To provide an overview of the psychological assessment; results from studies examining psychological issues among individuals with craniofacial anomalies (CFA) and other chronic conditions; resilience; and therapeutic strategies to enhance psychological well-being.
Conclusions:
The literature on chronic conditions and findings from studies with people having CFA and their families demonstrate a range of effective adaptation patterns and strategies to enhance issues having an impact on quality of life.
BanduraA.Self-efficacy mechanism in human agency.Am Psychol.1982; 37: 122–145.
2.
BensonB.A.GrossA.M.MesserS.C.KellumG.PassmoreL.A.Social support networks among families of children with craniofacial anomalies.Health Psychol.1991; 10: 252–258.
3.
BerscheidE.The question of the importance of physical attractiveness. In: HermanC.ZannaM.EigginsE., eds. Physical Appearance, Stigma and Social Behavior.Hillsdale, NJ: Erlbaum;1986: 291–298.
4.
BlackM.M.KrishnakumarA.Children in low-income, urban settings: interventions to promote mental health and well being.Am Psychol.1998; 53: 635–646.
5.
BradburyE.T.HewisonJ.Early parental adjustment to visible congenial disfigurement.Child Care Health Dev.1994; 20: 251–266.
6.
BroderH.L.RichmanL.C.MathesonP.B.Learning disability, school achievement, and grade retention among children with cleft: a two-center study.Cleft Palate J.1998; 35: 127–131.
7.
BroderH.L.StraussR.P.Self-concept of early primary school age children with visible or invisible defects.Cleft Palate J.1989; 26: 114–117.
8.
BroderH.L.StraussR.P.SmithF.Development of a teacher behavior rating scale for children with and without craniofacial disorder.Cleft Palate Craniofac J. In press.
9.
BroderH.StraussR.P.Psychosocial problems and referrals among oral-facial team patients.J Rehabil.1991; 57: 31–37.
10.
ClarkL.A.WatsonD.Mood and the mundane: relations between daily life events and self-reported mood.J Pers.1988; 99: 148–155.
11.
ClawsonJ.A.A child with chronic illness and the process of family adaptation.J Pediatr Nurs.1996; 11: 52–61.
12.
CostaP.T.McRaeR.R.Personality assessment in psychosomatic medicine.Advances in Psychosom Med.1987; 17: 71–82.
13.
CowenE.L.WymanP.A.WorkW.C.ParkerG.R.The Rochester child resilience project: overview and summary of first year findings.Dev Psychopathol.1990; 2: 193–212.
14.
CoyneI.T.Chronic illness: the importance of support for families caring for a child with cystic fibrosis.J Clin Nurs.1997; 6: 121–129.
15.
DavisC.C.BrownR.T.BakermanR.CampbellR.Psychological adaptation and adjustment of mothers of children with congenital heart disease: stress, coping, and family functioning.J Pediatr Psychol.1998; 23: 219–228.
16.
DerogatisL.R.FlemingM.P.SudlerN.C.DellaPietraL.Psychological assessment. In: NicassioP.M.SmithT.W., eds. Managing Chronic Illness: A Biopsychosocial Perspective.Washington, DC: American Psychological Association;1995: 59–115.
17.
DroryY.FlorianV.Long-term psychosocial adjustment to coronary artery disease.Arch Phys Med Rehabil.1991; 72: 326–331.
18.
DrotarD.BaskiewiszA.IrvinN.KennellJ.KlausM.The adaptation of parents to the birth of an infant with a congenital malformation: a hypothetical model.Pediatrics.1975; 56: 710–717.
19.
DurlakJ.A.WellsA.M.Primary prevention mental health programs for children and adolescents: a meta-analytic review.Am J Community Psychol.1997; 25: 115–152.
20.
EagleyA.H.AshmoreR.D.MakhijaniJ.LongoL.C.What is beautiful is good, but. a meta-analytic review of research on the physical attractiveness stereotype.Psychol Bull.1991; 100: 109–128.
21.
EisenbergN.FabesR.A.ShepardS.A.MurphyB.C.GuthrieI.K.JonesS.FriedmanJ.PoulinR.MaszkP.Contemporaneous and longitudinal prediction of children's social functioning from regulation and emotionality.Child Dev.1997; 68: 642–664.
22.
EliasonM.J.RichmanL.C.Intellectual patterns in children with cleft lip and/or palate. Presented at the Annual Meeting of the American Cleft Palate Association; May 12-16, 1985; Miami, FL.
23.
EllertonM.L.StewartM.J.RitchieJ.A.HirthA.M.Social support in children with a chronic condition.Can J Nurs Res.1996; 28: 15–36.
24.
EndrigaM.C.Kapp-SimonK.A.Psychological issues in craniofacial care: state of the art.Cleft Palate J.1999; 36: 1–11.
25.
EndrigaM.C.SpeltzM.L.Face-to-face interaction between infants with orofacial clefts and their mothers.J Pediatr Psychol.1997; 22: 439–453.
26.
FerransC.E.Quality of life: conceptual issues.Semin Oncol Nurs.1990; 6: 248–254.
27.
FrankR.B.ThayerJ.F.HagglundK.J.ViethA.Z.SchoppL.H.BeckN.C.KashaniJ.F.GoldsteinD.E.CassidyJ.T.ClayD.L.ChaneyJ.M.HewettJ.E.JohnsonJ.C.Trajectories of adaptation in pediatric chronic illness: the importance of the individual.J Consult Clin Psychol.1998; 66: 521–532.
28.
GarmezyN.Resiliency and vulnerability to adverse developmental outcomes associated with poverty.Am Behav Scient.1991; 34: 416–430.
29.
GlassC.R.SheaC.A.Cognitive therapy for shyness and social anxiety. In: JonesW.H.CheekJ.M.BriggsS.R., eds. Shyness: Perspectives on Research and Treatment.New York: Plenum;1986: 315–327.
30.
GoffmanE.Stigma: Notes on the Management of Spoiled Identity.Englewood Cliffs, NJ: Prentice-Hall;1963.
31.
HatchJ.P.RughJ.D.ClarkG.M.KeelingS.D.TinerB.D.BaysR.A.Health-related quality of life following orthognathic surgery.Int J Adult Orthodon Orthognath Surg.1998; 13: 67–77.
32.
HellerA.RafmanS.ZvagulisI.PlessI.B.Birth defects and psychosocial adjustment.Am J Dis Child.1985; 139: 257–263.
33.
HetheringtonE.M.BridgesM.InsabellaG.M.What matters? What does not?Am Psychol.1998; 53: 167–184.
34.
JohnsonS.B.The family and the child with chronic illness. In: TurkD.C.KernsR.D., eds. Health, Illness, and Families: A Life-Span Perspective.New York: Wiley Interscience, 1985: 220–254.
35.
KanferF.H.GoldsteinA.P.Helping People Change: A Textbook of Methods.Elmsford, NY: Pergamon Press; 1993.
36.
KappK.Self concept of the cleft lip and or palate child.Cleft Palate J.1979; 16: 171–176.
37.
Kapp-SimonK.Parameters of Practice for Psychosocial Care. Standards for Care of the American Cleft Palate Association.Pittsburgh: American Cleft Palate Association;1992.
38.
Kapp-SimonK.SimonP.J.KristovichS.Self-perception, social skills, adjustment and inhibition in young adolescents with craniofacial anomalies.Cleft Palate Craniofac J.1992; 29: 352–356.
39.
KernsR.D.Family assessment and intervention. In: NicassioP.M.SmithT.W., eds. Managing Chronic Illness: A Biopsychosocial Perspective.Washington, DC: American Psychological Association;1995: 207–244.
40.
KnaflK.BreitmayerB.GalloA.ZoellerL.Family response to childhood chronic illness: description of management styles.J Pediatr Nurs.1996; 11: 315–326.
41.
KobasaS.C.The hardy personality: toward a social psychology of stress and illness. In: SandersG.SulsJ., eds. Social Psychology and Health and Illness.Hillsdale, NJ: Erlbaum;1982: 3–32.
42.
KobasaS.C.MaddiS.R.PucettiM.S.ZolaM.A.Effectiveness of hardiness, exercise, and social support as resources against illness.J Psychosom Res.1985; 29: 525–533.
43.
KoomenH.M.HoeksmaJ.B.Early hospitalization and disturbances of infant behavior and the mother-infant relationship.J Child Psychol Psychiatry.1993; 34: 917–934.
44.
KrueckebergS.M.Kapp-SimonK.A.RibordyS.C.Social skills of preschoolers with and without craniofacial anomalies.Cleft Palate J.1993; 30: 475–481.
45.
LandgrafJ.M.AbetzL.WareJ.E.Child health questionnaire: a user's manual.Boston: Health Institute;1996.
46.
LockerD.LiddellA.DempsterL.ShapiroL.Age of onset of dental anxiety.J Dent Res.1999; 78: 780–796.
47.
LutharS.S.Vulnerability and resilience: a study of high-risk adolescents.Child Dev.1991; 62: 600–616.
48.
LutharS.S.ZiglerE.Vulnerability and competence: a review of research of resilience in childhood.Am J Orthopsychiatry.1991; 61: 6–22.
49.
MacGregorF.C.Facial disfigurement: problems and management of social interactions and implications for mental health.Aesthetic Plast Surg.1990; 14: 249–257.
50.
MastenA.S.CoatsworthJ.D.The development of competence in favorable and unfavorable environments.Am Psychol.1998; 53: 205–220.
51.
McCraeR.R.The five-factor model and its assessment in clinical settings.J Pers Assess.1991; 57: 399–414.
52.
McCubbinH.McCubbinM.PattersonJ.CaubleA.WilsonL.WarwickD.CHIP—coping health inventory for parents: an assessment of parenlal coping patterns in the care of the chronically ill child.J Marital Fam Ther.1983; 45: 359–370.
53.
McDowellI.NewellC.Measuring health: a guide to rating scales and questionnaires.New York: Oxford University Press;1996.
54.
ParkerJ.C.Stress management. In: NicassioP.M.SmithT.W., eds. Managing Chronic Illness: A Biopsychosocial Perspective.Washington, DC: American Psychological Association;1995: 285–312.
55.
PartridgeJ.Changing Faces: The Challenge of Facial Disfigurement.3rd ed.London: Changing Faces;1997.
56.
PedersenP.B.Culture-centered ethical guidelines for counselors. In: PonterottoJ.G.CasasJ.M.SuzukiL.A.AlexanderC.M.Handbook of Multicultural Counseling.Thousand Oaks, CA: Sage Publications; 1995.
57.
PhillipsC.BennettM.E.BroderH.L.Dentofacial disharmony: psychological status of patients seeking treatment consultation.Angle Orthod.1997; 68: 547–556.
58.
PolitisC.The psychosocial impact of chronic illness.Ann N Y Acad Sci.1998; 850: 349–354.
59.
PopeA.W.WardJ.Factors associated with peer social competence in preadolescents with craniofacial anomalies.J Pediatr1997a; 22: 455–469.
60.
PopeA.W.WardJ.Self-perceived facial appearance and psychosocial adjustment in preadolescents with craniofacial anomalies.Cleft Palate Craniofac J.1997b; 34: 396–401.
61.
PowerT.G.ShanksJ.A.Parents as socializers: maternal and paternal views.Youth Adolesc.1989; 18: 203–220.
62.
RameyC.T.RameyS.L.Early intervention and early experience.Am Psychol.1998; 53: 109–120.
63.
RegierD.A.RobertM.A.HirschfeldM.GoodwinF.K.BurkeJ.D.LazarJ.B.JuddL.L.The NIMH depression awareness, recognition, and treatment program: structure, aims, and scientific basis.Am J Psychiatry.1988; 145: 1351–1357.
64.
RevensonT.A.MajerovitzS.D.The effects of chronic illness on the spouse: social resources as stress buffers.Arthritis Care Res.1991; 4: 63–72.
65.
RichmanL.C.The effects of facial disfigurement on teachers’ perception of ability in cleft palate children.Cleft Palate J.1978; 15: 155–160.
66.
RobinsonE.RumseyN.PartridgeJ.An evaluation of the impact of social interaction skills training for facially disfigured people.Br J Plast Surg.1996; 49: 281–289.
67.
ShifrenK.Individual differences in the perception of optimism and disease severity: a study among individuals with Parkinson's disease.J Behav Med.1996; 9: 241–271.
68.
SpeltzM.L.ArmsdenG.C.ClarrenS.S.Effects of craniofacial birth defects on maternal functioning postinfancy.J Pediatr Psychol.1990; 15: 177–196.
69.
SpeltzM.L.RichmanL.Progress and limitations in the psychological study of craniofacial anomalies.J Pediatr Psychol.1997; 22: 433–438.
70.
SpriestersbachD.C.Psychological Aspects of the Cleft Palate Problems. Vols. 1 and 2. Iowa City, IA: University of Iowa Press;1973.
71.
SteeleR.B.ForehandR.ArmisteadL.The role of family processes and coping strategies in the relationship between parental chronic illness and childhood internalizing problems.J Abnorm Child Psychol.1997; 25: 83–94.
72.
SteinbergL.LambornS.D.DornbuschS.M.DarlingN.Impact of parenting practices on adolescent achievement: authoritative parenting, school involvement, and encouragement to succeed.Child Dev.1992; 63: 1266–1281.
73.
SulsJ.RittenhouseJ.D.Personality and physical health: an introduction.J Pers.1987; 55: 155–167.
74.
TurkD.S.SaloveyP.Cognitive-behavioral treatment of illness behavior. In: NicassioP.M.SmithT.W., eds. Managing chronic illness: a biopsychosocial perspective.Washington, DC: American Psychological Association;1995: 245–284.
75.
WasikB.H.RameyC.T.BryantD.M.SparlingJ.J.A longitudinal study of two early intervention strategies: Project CARE.Child Dev.1990; 61: 1682–1696.
76.
WellsK.B.GoldingJ.M.BurnhamM.A.Psychiatric disorders in a sample of the general population with and without chronic medical conditions.Am J Psychiatry.1988; 145: 976–981.
77.
WernerE.E.High-risk children in young adulthood: a longitudinal study from birth to 32 years.Am J Orthopsychiatry.1989; 59: 72–81.
78.
ZautraA.J.Investigations of the ongoing stressful situations among those with chronic illness.Am J Community Psychol.1996; 24: 697–717.
