Consistent with the mission of the World Society for Pediatric and Congenital Heart Surgery to promote health care for children with congenital heart disease all around the world, a Mexican Association of Specialists in Congenital Heart Disease (abbreviated in Spanish as AMECC) was created in Mexico in 2008. Our efforts were coordinated with those of the National Health Secretary with the objective being implementation of a national plan for regionalization of care for patients with congenital heart disease. To improve our knowledge related to technologic and human resources for management of congenital heart disease, we developed a national survey. Finally, a national database was created for collecting all Mexican centers’ information related to congenital heart disease care in order to quantify the advances related to the proposed plans. The database utilized international consensus nomenclature. The aim of this article is to show the sequence of our actions in relation to direct accomplishments and the current status of congenital heart disease care in Mexico. This article emphasizes the main aspects of these actions: regionalization project implementation, national survey results, and cardiovascular pediatric surgical database creation. Knowledge of outcomes related to successful actions would be useful for those countries that face similar challenges and may lead them to consider adoption of similar measures with the respective adjustments to their own reality.
Calderón-ColmeneroJCervantes-SalazarJLCuri-CuriPRamírezS.Problemática de las cardiopatías congénitas en México. Propuesta de regionalización. ArchCardiolMéx. 2010;80(20):133–140.
2.
SamanekM. Congenital heart malformations: prevalence, severity, survival and quality of life. Cardiol Young. 2000;10(3):179–185.
3.
MitchellSCKoronesSBBerrendeesHW. Congenital heart disease in 56,109 births. Incident and natural history. Circulation. 1971;43(3):323–332.
4.
IgualASauraE.Cirugía cardiovascular en España en el año 2001. Registro de intervenciones de cardiopatías congénitas. Cir Cardiov. 2003;10:81–91.
5.
JiménezJ.Manual de gestión para jefes de servicios clínicos. Madrid: Editorial Díaz de Santos; 2000:430–435.
6.
LundströmNRBerggrenHBjörkhemGJögiPSunnegârdhJ. Centralization of pediatric heart surgery in Sweden. Pediatr Cardiol. 2004;21(4):353–357.
7.
JacobsJPMaruszewskiBKurosawaHCongenital heart surgery databases around the world: do we need a global database?Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2010;13(1):3–19.
8.
American Academy of Pediatrics. Guidelines for pediatric cardiology diagnostic and treatment centers. Pediatrics. 1991;87(4):576–580.
9.
American Academy of Pediatrics. Guidelines for pediatric cardiovascular center. Pediatrics. 2002:109(3):544–549.
10.
Calderón-ColmeneroJde la LlataMVizcaínoARamírezS. Atención médico-quirúrgica de las cardiopatías congénitas: una visión panorámica de la realidad en México. Encuesta 2009. Rev Invest Clin. 2011;63(4):344–352.
11.
Calderón-ColmeneroJRamírezMSCervantesSJ. Métodos de estratificación de riesgo en la cirugía de cardiopatías congénitas. Arch Cardiol Méx. 2008;78(1):60–67.
12.
BonevaRSBottoLDMooreCAYangQCorreaAEriksonJD. Mortality associated with congenital heart defects in the United States. Trends and racial disparities. Circulation. 2001;103(19):2376–2381.
13.
LuftHSBunkerJPEnthovenAC. Should operations be regionalized? The empirical relation between surgical volume and mortality. N Engl J Med. 1979;301(25):1364–1369.
14.
JenkinsKJNewburgerJWLockJEDavisRBCoffmanGAIezzoniLI. In-hospital mortality for surgical repair of congenital heart defects: preliminary observations of variation by hospital case load. Pediatrics. 1995;95(3):323–330.
15.
HannanELRaczMKaveyREQuaegebeurJMWilliamsR. Pediatric cardiac surgery: the effect of hospital and surgeon volume on in-hospital mortality. Pediatrics. 1998;101(6): 963–969.
16.
ChangRKRKlitznerTS. Can regionalization decrease the number of deaths for children who undergo cardiac surgery? A theoretical analysis. Pediatrics. 2002;109(2):173–181.
17.
SpiegelhalterDJ. Mortality and volume of cases in paediatric cardiac surgery: retrospective study based on routinely collected data. BMJ. 2002;324(7332):261–266.
18.
DaenenWLacourt-GayetFAbergTOptimal structure of a congenital heart surgery department in Europe by EACTS congenital heart disease committee. Eur J Cardiothorac Surg. 2003;24(3):334–351.
19.
MavroudisCJacobsJP. Congenital heart surgery nomenclature and database project: overview and minimum dataset. Ann Thorac Surg. 2000;69(suppl 4):S1–S372.
20.
El HagAI. Pattern of congenital heart disease in Sudanese children. East Afr Med J. 1994;71(9):580–586.
21.
ShannMKM.Congenital heart disease in Taiwan, Republic of China 1969. Circulation. 1969;37:1175–1180.
22.
HoffmanJIKaplanS. The incident of congenital heart disease. J Am Coll Cardiol. 2002;39(12):1890–1900.
23.
NorwoodWIDobellARFreedMDKirklinJWBlackstoneEH. Intermediate results of the arterial switch repair: a 20-Institution study. J Thorac Cardiovas Surg. 1988;96(6):854–863.
24.
ChecchiaPAMcColleganJDaherNKolovosNLevyFMarkovitzB. The effect of surgical case volume on outcome after the Norwood procedure. J Thorac Cardiovasc Surg. 2005;129(4):754–759.
25.
DaenenWLacourt-GayetFAbergTOptimal structure of a congenital heart surgery department in Europe by EACTS congenital heart disease committee. Eur J Cardiothorac Surg. 2003;24(3):334–351.
26.
MavroudisCJacobsJP. Congenital heart surgery nomenclature and database project: overview and minimum dataset. Ann Thorac Surg. 2000;69(4 suppl):S1–S372.
IgualASauraE.Cirugía cardiovascular en España en el año2001. Registro de intervenciones de cardiopatías congénitas. Cir Cardiov. 2003;10:81–91.
29.
JacobsJJacobsMLMaruszewskiB. Current status of the European Association for Cardio-thoracic Surgery and the Society of Thoracic Surgeons Congenital Heart Surgery database. Ann Thorac Surg. 2005;80(6):2278–2284.
30.
FylerDC. Report of the New England regional infant cardiac program. Pediatrics. 1980;65(suppl):S376–S461.
31.
MartínezOPRomeroCAlzinaAV. Incidencia de las cardiopatías congénitas en Navarra (1989-1998). Rev Esp Cardiol. 2005;58(12):1428–1434.
32.
VenegasCPeñaAYLozanoRMortalidad por defectos al nacimiento. Bol Med Hosp Infant Mex. 2005;62:294–304.
33.
Dirección General de Información en Salud, Secretaria de Salud. Estadísticas vitales en niños y adolescentes mexicanos. Mortalidad infantil. Bol Med Hosp Infant Mex. 2004;61:515–527.
34.
AlvaECConsideraciones generales de importancia. In: McGraw-Hill-Interamericana (eds.). Lo esencial de la cardiología pediátrica. México: México D.F., 2006:73–81.
35.
MonroJL. Surgery for congenital heart disease in Europe 1995. Eur J Cardiothorac Surg. 1998;13(5):500–503.
IgualASauraE.Cirugía cardiovascular en España en el año 2001. Registro de intervenciones de cardiopatías congénitas. Cir Cardiov. 2003;10:81–91.
38.
JacobsJJacobsMLMaruszewskiBCurrent status of the European association for cardio-thoracic surgery and the society of thoracic surgeons congenital heart surgery database. Ann Thorac Surg. 2005;80(6):2278–2284.
ToeflerOB. Congenital heart disease in aboriginals. Med J Australia. 1979;1:620–630.
41.
Van der HorstRLWinshipWSPittawayDGibbBHLapinskyGB. Congenital heart disease in South African Bantgu: a report of 117 cases. S Afr Med J. 1968;42(46):1271–1273.
42.
SchrireV.Experience with congenital heart disease at Groote Schuur Hospital, Cape Town. S Afr Med J. 1963;37:1175–1180.
