A vital aspect of the care of people living with dementia is the provision of respite services, which allow family caregivers a break from the caring role. The flexibility of such services has consistently been identified as a major factor in whether families make use of them. This study of dementia respite services explores the notion of flexibility and then presents a comprehensive checklist that respite service providers can use to assess the flexibility of their service. It then provides brief descriptions of a number of creative respite programs that are examples of flexible service provision.
Hebert L, Scherr P, Bienias J, Bennett D, Evans D. Alzheimer disease in the US population: prevalence estimates using the 2000 Census. Arch Neurol. 2003;60:1119-1122.
2.
Leong J, Madjar I, Fiveash B. Needs of family carers of elderly people with dementia living in the community. Australas J Ageing. 2001;20:133-138.
3.
Lo R, Brown R. Caring for family carers and people with dementia. Int J Psychiatr Nurs Res. 2000;6:684-694.
4.
Longshaw S, Perks A. Practice development: respite care innovations for carers of people with dementia. Br J Nurs. 2000;9:1079-1081.
5.
Department of Health and Family Services. The Respite Review Report. Canberra, Australia: Commonwealth Department of Health and Family Services; 1996.
6.
Jeon Y-H, Brodaty H, Chesterton J. Respite care for caregivers and people with severe mental illness. J Adv Nurs. 2005;49:297-306.
7.
Perks A, Nolan M, Ryan T, Enderby P, Hemmings I, Robinson K. Breaking the mould: developing a new service for people with dementia and their carers. Quality in Ageing. 2001;2(1):3-11.
8.
Cox N, Reifler B. Dementia care and respite services program. Alzheimer Dis Assoc Disord. 1994;8:113-121.
9.
Montgomery R. Examining respite: its promise and limits. In: Ory M, Duncker A, eds. In-Home Care for Older People: Health and Supportive Services. London, UK: Sage;1992:75-96.
10.
Lee H, Cameron M. Respite care for people with dementia and their carers. Cochrane Database Syst Rev. 2004;(2):CD004396-CD004396.
11.
Hayes J. Respite for caregivers: a community-based model in a rural setting. J Gerontol Nurs. 1999;25:22-26.
12.
Parahoo K, Campbell A, Scoltock C. An evaluation of a domicillary respite service for younger people with dementia. J Eval Clin Pract. 2002;8:377-385.
13.
Nicholl M, Ashworth M, McNally L, Newman S. Satisfaction with respite care: a pilot study. Health Soc Care Community. 2002;10:479-484.
14.
Hoskins S, Coleman M, McNeely D. Stress in carers of individuals with dementia and Community Mental Health Teams: an uncontrolled evaluation study. J Adv Nurs. 2005;50:325-333.
15.
Gaugler J, Jarrott S, Zarit S, Stephens M, Townsend A, Greene R. Adult day service use and reductions in caregiver hours: effects on stress and psychological wellbeing for dementia caregivers. Int J Geriatr Psychiatry. 2003;8:55-62.
16.
Alzheimer's Association Australia. The Future of Dementia Care in Australia. Canberra: Alzheimer's Association Australia; 1997.
17.
Shanley C. Promoting Flexible Respite for People Living With Dementia. Sydney, Australia: Department of Ageing, Disability and Home Care; 2001.
18.
Strang V. Caregiver respite: coming back after being away. Perspectives. 2000;24(4):10-20.
19.
Gilmour J. Dis/integrated care: family caregivers and inhospital respite care. J Adv Nurs. 2002;39:546-553.
20.
Lilly E. Host Family Respite Program. Paper presented at: the National Respite Conference; October 10-13, 2000; Perth, Australia.
21.
Archibald C. New thinking? New practice? Reflections on respite care for people with dementia and their carers in the UK. Paper presented at: the National Respite Conference; October 10-13, 2000; Perth, Australia.
22.
Byrne B. Innovative respite through day care centres: don't compete, create. Paper presented at: the Aged Care Australia Eighth Conference; 1995; Canberra, Australia.
23.
Brodaty H, Gresham M, Luscombe G. The Prince Henry Hospital dementia caregivers' training programme. Int J Geriatr Psychiatry. 1997;12:183-192.
