In recent years there has been a growing interest in person-centred, ‘living well’ approaches to dementia, often taking the form of important efforts to engage people with dementia in a range of creative, arts-based interventions such as dance, drama, music, art and poetry. Such practices have been advanced as socially inclusive activities that help to affirm personhood and redress the biomedical focus on loss and deficit. However, in emphasizing more traditional forms of creativity associated with the arts, more mundane forms of creativity that emerge in everyday life have been overlooked, specifically with regard to how such creativity is used by people living with dementia and by their carers and family members as a way of negotiating changes in their everyday lives. In this paper, we propose a critical approach to understanding such forms of creativity in this context, comprised of six dimensions: everyday creativity; power relations; ways to operationalise creativity; sensory and affective experience; difference; and reciprocity. We point towards the potential of these dimensions to contribute to a reframing of debates around creativity and dementia.
AtaT.TeradaS.YokotaO.IshiharaT. (2010).
Wandering and fecal smearing in people with dementia. International Psychogeriatrics,
22(3), 493–500.
5.
BannanN.Montgomery-SmithC. (2008).
Singing for the Brain’: Reflections on the human capacity for music arising from a pilot study of group singing with Alzheimer’s patients. Journal of the Royal Society for the Promotion of Health,
128(2), 73–78.
6.
BartlettR. (2012).
Modifying the diary interview method to research the lives of people with dementia. Qualitative Health Research,
22(12), 1717–1726.
7.
BartlettR. (2014).
The emergent modes of dementia activism. Ageing and Society,
34, 623–644.
8.
BartlettR.O’ConnorD. (2007).
From personhood to citizenship: Broadening the lens for dementia practice and research. Journal of Aging Studies,
21(2), 107–118.
9.
BartlettR.O’ConnorD. (2010). Broadening the dementia debate: Towards social citizenship.
Bristol:
Policy.
10.
BartonS.FindlayD.BlakeR. A. (2005).
The management of inappropriate vocalisation in dementia: A hierarchical approach. International Journal of Geriatric Psychiatry,
20(12), 1180–1186.
11.
BeardR. (2011).
Art therapies and dementia care: A systematic review. Dementia,
11(5), 633–656.
12.
BeghettoR. A.KaufmanJ. C. (2007).
Toward a broader conception of creativity: A case for “mini-c” creativity. Psychology of Aesthetics, Creativity and the Arts,
1(2), 73–79.
13.
BirtL.PolandF.CsipkeE.CharlesworthG. (2017).
Shifting dementia discourses from deficit to active citizenship. Sociology of Health and Illness,
39(2), 199–211.
14.
BrittainK.DegnenC.GibsonG.DickinsonC.RobinsonL. (2017).
When walking becomes wandering: Representing the fear of the fourth age. Sociology of Health and Illness,
39, 270–284.
15.
BurkeL. (2014).
Oneself as another: Intersubjectivity and ethics in Alzheimer’s illness narratives. Narrative Inquiry,
4(2), 28–47.
16.
BuseC.TwiggJ. (2014).
Looking ‘out of place’: Analysing the spatial and symbolic meanings of dementia care settings through dress. International Journal of Ageing and Later Life,
9(1), 69–95.
17.
BuseC.TwiggJ. (2016).
Materialising memories: Exploring the stories of people with dementia through dress. Ageing and Society,
36(6), 1115–1135.
18.
BuseC.TwiggJ. (2018). Keeping up appearances: Family carers and people with dementia negotiating normalcy through dress practice. In ThomasG. M.SakellariouD. (Eds), Disability, normalcy and the everyday. Abingdon-on-Thames: Routledge.
19.
CamicP. M.HulbertS.KimmelJ. (2017). Museum object handling: A health-promoting, community-based activity for dementia care. Journal of Health Psychology. Epub ahead of print 2017. DOI: 10.1177/1359105316685899.
20.
CamicP. M.TischlerV.PearmanC. H. (2014).
Viewing and making art together: A multi-session art-gallery-based intervention for people with dementia and their carers. Aging and Mental Health,
18(2), 161–168.
21.
CamicP. M.WilliamsC. M.MeetenF. (2011).
Does a ‘Singing Together Group’ improve the quality of life of people with a dementia and their carers?Dementia,
12(2), 157–176.
22.
CampbellS.PonsilloN.BuddP.KeadyJ. (2017).
‘Music in Mind’ and Manchester Camerata: An exploratory qualitative evaluation of longitudinal engagement in one care home in the North West of England. Quality in Ageing and Older Adults,
18(1), 69–80.
23.
CapstickA.ChatwinJ. R. (2016).
The carnival is not over: Cultural resistance in dementia care. Pragmatics and Society,
7(2), 169–195.
24.
CapstickA.ChatwinJ.LudwinK. (2015). Challenging representations of dementia in contemporary Western fiction film: From epistemic injustice to social participation. In SwinnenA.SchwedaM. (Eds), Popularizing dementia: Public expressions and representations of forgetfulness (pp. 229–252).
Bielefeld:
Transcipt Verlag.
25.
CapstickA.LudwinK. (2015).
Place memory and dementia: Findings from participatory film-making in long-term social care. Health and Place.
34, 157–163.
26.
ChancellorB.DuncanA.ChatterjeeA. (2014).
Art therapy for Alzheimer's disease and other dementias. Journal of Alzheimer’s Disease,
39(1), 1–11.
CsikszentmihalyiM. (1996). Creativity: Flow and the psychology of discovery and invention.
New York, NY:
Harper Collins.
29.
DeBaggioT. (2008). When it gets dark.
London:
Simon & Schuster.
30.
de MedeirosK.BastingA. (2013).
Shall I compare thee to a dose of donepezil?”: Cultural arts interventions in dementia care. The Gerontologist,
54(3), 344–353.
31.
de SouzaL. C.GuimarãesH. C.TeixeiraA. L.CaramelliP.LevyR.DuboisB.VolleE. (2014).
Frontal lobe neurology and the creative mind. Frontiers in Psychology,
5, 1–21.
32.
DowlenR.KeadyJ.MilliganC.SwarbrickC.PonsilloN.GeddesL.RileyB. (2017). The personal benefits of musicking for people living with dementia: A thematic synthesis of the qualitative literature. Arts and Health: An International Journal. Epub ahead of print 2017. DOI: 10.1080/17533015.2017.1370718.
33.
EekelaarC.CamicP. M.SpringhamN. (2012).
Art galleries, episodic memory and verbal fluency in dementia: An exploratory study. Psychology of Aesthetics, Creativity and the Arts,
6(3), 262–272.
34.
FreundP. E. S. (1990).
The expressive body: A common ground for the sociology of emotions and health and illness. Sociology of Health and Illness,
12(4), 452–477.
35.
FritschT.KwakJ.GrantS.LangJ.MontgomeryR. R.BastingA. D. (2009).
Impact of TimeSlips, a creative expression program, on nursing home residents with dementia and their caregivers. The Gerontologist,
49(1), 117–127.
36.
GarfinkelH. (1967). Studies in ethnomethodology.
Englewood Cliffs, NJ:
Prentice-Hall.
37.
GjengedalE.LykkesletE.S⊘rb⊘J. I.SætherW. H. (2014).
Brightness in dark places’: Theatre as an arena for communicating life with dementia. Dementia,
13(5), 598–612.
38.
GlăveanuV. (2010a).
Paradigms in the study of creativity: Introducing the perspective of cultural psychology. New Ideas in Psychology,
28(1), 79–93.
39.
GlăveanuV. (2010b).
Principles for a cultural psychology of creativity. Culture and Psychology,
16(2), 147–163.
40.
GrossS. M.DanilovaD.VandeheyM. A.DiekhoffG. M. (2015).
Creativity and dementia: Does artistic activity affect well-being beyond the art class?Dementia,
14(1), 27–46.
41.
GuilleminM. (2004).
Understanding illness: Using drawings as a research method. Qualitative Health Research,
14(2), 272–289.
42.
HannemannB. T. (2006).
Creativity with dementia patients: Can creativity and art stimulate dementia patients positively?Gerontology,
52, 59–65.
43.
HubbardG.DownsM. G.TesterS. (2003).
Including older people with dementia in research: Challenges and strategies. Aging and Mental Health,
7(5), 351–362.
44.
Hyden, L. C. and Oruluv, L. (2009). Narrative and identity in Alzheimer’s disease: A casestudy, Journal of Aging Studies, 205–214.
45.
JenkinsN.KeyesS.StrangeL. (2016).
Creating vignettes of early onset dementia: An exercise in public sociology. Sociology,
50(1), 77–92.
46.
JohnsonJ.CulverwellA.HulbertS.RobertsonM.CamicP. M. (2015). Museum activities in dementia care: Using visual analog scales to measure subjective well-being. Dementia, 16(5), 591–610.
47.
KaraH. (2015). Creative research methods in the social sciences: A practical guide.
Bristol:
Policy.
48.
KaufmanJ. C.BeghettoR. A. (2009).
Beyond big and little: The four C model of creativity. Review of General Psychology,
13(1), 1–12.
49.
KeadyJ.HydénL.-C.JohnsonA.SwarbrickC. (2017). Social research methods in dementia studies: Inclusion and innovation,
London:
Routledge.
50.
KeadyJ.WilliamsS.Hughes-RobertsJ.QuinnP.QuinnM. (2007). A changing life: Co-constructing a personal theory of awareness and adjustment to the onset of Alzheimer’s disease. In NolanM.HansonG.GrantG.KeadyJ. (Eds), User participation research in health and social care: Voices, values and evaluation (pp. 69–88).
Maidenhead:
Open University Press/McGraw Hill.
51.
KindellJ.WilkinsonR.SageK.KeadyJ. (2017). Combining music and life story to enhance participation in family interaction in semantic dementia: A longitudinal study of one family’s experience. Arts and Health: An International Journal. Epub ahead of print 2017. DOI: 10.1080/17533015.2017.1342269.
KontosP. (2004).
Ethnographic reflections on selfhood, embodiment and Alzheimer’s disease. Ageing and Society,
24(6), 829–849.
54.
KontosP.MillerK.-L.KontosA. P. (2017).
Relational citizenship: Supporting embodied selfhood and relationality in dementia care. Sociology of Health and Illness,
39(2), 182–198.
55.
LachH. W.ChangY.-P. (2007).
Caregiver perspectives on safety in home dementia care. Western Journal of Nursing Research,
29(8), 993–1014.
56.
LawtonM. P. (1997).
Assessing quality of life in Alzheimer disease research. Alzheimer’s Disease and Associated Disorders,
11(Suppl. 6), 91–99.
57.
McCabeM.de Waal MalefytT. (2015).
Creativity and cooking: Motherhood, agency and social change in everyday life. Journal of Consumer Culture,
15(1), 48–65.
58.
McGovernJ. (2011).
Couple meaning-making and dementia: Challenges to the deficit model. Journal of Gerontological Social Work,
54(7), 678–690.
59.
McGovernJ. (2014).
The forgotten: Dementia and the aging LGBT community. Journal of Gerontological Social Work,
57(8), 845–857.
60.
MacPhersonS.BirdM.AndersonK.DavisT.BlairA. (2009).
An art gallery access programme for people with dementia: ‘You do it for the moment. Aging and Mental Health,
13(5), 744–752.
61.
MayV. (2013). Connecting self to society: Belonging in a changing world.
Basingstoke:
Palgrave Macmillan.
62.
McColgan, G. (2004). Images, constructs, theory and method: including thenarrative of dementia. In Innes A., Archibald C. and Murphy C. (Eds), Dementia and Social Inclusion (pp. 169–183). London: Jessica Kingsley.
63.
McColgan, G. (2005). A Place to SitResistance Strategies Used to Create Privacy and Home by People with Dementia. Journal of Contemporary Ethnography, 34(4), 410–433.
64.
MelhuishR.BeuzebocC.GuzmánA. (2017).
Developing relationships between care staff and people with dementia through Music Therapy and Dance Movement Therapy: A preliminary phenomenological study. Dementia,
16(3), 282–296.
65.
MendezM. F. (2004).
Dementia as a window to the neurology of art. Medical Hypotheses,
63, 1–7.
66.
MoranS.John-SteinerV. (2003). Creativity in the making: Vygotsky’s contemporary contribution to the dialectic of development and creativity (pp. 61–73). In Keith SawyerR. (Ed.), Creativity and development.
Oxford:
Oxford University Press.
67.
OyebodeJ. R.BradleyP.AllenJ. L. (2013).
Relatives’ experiences of frontal-variant frontotemporal dementia. Qualitative Health Research,
23(2), 156–166.
68.
ParveenS.PeltierC.OyebodeJ. R. (2017).
Perceptions of dementia and use of services in minority ethnic communities: A scoping exercise. Health and Social Care in the Community,
25(2), 734–742.
69.
PetrescuI.MacFarlaneK.RanzijnR. (2014).
Psychological effects of poetry workshops with people with early stage dementia: An exploratory study. Dementia,
13(2), 207–215.
70.
PhillipsL. J.Reid-ArndtS. A.PakY. (2010).
Effects of a creative expression intervention on emotions, communication, and quality of life with persons with dementia. Nursing Research,
59(6), 417–425.
71.
PriceE. (2008).
Pride or prejudice? Gay men, lesbians and dementia. The British Journal of Social Work,
38(7), 1337–1352.
72.
ReganJ. L.BhattacharyyaS.KevernP.RanaT. (2013).
A systematic view of religion and dementia care pathways in black and minority ethnic populations. Mental Health, Religion and Culture,
16(1), 1–15.
73.
RichardsR. (2007). Everyday creativity: Our hidden potential. In RichardsR. (Ed.), Everyday creativity and new forms of human nature: Psychological, and spiritual perspectives (pp. 25–53).
Washington, DC:
American Psychological Association.
74.
RichardsR. (2010). Everyday creativity: Process and way of life – Four key issues. In KaufmanJ. C.SternbergR. J. (Eds), The Cambridge handbook of creativity (pp. 185–215).
New York, NY:
Cambridge University Press.
75.
SabatS. R.JohnsonA.SwarbrickC.KeadyJ. (2011).
The ‘demented other’ or simply a person? Extending the philosophical discourse of Naue and Kroll through the situated self. Nursing Philosophy,
12(4), 282–292.
76.
SauerP. E.Fopma-LoyJ.KinneyJ. M.LokonE. (2016).
It makes me feel like myself”: Person-centred versus traditional visual arts activities for people with dementia. Dementia,
15(5), 895–912.
77.
SchredlM.ErlacherD. (2007).
Self-reported effects of dreams on waking-life creativity: An empirical study. Journal of Psychology,
141(1), 35–46.
78.
SelbergS. (2015). Dementia on the canvas: Art and the biopolitics of creativity (pp. 137–162). In SwinnenA.SchwedaM. (Eds), Popularizing dementia: Public expressions and representations of forgetfulness.
Bielefeld:
Transcipt Verlag.
79.
SilviaP. J.BeatyR. E.NusbaumE. C.EddingtonK. M.Levin-AspensonH.KwapilT. R. (2014).
Everyday creativity in daily life: An experience-sampling study of “little-c” creativity. Psychology of Aesthetics, Creativity and the Arts,
8(2), 183–188.
80.
SimontonD. K. (2013). What is a creative idea? Little-c versus Big-C creativity (pp. 69–84). In ThomasK.ChanJ. (Eds), Handbook of research on creativity.
Cheltenham:
Edward Elgar Publishing.
81.
SwinnenA. M. C. (2016).
Healing words: A study of poetry interventions in dementia care. Dementia,
15(6), 1377–1404.
82.
UllánA. M.BelverM. H.BadiaM.MorenoC.GarridoE.Gómez-IslaJ., … TejedorL. (2011).
Contributions of an artistic educational program for older people with early dementia: An exploratory qualitative study. Dementia, (4), 425–446. 12.
83.
WardR.ClarkA.CampbellS.GrahamB.KullbergA.ManjiK., … KeadyJ. (2017). The lived neighborhood: Understanding how people with dementia engage with their local environment. International Psychogeriatrics. Epub ahead of print 207. DOI: 10.1017/S1041610217000631.
84.
WetherellM. (2012). Affect and emotion.
London:
Sage Publications.
85.
WilkinsonH. (2002). Including people with dementia in research (pp. 9–25). In Wilkinson (Ed.), The perspectives of people with dementia: Research methods and motivations.
London:
Jessica Kingsley.
86.
WilliamsS.KeadyJ. (2012a).
Centre stage diagrams: A new method to develop constructivist grounded theory – Late-stage Parkinson’s disease as a case exemplar. Qualitative Research,
12(2), 218–238.
87.
WilliamsS.KeadyJ. (2012b).
Centre stage diagramming: Late-stage Parkinson’s disease and Alzheimer’s disease. Journal of Aging Studies,
26, 204–213.
88.
WoodsR. T.OrrellM.BruceE.EdwardsR. T.HoareZ.HounsomeB., … RussellI. T. (2016).
REMCARE: Pragmatic multi-centre randomised trial of reminiscence groups for people with dementia and their family carers: Effectiveness and economic analysis. PLoS ONE,
11(4), DOI: 10.1371/journal.pone.0152843.
89.
ZeiligH.KillickJ.FoxC. (2014).
The participative arts for people living with dementia: A critical review. International Journal of Ageing and Later Life,
9(1), 7–34.
