“Walking Really Helps me to Center Myself”: Exploring the Psychosocial Aspects of Walking Experience in the Neighbourhood Among People Living With Dementia

Abstract

The neighbourhood environment plays a crucial role in supporting persons living with dementia in mobility in the community, accessing amenities and services, and social participation. There is scarce empirical evidence on the role of the neighbourhood on walking and community participation of persons living with dementia. Moreover, the psycho-social aspects of walking in the community for people living with dementia is poorly understood. Such understanding can provide insights and guidance in development of dementia-inclusive communities. The study was conducted with 26 older adults living with dementia and partners in Metro Vancouver, British Columbia, Canada. Each participant (or dyad) took part in four sessions involving various data collection methods: a structured questionnaire, semi-structured sit-down and walk-along interviews, and photo and video documentation. Through thematic analysis, four themes were generated: Walking as Empowerment, The Emotional Landscape of Walking, Balancing Support and Independence, and A Sense of Belonging and Community Engagement. These findings demonstrate that walking enables people living with dementia to maintain a sense of control over their everyday lives, health and social participation. The study has generated evidence on the neighbourhood’s role in supporting independence and participation of persons living with dementia. This can inform community organizations, care providers and municipalities to identify areas of community-based awareness-raising and educational initiatives and programs to create a community of support for people living with cognitive decline.