The use of everyday technologies to enhance well-being and enjoyment for people living with dementia: A systematic literature review and narrative synthesis

Abstract

Background

Everyday technologies, such as laptops and tablets, are often used for enjoyment, pleasure, leisure and social participation. Despite this, whilst considerable research has investigated exploring people’s experiences of using assistive technologies, it is not clear how everyday technologies are experienced by individuals living with dementia. The aims of this review were to explore the experiences and views of people living with dementia and carers about using everyday technology to enhance their well-being and enjoyment, social engagement, participation and leisure as well as understand their views about the usability of everyday technology in dementia.

Methods

A systematic search of the literature was conducted using the electronic databases: PsycINFO, PsycARTICLES, CINAHL Complete and EThOS. Five qualitative studies and five mixed-method studies were included and synthesised using a narrative approach. The methodological quality of the studies was assessed using the National Institute for Health and Care Excellence Qualitative Quality Appraisal, which uncovered key variation in the quality of the included, synthesised studies.

Findings

The review suggests that everyday technologies can help support well-being, particularly when technology is used in a group setting and when individuals received the right amount of support to help engage in the technology. Four major themes relating to experiences and views were derived from the findings of the 10 included studies: ‘Technology use maintaining a sense of identity’, ‘Assumptions held by the self and others’, ‘The importance of others’ and ‘The usability of technology influencing effective engagement’.

Conclusions

Overall, everyday technologies appear to have a positive impact on different aspects of the well-being of people living with dementia. Clinical implications of these findings include supporting opportunities for people living with dementia to use everyday technology for enjoyment and making these technologies more widely available and accessible.

Keywords

dementia everyday technology well-being enjoyment pleasure social engagement social participation qualitative

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References

Alm

Astell

A. J.

Gowans

Dye

Ellis

M. P.

Vaughan

Riley

(2009). Engaging multimedia leisure for people with dementia. Gerontechnology, 8(4), 236–246.

Alzheimer’s Society. (2015). Assistive technology—Devices to help with everyday living. https://www.alzheimers.org.uk/get-support/staying-independent/what-assistive-technology

Astell, A. (2013). Technology and Fun for a Happy Old Age. In: Sixsmith A., Gutman G. (Eds.), Technologies For Active Aging (pp.169-187). Springer, Boston, M.A.

Astell

A. J.

Malone

Williams

Hwang

Ellis

M. P.

(2014). Leveraging everyday technology for people living with dementia: A case study. Journal of Assistive Technologies, 8(4), 164–176.

Astell

A. J.

Smith

Joddrell

(Eds.). (2019). Using technology in dementia care: A guide to technology solutions for everyday living. Jessica Kingsley Publishers.

Beasley

Conway

(2012). Digital media in everyday life: A snapshot of devices, behaviours, and attitudes part I: Mobile device ownership. https://www.museumsandtheweb.com/mw2012/papers/digital_media_in_everyday_life_a_snapshot_of_d.html

Bellis

(2018). Who invented touch screen technology? https://www.thoughtco.com/who-invented-touch-screen-technology-1992535

Bowes

Dawson

Greasley-Adams

(2013). Literature review: The cost effectiveness of assistive technology in supporting people with dementia. https://dspace.stir.ac.uk/bitstream/1893/18500/1/the_cost_effectiveness_of_assistive_technology_in_supporting_people_with_dementia_october_13.pdf

Cahill

Macijauskiene

Nygård

A. M.

Faulkner

J. P.

Hagen

(2007). Technology in dementia care. Technology and Disability, 19(2-3), 55–60.

10.

Capstick

(2011). Travels with a Flipcam: Bringing the community to people with dementia in a day care setting through visual technology. Visual Studies, 26(2), 142–147.

11.

Clare

, IDEAL Study Team, Wu

Y.-T.

Jones

I. R.

Victor

C. R.

Nelis

S. M.

Martyr

Quinn

Litherland

Pickett

J. A.

Hindle

J. V.

Jones

R. W.

Knapp

Kopelman

M. D.

Morris

R. G.

Rusted

J. M.

Thom

J. M.

Lamont

R. A.

Henderson

Rippon

Hillman

Matthews

F. E.

(2019). A comprehensive model of factors associated with subjective perceptions of “living well” with dementia: Findings from the IDEAL study. Alzheimer Disease and Associated Disorders, 33(1), 36–41.

12.

Clarke

Wolverson

(2016). Positive psychology approaches to dementia. Jessica Kingsley Publishers.

13.

Cohen-Mansfield

Dakheel-Ali

Marx

M. S.

(2009). Engagement in persons with dementia: The concept and its measurement. The American Journal of Geriatric Psychiatry, 17(4), 299–307. http://doi.org/10.1097/JGP.0b013e31818f3a52.Engagement/

14.

Corrigan

P. W.

Morris

Larson

Rafacz

Wassel

Michaels

Wilkniss

Batia

Rüsch

(2010). Self‐stigma and coming out about one’s mental illness. Journal of Community Psychology, 38(3), 259–275.

15.

Cowan, D. and Turner-Smith, A. 1999. The role of assistive technology in alternative models of care for older people. In Royal Commission on Long Term Care, Research Volume 2, Appendix 4, Stationery Office, London, 325–46.

16.

Cutler

Hicks

Innes

(2016). Does digital gaming enable healthy aging for community-dwelling people with dementia? Games and Culture, 11(1–2), 104–129.

17.

Csikszentmihalyi, M. (1991). Flow: The psychology of optimal experience (Vol. 41). New York, NY: Harper Perennial.

18.

Diener

(1984). Subjective well-being. Psychological Bulletin, 95(3), 542–575.

19.

Diener, E., & Suh, E. M. (Eds.). (2003). Culture and subjective well-being. MIT Press.

20.

Finlay

(2002). “Outing” the researcher: The provenance, process, and practice of reflexivity. Qualitative Health Research, 12(4), 531–545.

21.

Green

Davis

Karshmer

Marsh

Straight

(2005). Living stigma: The impact of labeling, stereotyping, separation, status loss, and discrimination in the lives of individuals with disabilities and their families. Sociological Inquiry, 75(2), 197–215.

22.

Greenhalgh

Wherton

Sugarhood

Hinder

Procter

Stones

(2013). What matters to older people with assisted living needs? A phenomenological analysis of the use and non-use of telehealth and telecare. Social Science & Medicine, 93, 86–94.

23.

Groenewoud

Lange

Schikhof

Astell

Joddrell

Goumans

(2017). People with dementia playing casual games on a tablet. Gerontechnology, 16(1), 37–47.

24.

Harris, J. R., & Wallace, R. B. (2012). The Institute of Medicine’s new report on living well with chronic illness. Preventing chronic disease, 9, 1–3. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3475533/pdf/PCD-9-E148.pdf

25.

Hedman

Lindqvist

Nygård

(2016). How older adults with mild cognitive impairment relate to technology as part of present and future everyday life: A qualitative study. BMC Geriatrics, 16(1), 73.

26.

Hicks

(2016). Exploring the use of a commercial digital gaming Technological Initiative to enable social inclusion for community-dwelling older men with dementia in rural England [Doctoral dissertation]. Bournemouth University, UK.

27.

Hitch

Swan

Pattison

Stefaniak

(2017). Use of touchscreen tablet technology by people with dementia in homes: A scoping review. Journal of Rehabilitation and Assistive Technologies Engineering, 4, 2055668317733382.

28.

Innes

Page

S. J.

Cutler

(2016). Barriers to leisure participation for people with dementia and their carers: An exploratory analysis of carer and people with dementia’s experiences. Dementia (London, England), 15(6), 1643–1665.

29.

Janoutová

Sery

Hosák

Janout

(2015). Is mild cognitive impairment a precursor of Alzheimer’s disease? Short review. Central European Journal of Public Health, 23(4), 365–367.

30.

Joddrell

Astell

A. J.

(2016). Studies involving people with dementia and touchscreen technology: A literature review. JMIR Rehabilitation and Assistive Technologies, 3(2), e10.

31.

Joddrell

Hernandez

Astell

A. J.

(2016). Developing a framework to support the identification of accessible touchscreen apps for people living with dementia. Alzheimer's & Dementia, 12(7), P158.

32.

Keyes

C. L. M.

(1998). Social well-being. Social Psychology Quarterly, 61(2), 121–140.

33.

Kitwood

Bredin

(1992). Towards a theory of dementia care: Personhood and well-being. Ageing & Society, 12(3), 269–287.

34.

Kitwood

T. M.

(1997). Dementia reconsidered: The person comes first. Open University Press.

35.

Kraus

C. A.

Seignourel

Balasubramanyam

Snow

A. L.

Wilson

N. L.

Kunik

M. E.

Schulz

P. E.

Stanley

M. A.

(2008). Cognitive-behavioral treatment for anxiety in patients with dementia: Two case studies. Journal of Psychiatric Practice, 14(3), 186–192.

36.

Krefting

(1991). Rigor in qualitative research: The assessment of trustworthiness. The American Journal of Occupational Therapy: Official Publication of the American Occupational Therapy Association, 45(3), 214–222.

37.

Lazar

Demiris

Thompson

H. J.

(2016). Evaluation of a multifunctional technology system in a memory care unit: Opportunities for innovation in dementia care. Informatics for Health and Social Care, 41(4), 373–386.

38.

Levasseur

Richard

Gauvin

Raymond

(2010). Inventory and analysis of definitions of social participation found in the aging literature: Proposed taxonomy of social activities. Social Science & Medicine (1982), 71(12), 2141–2149.

39.

Lim

F. S.

Wallace

Luszcz

M. A.

Reynolds

K. J.

(2013). Usability of tablet computers by people with early-stage dementia. Gerontology, 59(2), 174–182.

40.

Lin

K. Y.

H. P.

(2011). Why people use social networking sites: An empirical study integrating network externalities and motivation theory. Computers in Human Behavior, 27(3), 1152–1161.

41.

Lincoln

Y. S.

Guba

E. G.

(1985). Establishing trustworthiness. Naturalistic Inquiry, 289, 331.

42.

Mulvenna, M., Nugent, CD., Moelaert, F., Craig, D., Dröes, R. M., & Bengtsson, J. E. (2010). Supporting People with Dementia Using Pervasive Healthcare Technologies. In M. Mulvenna, & CD. Nugent (Eds.), Supporting People with Dementia Using Pervasive Health Technologies (pp. 3-14). Springer. https://doi.org/10.1007/978-1-84882-551-2

43.

National Institute for Health and Care Excellence. (2012). Methods for the development of NICE public health guidance (3rd ed.). https://www.nice.org.uk/process/pmg4/chapter/appendix-h-quality-appraisal-checklist-qualitative-studies

44.

Newton

B. J.

Rothlingova

Gutteridge

LeMarchand

Raphael

J. H.

(2012). No room for reflexivity? Critical reflections following a systematic review of qualitative research. Journal of Health Psychology, 17(6), 866–885.

45.

Nolan, M. (2012, November). Beyond ‘Patient-centred care’: Applying the ‘senses framework’. Presented at the Transforming patient experience annual conference 2012, Kings Fund, UK. https://www.kingsfund.org.uk/audio-video/mike-nolan-how-relationship-centred-care-can-improve-patient-outcomes

46.

Pedell, S., Beh, J., Mozuna, K., & Duong, S. (2013, November). Engaging older adults in activity group settings playing games on touch tablets. In Proceedings of the 25th Australian Computer-Human Interaction Conference: Augmentation, Application, Innovation, Collaboration (pp. 477-480). ACM.

47.

Pinto-Bruno

Á. C.

García-Casal

J. A.

Csipke

Jenaro-Río

Franco-Martín

(2017). ICT-based applications to improve social health and social participation in older adults with dementia. A systematic literature review. Aging & Mental Health, 21(1), 58–65.

48.

Popay

Roberts

Sowden

Petticrew

Arai

Rodgers

Duffy

(2006). Guidance on the conduct of narrative synthesis in systematic reviews. A Product From the ESRC Methods Programme Version, 1, b92.

49.

Quinn

Toms

Jones

Brand

Edwards

R. T.

Sanders

Clare

(2016). A pilot randomized controlled trial of a self-management group intervention for people with early-stage dementia (The SMART study). International Psychogeriatrics, 28(5), 787–800.

50.

Sabat

S. R.

(2001). The experience of Alzheimer’s disease: Life through a tangled veil. Blackwell Publishers.

51.

Seligman

M. E.

(2012). Flourish: A visionary new understanding of happiness and well-being. Simon and Schuster.

52.

Smith

S. K.

(2015). Exploring the potential of touch-screen computer technology in promoting enjoyable activities with people living with dementia: A visual ethnography [Doctoral dissertation]. University of Sheffield, UK.

53.

Span

Hettinga

Vernooij-Dassen

Eefsting

Smits

(2013). Involving people with dementia in the development of supportive IT applications: A systematic review. Ageing Research Reviews, 12(2), 535–551.

54.

Suri

(2014). Towards methodologically inclusive research syntheses: Expanding possibilities. Routledge.

55.

Swan

Hitch

Pattison

Mazur

Loi

Westphal

Bolton

(2018). Meaningful occupation with iPads: Experiences of residents and staff in an older person’s mental health setting. British Journal of Occupational Therapy, 81(11), 649–656.

56.

Tong

Flemming

McInnes

Oliver

Craig

(2012). Enhancing transparency in reporting the synthesis of qualitative research: ENTREQ. BMC Medical Research Methodology, 12(1), 181.

57.

Upton

Jones

Jutlla

Brooker

Grove

(2011). Evaluation of the impact of touch screen technology on people with dementia and their carers within care home settings. http://79.170.44.96/lifestorynetwork.org.uk/wp-content/uploads/downloads/2012/11/evaluation-of-the-impact-of-the-use-of-touchscreen-technology-with-people-with-dementia-.pdf

58.

Wanchai

Phrompayak

(2019). Social participation types and benefits on health outcomes for elder people: A systematic review. Ageing International, 44(3), 223–233.

59.

Wandke

Sengpiel

Sönksen

(2012). Myths about older people’s use of information and communication technology. Gerontology, 58(6), 564–570.

60.

Woods

R. T.

Keady

Seddon

(2008). Involving families in care homes: A relationship-centred approach to dementia care. Jessica Kingsley Publishers.

61.

Yardley

Spring

B. J.

Riper

Morrison

L. G.

Crane

D. H.

Curtis

Merchant

G. C.

Naughton

Blandford

(2016). Understanding and promoting effective engagement with digital behavior change interventions. American Journal of Preventive Medicine, 51(5), 833–842.