabilities: A module for an occupational therapy curriculum. American Journal of Occupational Therapy, 40(8), 542–45.
29.
NorthcottRChardG (2000) Sexual aspects of rehabilitation: The client's perspective. British Journal of Occupational Therapy, 63(9), 412–18.
30.
NovakPMitchellM (1998) Professional involvement in sexuality counselling for patients with spinal cord injuries. American Journal of Occupational Therapy, 42(2), 105–12.
31.
PainHMcLellanLGoreS (2003) Choosing assistive devices: A guide for users and professionals. London: Jessica Kingsley.
32.
PollardNSakellariouD (2007) Sex and occupational therapy: Contradictions or contraindications?British Journal of Occupational Therapy, 70(8), 362–65.
33.
SaintyMLambkinCMaileL (2009) ‘I feel so much safer’: Unravelling community equipment outcomes. British Journal of Occupational Therapy, 72(11), 499–506.
34.
SakellariouDAlgadoS (2006) Sexuality and occupational therapy: Exploring the link. British Journal of Occupational Therapy, 69(8), 350–56.
35.
SloanR (2002) Living a life-sustained-by-medical technology: Dialysis is killing me. In: DiekelmannN, ed. First, do no harm: Power, oppression and violence in healthcare. Madison, WI: University of Wisconsin Press, 118–63.
SummervillePMcKennaK (1998) Sexuality education and counselling for individuals with a spinal cord injury: Implications for occupational therapy. British Journal of Occupational Therapy, 61(6), 275–79.
38.
SumsionT (2006) Client-centred practice in occupational therapy. 2nd ed. Edinburgh: Elsevier.
39.
SweeneyAHarringtonAButtonD (2007) Suprapubic catheters — a shared understanding, from the other side looking in. Journal of Wound, Ostomy and Continence Nursing, 34(4), 418–24.
40.
TalbotKTurnerMMarsdenRBotellR (2010) Motor neuron disease: A practical manual. Oxford: Oxford Medical Publications.
41.
TaylorBDavisS (2006) Using the extended PLISSIT model to address sexuality in primary care. Nursing Standard, 21(11), 35–41.
42.
TepperM (1999) Letting go of restricted notions of manhood: Male sexuality, disability and chronic illness. Sexuality and Disability, 17(1), 37–52.
43.
WrathallM (2005) How to read Heidegger. London: Granta Books.
