Abstract
Maintenance of quality of life (QoL) is central to healthcare and an increasingly important outcome of care provision reflecting enhanced awareness of the need to consider the effects of a disease or treatment on a patient's life. However, while its assessment has intuitive appeal it is predicated on the belief that QoL can be effectively defined, assessed and quantified. Achieving this is, however, difficult as individuals value different things and, it is claimed, often define QoL differently; there are no ‘generally agreed referents' and no ‘gold standard’ through which it can be measured. This may significantly affect the value and the uses to which such data can be put.
The study described here represents the first stage of a programme of work focusing upon defining QoL as it is currently perceived in the UK; it relied upon a qualitative, descriptive survey involving a sample of Internet health chat room users. It attempts to define QoL and to identify the factors contributing to life quality in these respondents. A subsidiary aim was to evaluate the use of email as a recruitment tool in such research.
A common definition was difficult to find but, in general terms, is taken to represent ‘what you think of your life’. Within this a range of factors are seen to contribute to individual perceptions and it was possible to identify those appearing to determine perceptions of QoL in this study population. Email was an effective route for recruiting subjects in this work.
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