Identifying the Need for Respite Care for People with Learning Disabilities in Northern Ireland

Abstract

The present paper describes the methods employed to investigate the range and models of respite care services provided for people with learning disabilities and their carers in Northern Ireland. A total of 1786 carers (representing 1917 persons with learning disabilities) were surveyed to determine their perceptions and levels of satisfaction regarding the range of services provided for them. In addition 101 local respite care services were examined and interviews conducted with commissioners, providers and professional support staff to assess the perceptions of individuals involved in the planning, commissioning and provision of respite care services. The study confirmed that regional variations existed throughout the Province and that the current range of services often failed to meet the significant (and often complex) needs of users. Epidemiological data was obtained regarding the presenting needs of users. Specific recommendations were made requesting that the availability of comprehensive information about respite care should be readily accessible to users and carers. The need to extend the range of services and to provide more inclusive services for groups such as children and adults with autistic spectrum disorder, people with behavioural and complex medical conditions was also identified. Whilst the study was conducted in Northern Ireland it is considered that many of the findings will be equally applicable to elsewhere in the UK and the Republic of Ireland.