Self-Reconstruction and Biographical Revisioning: Survival Following Cancer in Childhood or Adolescence

Abstract

Narratives of long-term survival reveal a social process involving complex negotiation of identity issues, future planning and future health concerns which enables survivors to combine both fear and hope in order to develop ideas about an imagined future. Young men and women provided personal accounts, and central to their stories are efforts at biographical revisioning and self-reconstruction, which illustrate that long-term survival throws into question conventional temporal securities and predictable trajectories of self-development. Here, I present my notion of the ‘consciousness of survival’ and outline features of a further concept of ‘successful survival’. These terms relate to an ontological process in which the survivor can use illness, survival, living in a remission society and late effects of treatment as a medium for the creation of new relationships to self and others, and to learn about the world we create and inhabit. Gender and cultural background affect enactment of this process.

Keywords

cancer childhood identity self-development survival

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References

Aaronson, N. (1991). Methodologic issues in assessing quality of life of cancer patients. Cancer, 67, 844–850.

Battersby, C. (1998). The phenomenal woman: Feminist metaphysics and the patterns of identity. Cambridge: Polity Press.

Brookes, T. (1994). Catching my breath: An asthmatic explores his illness. New York: Times Books.

Drew, S. (2002). Thinking about fertility: Narratives of young adult survivors following cancer in childhood or adolescence. In M. Kirkman , J.M. Maher and K.T. Souter (Eds), The fertile imagination: Narratives of reproduction, special book issue of Meridian, pp. 83–101.

Frank, A. (1991). At the will of the body: Reflections on illness. Boston, MA: Houghton Mifflin.

Frank, A. (1995). The wounded storyteller: Body, illness and ethics. Chicago, IL: University of Chicago Press.

Frank, A. (1997). Illness as moral occasion: Restoring agency to ill people. health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 1, 131–148.

Gravelle, K. and Bartram, J. (1986). Teenagers face to face with cancer. New York: Julian Messner.

Green, D. , Zevon, M. and Hall, B. (1991). Achievement of life goals by adult survivors of modern treatment for childhood cancer. Cancer, 67, 206–213.

10.

Holdaway, D. (1989). Foreword. In L. Read (Ed.), Life is for living. Invercargill, New Zealand: Craig Printing.

11.

Little, M. , Jordens, C.F.C. , Paul, K. and Sayers, E.-J. (2001) Surviving survival: Life after cancer. Marrickville: Choice Books.

12.

Manderson, L. (1999). Gender, normality and the post-surgical body. Anthropology and Medicine, 6, 381–394.

13.

Mattingly, C. (1998). Healing dramas and clinical plots: The narrative structure of experience. Cambridge: Cambridge University Press.

14.

Miles, S. (2000). Topic of cancer. Good Weekend, 29 January: 32–33.

15.

Monaco, G. , Fiduccia, D. and Smith, G. (1997). Legal and societal issues facing survivors of childhood cancer. Pediatric Oncology, 44, 1043–1058.

16.

Price, R. (1994). A whole new life. New York: Atheneum.

17.

Riessman, C. (1993). Narrative analysis. London: Sage.

18.

Ross, J. (1982). The role of the social worker with long term survivors of childhood cancer and their families. Social Work in Health Care, 7, 1–13.

19.

Sontag, S. (1991). Illness as metaphor/Aids and its metaphors. London: Penguin.

20.

Stacey, J. (1997). Teratologies: A cultural study of cancer. London: Routledge.

21.

Van Eys, J. (1984). The concept of rehabilitation in pediatric oncology. In A. Gunn (Ed.), Cancer rehabilitation, pp. 195–218. New York: Raven Press.

22.

Weller, D. (1980). Comprehensive cancer care centers and the psychosocial needs of long-term survivors of childhood cancers. In J. Schuman and M. Kupst (Eds.), The child with cancer: Clinical approaches to psychosocial care – research in psychosocial aspects. Springfield: Thomas.

23.

Williams, S. (2000). Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept. Sociology of Health and Illness, 22, 40–67.

24.

Zaner, R. (1993). Troubled voices: Stories of ethics and illness. Cleveland, OH: Pilgrim Press.