New knowledge has been gained about how close relatives reorient themselves and handle their life situation when facing close relatives' illness. The aim of this study was to describe and elucidate narrated experiences of living in a disrupted situation as partner to a patient with testicular cancer. A qualitative single-case design with a conversational interview using a semistructured guide with open-ended questions was implemented. A young woman whose partner had testicular cancer with metastases was interviewed. Narrative analysis of the data with focus on corporeality, spatiality, temporality, and communality revealed three themes that reflected the woman's concerns in different existential dimensions: the limitless self-care, the restricted space, and the shortness of time. The findings may facilitate caregivers' awareness of actual and potential self-care demands of both patients and significant others and can be used in developing structured strategies in helping close relatives to cope and manage as caregivers.
Bülow, P. (2003). Making sense of contested illness: Talk and narratives about chronic fatigue. Dissertation. Department of Communication Studies, Linköping University, Linköping, Sweden.
4.
Cancer Registry. (2000). Cancer incidence in Sweden 2000. Stockholm: The National Board of Health and Welfare, Centre for Epidemiology, The Cancer Registry. Retrieved November 2005 from http://www.sos.se/statisti.htm
5.
Denzin, N.K. (1989). Interpretive interactionism. Newbury Park, CA: SAGE Publications.
6.
Frank, A.W. (1995). The wounded storyteller. Body, illness and ethics . Chicago: The University of Chicago Press.
7.
Gergen, K.J. (1994). Realities and relationships. Cambridge, MA: Harvard University Press.
8.
Hagedoorn, M., Buunk, B.P., Kuijer, R.G., Wobbes, T., & Sanderman, R. (2000). Couples dealing with cancer: Role and gender differences regarding psychosocial distress and quality of life. Psycho-Oncology , 9, 232-242.
9.
Hickey, T. (1986). Health behaviour and self-care in late life: An introduction. In T. Hickey & B. E. Holstein (Eds.), Self-care and health in old age. Health behaviour implications for policy and practice (pp. 1-11). London: Croom Helm.
10.
Hilton, B.A., Crawford, J.A., & Tarko, M.A. (2000). Men's perspectives on individual and family coping with their wives' breast cancer and chemotherapy. Western Journal of Nursing Research, 22(4), 438-459.
11.
Horton-Salway, M. (2001). Narrative identities and the management of personal accountability in talk about ME: A discursive psychology approach to illness narrative. Journal of Health Psychology, 2, 247-259.
12.
Hydén, L.-C. (1997). Illness and narrative. Sociology of Health & Illness, 1, 48-69.
13.
Jones, K. (2004). The turn to a narrative knowing of persons. In F. Rapport (Ed.), New qualitative methodologies in health and social care research (pp. 35-54). London : Routledge, Taylor and Francis Group.
14.
Lillrank, A. (2003). Back pain and the resolution of diagnostic uncertainty in illness narratives. Social Science & Medicine, 57, 1045-1054.
15.
Lindholm, L., Rehnsfeldt, A., Arman, M., & Hamrin, E. (2002). Significant others' experience of suffering when living with women with breast cancer. Scandinavian Journal of Caring Sciences, 16, 248-255.
16.
Mayeroff, M. (1990). On caring. New York: Harper Perennial.
17.
Orem, D.E. (1987). Motivating self-care-The reality: Persons as self-care agents. In K. McLaughlin Renpenning & S. G. Taylor (Eds.), Self-care theory in nursing. Selected papers of Dorothea Orem (pp. 223-236). New York: Springer.
18.
Orem, D.E. (2001). Nursing. Concepts of practice (6th ed.). St. Louis, MO: Mosby.
19.
Parse, R.R. (1998). The human becoming school of thought. A perspective for nurses and other health care professionals. Thousand Oaks, CA: SAGE Publications.
20.
Pelusi, J., & Krebs, L.U. (2005). Understanding cancer- Understanding the stories of life and living. Journal of Cancer Education, 20(Suppl.), 12-16.
21.
Pitceathly, C., & Maguire, P. (2003). The psychological impact of cancer on patients' partners and other key relatives: A review. European Journal of Cancer, 39, 1517-1524.
22.
Polit, D.F., & Beck, C.T. (2004). Nursing research. Principles and methods (7th ed.). Philadelphia: Lippincott Williams & Wilkins.
23.
Powe, B.D., Ross, L., Wilkerson, D., Brooks, P., & Cooper D. (2007). Testicular cancer among African American college men: Knowledge, perceived risk, and perceptions of cancer fatalism. American Journal of Men's Health, 1, 73-80.
24.
Riessman, C.K. (1990). Divorce talk: Women and men make sense of personal relationships. New Brunswick, NJ: Rutgers University Press.
25.
Robinson, W.D., Carroll, J.S., & Watson, W.L. (2005). Shared experience building around the family crucible of cancer. Families, Systems, & Health, 2, 131-147.
26.
Robson, C. (2002). Real world research (2nd ed.). Oxford, UK: Blackwell.
27.
Salander, P. (1996). Qualities in the short life: Psychological studies relevant to patient and spouse in malignant glioma. Dissertation. Umeå University and Solfjädern, Umeå, Sweden.
28.
Sandén, I. (2000). Att drabbas av testikelcancer-En studie av män med behandlad testikelcancer och deras anhöriga "[Contracting testicular cancer. A study of men with medically treated testicular cancer and their close relatives.]" Dissertation. Department of Communication Studies, Linköping University, Linköping, Sweden.
29.
Sandén, I., & Hydén, L.-C. (2002). How everyday life is affected: An interview study of relatives of men suffering from testicular cancer. Journal of Psychosocial Oncology, 20(2), 27-44.
30.
Söderhamn, O. (2000). Self-care activity as a structure: A phenomenological approach. Scandinavian Journal of Occupational Therapy, 7, 183-189.
31.
Swenaeus, F. (1999). The hermeneutics of medicine and the phenomenology of health. Steps towards a philosophy of medical practice. Dissertation. Tema Health and Society, Linköping University, Linköping, Sweden.
32.
Swenoteca. (1995). Behandling av non-seminomatös testikelcancer [Treatment of nonseminomatous tumors]. Lund, Sweden: Lund Oncological Centre.
33.
van Manen, M. (1997). Researching lived experience. Human science for an action sensitive pedagogy. London: Althouse Press.
34.
Woods, N. (1989). Conceptualizations of self-care: Toward health-oriented models. Advances in Nursing Science, 1, 1-13.
