Participating in focus groups can be challenging for people with communication disabilities. Given that more than 1 in 10 adults has a communication disability, focus groups that overlook their needs exclude a large part of the population. This research note makes a unique contribution toward creating more inclusive focus groups by discussing a variety of strategies employed in a recent study of political participation among Americans with disabilities that included a high proportion of participants with communication disorders. Universal design principles can support the “mainstreaming” of communication disabilities in focus group research, contributing to more inclusive and representative social science scholarship.
AganJKochLCRumrillPDJr (2008) The use of focus groups in rehabilitation research. Work31(2): 259–269.
2.
AlperM (2017) Giving Voice: Mobile Communication, Disability, and Inequality. Cambridge, MA: MIT Press.
3.
American Speech-Language-Hearing Association (1993) Definitions of communication disorders and variations. Available at: https://www.asha.org/policy/rp1993-00208/ (accessed 1 June 2019).
4.
BagnoliAClarkA (2010) Focus groups with young people: a participatory approach to research planning. Journal of Youth Studies13(1): 101–119.
5.
BarrOMcConkeyRMcConaghieJ (2003) Views of people with learning difficulties about current and future accommodation: the use of focus groups to promote discussion. Disability and Society18(5): 577–597.
6.
BirtLScottSCaversD, et al. (2016) Member checking: a tool to enhance trustworthiness or merely a nod to validation?Qualitative Health Research26(13): 1802–1811.
7.
CaldwellK (2014) Dyadic interviewing: a technique valuing interdependence in interviews with individuals with intellectual disabilities. Qualitative Research14(4): 488–507.
8.
DreherT (2012) A partial promise of voice: digital storytelling and the limit of listening. Media International Australia142(1): 157–166.
9.
Follette StoryM (1998) Maximizing usability: the principles of universal design. Assistive Technology10(1): 4–12.
10.
FraserMFraserA (2001) Are people with learning disabilities able to contribute to focus groups on health promotion?Journal of Advanced Nursing33(2): 225–233.
11.
HollomozA (2018) Successful interviews with people with intellectual disabilities. Qualitative Research18(2): 153–170.
12.
KoelschL (2013) Reconceptualizing the member check interview. International Journal of Qualitative Methods12(1): 168–179.
13.
Koffer MillerKMathewMNonnemacherS, et al. (2017) Program experiences of adults with autism, their families, and providers: findings from a focus group study. Autism22(3): 345–356.
14.
LlwellynP (2009) Supporting people with intellectual disabilities to take part in focus groups: reflections on a research project. Disability and Society24(7): 845–856.
15.
Makosky DaleyCJameAUlreyE, et al. (2010) Using focus groups in community-based participatory research: challenges and resolutions. Qualitative Health Research20(5): 697–706.
16.
NindM (2008) Conducting Qualitative Research with People with Learning, Communication and Other Disabilities: Methodological Challenges. Southampton: ESRC National Center for Research Methods.
17.
OliverM (1990) The Politics of Disablement. London: Palgrave.
18.
SveenUOstensjoSLaxeS, et al. (2013) Problems in functioning after a mild traumatic brain injury within the ICF framework: the patient perspective using focus groups. Disability and Rehabilitation35(9): 749–757.
19.
TaylorD (2014) Americans with Disabilities: 2014. Washington, DC: United States Census Bureau.
20.
TrevisanF (2019) Using the internet to mobilize marginalized groups: people with disabilities and digital campaign strategies in the 2016 U.S. presidential election. International Journal of Communication13: 1592–1611.
21.
TrevisanF (2020) ‘Do you want to be a well-informed citizen, or do you want to be sane?’: social media, disability, mental health, and political marginality. Social Media + Society6(1): 1–11.
22.
TrevisanFReillyP (2014) Ethical dilemmas in researching sensitive issues online: lessons from the study of British disability dissent networks. Information, Communication and Society17(9): 1131–1146.
23.
Washington Group (2010) Short Set of Questions on Disability. Atlanta, GA: Center for Disease Control and Prevention.
