Nowadays, the use of patient-reported outcome measures to monitor a treatment effect in daily practice or to quantify study outcomes is indispensable. In hand surgery, there is a wide variety available. This article provides an overview about the most common hand-specific, upper-extremity specific and general quality of life patient-reported outcome measurement instruments with adequate psychometric properties. A checklist and a decision tree are provided for choosing the appropriate instrument when evaluating patients with hand conditions.
BallCPrattALNanchahalJ. Optimal functional outcome measures for assessing treatment for Dupuytren's disease: a systematic review and recommendations for future practice. BMC Musculoskelet Disord. 2013, 14: 131.
2.
BeatonDEWrightJGKatzJN. Upper Extremity Collaborative GroupDevelopment of the QuickDASH: comparison of three item-reduction approaches. J Bone Joint Surg Am. 2005, 87: 1038–46.
3.
BeaudreuilJAllardAZerkakD, et al.Unité Rhumatologique des Affections de la Main (URAM) scale: development and validation of a tool to assess Dupuytren's disease-specific disability. Arthritis Care Res (Hoboken). 2011, 63: 1448–55.
4.
BernabéBLasbleizSGerberRA, et al.URAM scale for functional assessment in Dupuytren's disease: a comparative study of its properties. Joint Bone Spine. 2014, 81: 441–4.
5.
BrodkeDJSaltzmanCLBrodkeDS. PROMIS for orthopaedic outcomes measurement. J Am Acad Orthop Surg. 2016, 24: 744–9.
6.
CellaDRileyWStoneA, et al.The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008. J Clin Epidemiol. 2010, 63: 1179–94.
7.
ChungKCPillsburyMSWaltersMRHaywardRA. Reliability and validity testing of the Michigan Hand Outcomes Questionnaire. J Hand Surg Am. 1998, 23: 575–87.
8.
De KleermaekerFBoogaartsHDMeulsteeJVerhagenWIM. Minimal clinically important difference for the Boston Carpal Tunnel Questionnaire: new insights and review of literature. J Hand Surg Eur. 2019, 44: 283–9.
9.
DevlinNJShahKKFengYMulhernBvan HoutB. Valuing health-related quality of life: an EQ-5D-5L value set for England. Health Econ. 2018, 27: 7–22.
10.
FidaiMSSaltzmanBMMetaF, et al.Patient-reported outcomes measurement information system and legacy patient-reported outcome measures in the field of orthopaedics: a systematic review. Arthroscopy. 2018, 34: 605–14.
11.
ForgetNJJerosch-HeroldCShepstoneLHigginsJ. Psychometric evaluation of the Disabilities of the Arm, Shoulder and Hand (DASH) with Dupuytren's contracture: validity evidence using Rasch modeling. BMC Musculoskelet Disord. 2014, 15: 361.
GrobetCMarksMTecklenburgLAudigéL. Application and measurement properties of EQ-5D to measure quality of life in patients with upper extremity orthopaedic disorders: a systematic literature review. Arch Orthop Trauma Surg. 2018, 138: 953–61.
14.
HorngYSLinMCFengCTHuangCHWuHCWangJD. Responsiveness of the Michigan Hand Outcomes Questionnaire and the Disabilities of the Arm, Shoulder, and Hand questionnaire in patients with hand injury. J Hand Surg Am. 2010, 35: 430–6.
15.
HudakPLAmadioPCBombardierC. Development of an upper extremity outcome measure: the DASH (Disabilities of the Arm, Shoulder and Hand) [corrected]. The Upper Extremity Collaborative Group (UECG). Am J Ind Med. 1996, 29: 602–8.
16.
Jansen MC, van der Oest MJ, Slijper HP, Porsius JT, Selles RW. Item reduction of the Boston Carpal Tunnel Questionnaire using decision tree modeling. Arch Phys Med Rehabil. Epub ahead of print: 8 Jun 2019. DOI: 10.1016/j.apmr.2019.04.021.
17.
KeithMWMasearVAmadioPC, et al.Treatment of carpal tunnel syndrome. J Am Acad Orthop Surg. 2009, 17: 397–405.
18.
LeiteJCJerosch-HeroldCSongF. A systematic review of the psychometric properties of the Boston Carpal Tunnel Questionnaire. BMC Musculoskelet Disord. 2006, 7: 78.
19.
LevineDWSimmonsBPKorisMJ, et al.A self-administered questionnaire for the assessment of severity of symptoms and functional status in carpal tunnel syndrome. J Bone Joint Surg Am. 1993, 75: 1585–92.
20.
LueYJWuYYLiuYFLinGTLuYM. Confirmatory factor analysis of the Boston Carpal Tunnel Questionnaire. J Occup Rehabil. 2015, 25: 717–24.
21.
MacDermidJC. Development of a scale for patient rating of wrist pain and disability. J Hand Ther. 1996, 9: 178–83.
22.
MacDermidJC. The PRWE/PRWHE update. J Hand Ther. 2019, 32: 292–4.
23.
MacDermidJCRichardsRSDonnerABellamyNRothJH. Responsiveness of the short form-36, Disability of the Arm, Shoulder, and Hand questionnaire, Patient-Rated Wrist Evaluation, and physical impairment measurements in evaluating recovery after a distal radius fracture. J Hand Surg Am. 2000, 25: 330–40.
24.
MahmoodBChongshuCQiuXMessingSHammertWC. Comparison of the Michigan Hand Outcomes Questionnaire, Boston Carpal Tunnel Questionnaire, and PROMIS instruments in carpal tunnel syndrome. J Hand Surg Am. 2019, 44: 366–73.
25.
MarksMAudigéLHerrenDBSchindeleSNelissenRGVliet VlielandTP. Measurement properties of the German Michigan Hand Outcomes Questionnaire in patients with trapeziometacarpal osteoarthritis. Arthritis Care Res (Hoboken). 2014, 66: 245–52.
26.
MarksMSchoonesJWKollingCHerrenDBGoldhahnJVliet VlielandTPM. Outcome measures and their measurement properties for trapeziometacarpal osteoarthritis: a systematic literature review. J Hand Surg Eur. 2013, 38: 822–38.
27.
MartiCHenslerSHerrenDBNiedermannKMarksM. Measurement properties of the EuroQoL EQ-5D-5L to assess quality of life in patients undergoing carpal tunnel release. J Hand Surg Eur. 2016, 41: 957–62.
28.
McMillanCRBinhammerPA. Which outcome measure is the best? Evaluating responsiveness of the Disabilities of the Arm, Shoulder, and Hand Questionnaire, the Michigan Hand Questionnaire and the Patient-Specific Functional Scale following hand and wrist surgery. Hand (NY). 2009, 4: 311–8.
29.
MehtaSPMacDermidJCRichardsonJMacIntyreNJGrewalR. A systematic review of the measurement properties of the patient-rated wrist evaluation. J Orthop Sports Phys Ther. 2015, 45: 289–98.
RodriguesJZhangWScammellB, et al.Validity of the Disabilities of the Arm, Shoulder and Hand patient-reported outcome measure (DASH) and the QuickDASH when used in Dupuytren's disease. J Hand Surg Eur. 2016, 41: 589–99.
32.
RodriguesJNZhangWScammellBE, et al.Recovery, responsiveness and interpretability of patient-reported outcome measures after surgery for Dupuytren's disease. J Hand Surg Eur. 2017, 42: 301–9.
33.
RodriguesJNZhangWScammellBEDavisTR. What patients want from the treatment of Dupuytren's disease—is the Unité Rhumatologique des Affections de la Main (URAM) scale relevant?J Hand Surg Eur. 2015, 40: 150–4.
34.
RosengrenJBrodinN. Validity and reliability of the Swedish version of the Patient Specific Functional Scale in patients treated surgically for carpometacarpal joint osteoarthritis. J Hand Ther. 2013, 26: 53–60.
35.
StratfordPGillCWestawayMBinkleyJ. Assessing disability and change on individual patients: a report of a patient specific measure. Physiotherapy Canada. 1995, 47: 258–63.
36.
The EuroQol GroupEuroQol—a new facility for the measurement of health-related quality of life. Health Policy. 1990, 16: 199–208.
37.
van der OestMJWPorsiusJTMacDermidJCSlijperHPSellesRWItem reduction of the patient-rated wrist evaluation using decision tree modelling. Disabil Rehabil. Epub ahead of print: 10 February 2019. DOI: 10.1080/09638288.2019.1566407.
38.
WaljeeJFKimHMBurnsPBChungKC. Development of a brief, 12-item version of the Michigan Hand Questionnaire. Plast Reconstr Surg. 2011, 128: 208–20.
39.
Ware JE, Kosinski M, Dewey JE, Gandek B. SF-36 health survey: manual and interpretation guide. Lincoln, RI, Quality Metric Incorporated, 2000.
40.
Ware JE, Kosinski M, Gandek B et al. User’s manual for the SF-12v2 Health Survey (2nd ed.). Lincoln, RI, Quality Metric Incorporated, 2010.
41.
WilliamsGNGangelTJArcieroRAUhorchakJMTaylorDC. Comparison of the single assessment numeric evaluation method and two shoulder rating scales. Outcomes measures after shoulder surgery. Am J Sports Med. 1999, 27: 214–21.
42.
WormaldJCRGeogheganLSierakowskiK, et al.Site-specific patient-reported outcome measures for hand conditions: systematic review of development and psychometric properties. Plast Reconstr Surg Glob Open. 2019, 7: e2256.
43.
WrightHHO'BrienVValdesK, et al.Relationship of the Patient-Specific Functional Scale to commonly used clinical measures in hand osteoarthritis. J Hand Ther. 2017, 30: 538–45.