Studies pertaining to language impairment in school-age autistic individuals underreport participant socio-demographics: A systematic review

Abstract

Autism research tends to exclude racially and ethnically minoritized autistic individuals, limiting the quality of the evidence base for characterizing and diagnosing language impairment in racially and ethnically minoritized autistic individuals. This systematic review examines reporting practices for participant socio-demographics in studies pertaining to language impairment in autistic school-age individuals using age-referenced assessments. This review was preregistered (PROSPERO: CRD42021260394) and followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses protocol. Database searches took place in August of 2021 in Linguistics and Language Behavior Abstracts, PsycINFO, PubMed, and the Directory of Open Access Journals, for publications during 1980–2021. Search terms included three essential concepts: autism, language, and age. Two coders independently screened and evaluated articles. Of qualifying studies (n = 59), 17 (29%) reported any information on participant race and ethnicity; in these studies, participants were at least 77% white. Thirty-two studies (54%) reported gender or sex; just 10 studies (17%) reported socio-economic status using multiple indicators. These findings indicate insufficient adherence to reporting guidelines and systematic exclusion of racially and ethnically minoritized. Future work must address replicable reporting and inclusion in autism research.

Lay abstract

Although exclusion of racially and ethnically minoritized autistic individuals from research is a long-standing issue, we have yet to determine how exclusion impacts areas of autism research important for identifying language impairment. Diagnosis depends on the quality of the evidence (i.e. research) and is often the pathway to gaining access to services. As a first step, we examined how research studies related to language impairment in school-age autistic individuals report participant socio-demographics. We analyzed reports using age-referenced assessments in English (n = 60), which are commonly used by both practitioners and researchers to diagnose or identify language impairment. Findings showed only 28% of studies reported any information on race and ethnicity; in these studies, most (at least 77%) of the participants were white. In addition, only 56% of studies reported gender or sex and specified what they were reporting (gender, sex, or gender identity). Just 17% reported socio-economic status using multiple indicators. Altogether, findings indicate broad issues with underreporting and exclusion of racially and ethnically minoritized individuals, which might overlay with other aspects of identity including socio-economic status. It is impossible to determine the extent and precise nature of exclusion without intersectional reporting. To ensure that language in autism research is representative of the autistic population, future research must implement reporting guidelines and broaden inclusion of who participates in research studies.

Keywords

autism spectrum disorder demographics language language impairment

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References

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). American Psychiatric Publishing.

American Psychological Association. (2020). Publication manual of the American Psychological Association: The official guide to APA style (7th ed.).

American Psychological Association. (2021). Equity, diversity, and inclusion in APA Journals. American Psychological Association. https://www.apa.org/pubs/authors/equity-diversity-inclusion#:~:text=Equity%2C%20diversity%2C%20and%20inclusion%20in%20APA%20Journals%E2%84%A2,in%20its%20practices%20and%20systems. Accessed on April 8, 2023.

American Psychological Association Journals. (2021). Equity, diversity, and inclusion toolkit for journal editors. https://www.apa.org/pubs/authors/equity-diversity-inclusion-toolkit

American Speech-Language-Hearing Association. (2022). 2021 demographic profile of ASHA members providing multilingual services. www.asha.org

*Anderson

D. K.

Lord

Risi

DiLavore

P. S.

Shulman

Thurm

Welch

Pickles

(2007). Patterns of growth in verbal abilities among children with autism spectrum disorder. Journal of Consulting and Clinical Psychology, 75(4), 594–604. https://doi.org/10.1037/0022-006X.75.4.594

Annamma

S. A.

Connor

Ferri

(2013). Dis/ability critical race studies (DisCrit): Theorizing at the intersections of race and dis/ability. Race Ethnicity and Education, 16(1), 1–31. https://doi.org/10.1080/13613324.2012.730511

Annamma

S. A.

Connor

D. J.

Ferri

B. A.

(2016). A truncated genealogy of DisCrit. In Connoa

D. J.

Ferri

B. A.

Annamma

S. A.

(Eds.), DisCrit: Disability studies and critical race theory in education (pp. 1–8). Teachers College Press.

Annamma

S. A.

Ferri

B. A.

Connor

D. J.

(2018). Disability critical race theory: Exploring the intersectional lineage, emergence, and potential futures of DisCrit in education. Review of Research in Education, 42(1), 46–71. https://doi.org/10.3102/0091732X18759041

10.

Annamma

S. A.

Jackson

D. D.

Morrison

(2017). Conceptualizing color-evasiveness: Using dis/ability critical race theory to expand a color-blind racial ideology in education and society. Race Ethnicity and Education, 20(2), 147–162. https://doi.org/10.1080/13613324.2016.1248837

11.

Australian Bureau of Statistics. (2018). Technical paper: Socio-economic indexes for areas (SEIFA) 2016 (2033.0.55.001).

12.

*Bal

V. H.

Fok

Lord

Smith

I. M.

Mirenda

Szatmari

Vaillancourt

Volden

Waddell

Zwaigenbaum

. (2020). Predictors of longer-term development of expressive language in two independent longitudinal cohorts of language-delayed preschoolers with autism spectrum disorder. Journal of Child Psychology and Psychiatry, 61(7), 826–835. https://doi.org/10.1111/jcpp.13117

13.

*Bal

V. H.

Katz

Bishop

S. L.

Krasileva

(2016). Understanding definitions of minimally verbal across instruments: Evidence for subgroups within minimally verbal children and adolescents with autism spectrum disorder. Journal of Child Psychology and Psychiatry, 57(12), 1424–1433. https://doi.org/10.1111/jcpp.12609

14.

*Barbaro

Dissanayake

(2012). Developmental profiles of infants and toddlers with autism spectrum disorders identified prospectively in a community-based setting. Journal of Autism and Developmental Disorders, 42(9), 1939–1948. https://doi.org/10.1007/s10803-012-1441-z

15.

*Bauer

G. R.

Churchill

S. M.

Mahendran

Walwyn

Lizotte

Villa-Rueda

A. A.

(2021). Intersectionality in quantitative research: A systematic review of its emergence and applications of theory and methods. SSM—Population Health, 14, Article 100798. https://doi.org/10.1016/j.ssmph.2021.100798

16.

*Bennett

Szatmari

Bryson

Volden

Zwaigenbaum

Vaccarella

Duku

Boyle

(2008). Differentiating autism and Asperger syndrome on the basis of language delay or impairment. Journal of Autism and Developmental Disorders, 38(4), 616–625. https://doi.org/10.1007/s10803-007-0428-7

17.

*Bennett

Szatmari

Georgiades

Hanna

Janus

Georgiades

Duku

Bryson

Fombonne

Smith

(2014). Language impairment and early social competence in preschoolers with autism spectrum disorders: A comparison of DSM-5 profiles. Journal of Autism and Developmental Disorders, 44(11), 2797–2808. https://doi.org/10.1007/s10803-014-2138-2

18.

Betz

S. K.

Eickhoff

J. R.

Sullivan

S. F.

(2013). Factors influencing the selection of standardized tests for the diagnosis of specific language impairment. Language, Speech, and Hearing Services in Schools, 44(2), 133–146. https://doi.org/10.1044/0161-1461(2012/12-0093)

19.

*Biller

M. F.

Johnson

C. J.

(2020). Examining useful spoken language in a minimally verbal child with autism spectrum disorder: A descriptive clinical single-case study. American Journal of Speech-Language Pathology, 29(3), 1361–1375. https://doi.org/10.1044/2020_AJSLP-19-00085

20.

Botha

(2022). Community psychology as reparations for violence in the construction of autism knowledge. In Milton

Ryan

(Eds.), The Routledge international handbook of critical autism studies (pp. 76–94). Routledge.

21.

Botha

Cage

(2022). “Autism research is in crisis”: A mixed method study of researcher’s constructions of autistic people and autism research. Frontiers in Psychology, 13, Article 7397. https://doi.org/10.3389/fpsyg.2022.1050897

22.

Botha

Gillespie-Lynch

(2022). Come as you are: Examining autistic identity development and the neurodiversity movement through an intersectional lens. Human Development, 66(2), 93–112. https://doi.org/10.1159/000524123

23.

*Botting

Conti-Ramsden

(2003). Autism, primary pragmatic difficulties, and specific language impairment: Can we distinguish them using psycholinguistic markers? Developmental Medicine & Child Neurology, 45(8), 515–524. https://doi.org/10.1111/j.1469-8749.2003.tb00951.x

24.

Broome

McCabe

Docking

Doble

Carrigg

(2021). Speech abilities in a heterogeneous group of children with autism. Journal of Speech, Language, and Hearing Research, 64(12), 4599–4613. https://doi.org/10.1044/2021_JSLHR-20-00651

25.

Broome

McCabe

Docking

Doble

Carrigg

(2022). Speech development across subgroups of autistic children: A longitudinal study. Journal of Autism and Developmental Disorders. Advance online publication. https://doi.org/10.1007/s10803-022-05561-8

26.

*Burton

J. M.

Creaghead

N. A.

Silbert

Breit-Smith

Duncan

A. W.

Grether

S. M.

(2020). Social communication and structural language of girls with high-functioning autism spectrum disorder. Language, Speech, and Hearing Services in Schools, 51(4), 1139–1155. https://doi.org/10.1044/2020_LSHSS-20-00004

27.

Catrone

R. G.

Baires

N. A.

Martin

M. R.

Brown-Hollie

J. P.

(2022). An intersectional examination of disability and race models in behavior-analytic practice. Behavior and Social Issues. Advance online publication. https://doi.org/10.1007/s42822-022-00116-z

28.

*Charman

Drew

Baird

(2003). Measuring early language development in preschool children with autism spectrum disorder using the MacArthur Communicative Development Inventory (Infant Form). Journal of Child Language, 30(1), 213–236. https://doi.org/10.1017/S0305000902005482

29.

Cochrane. (2022). A tool for assessing Risk of Bias due to Missing Evidence in a synthesis (ROB-ME). https://methods.cochrane.org/bias/resources/rob-me

30.

*Condouris

Meyer

Tager-Flusberg

(2003). The relationship between standardized measures of language and measures of spontaneous speech in children with autism. American Journal of Speech-Language Pathology, 12, 349–358. https://doi.org/10.1044/1058-0360(2003/080)

31.

Cosgrove

K. T.

McDermott

T. J.

White

E. J.

Mosconi

M. W.

Thompson

W. K.

Paulus

M. P.

Cardenas-Iniguez

Aupperle

R. L.

(2022). Limits to the generalizability of resting-state functional magnetic resonance imaging studies of youth: An examination of ABCD Study® baseline data. Brain Imaging and Behavior, 16(4), 1919–1925. https://doi.org/10.1007/s11682-022-00665-2

32.

Crenshaw

(1989). Demarginalising the intersection of race and sex: A black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics. University of Chicago Legal Forum, 140, 25–42. https://doi.org/10.4324/9781315582924-10

33.

Crenshaw

(1991). Mapping the margins: Intersectionality, identity politics, and violence against women of color. Stanford Law Review, 43(6), 1241–1499. https://doi.org/10.2307/1229039

34.

Croen

L. A.

Grether

J. K.

Hoogstrate

Selvin

(2002). The changing prevalence of autism in California. Journal of Autism and Developmental Disorders, 32(3), 207–215.

35.

Durkin

M. S.

Elsabbagh

Barbaro

Gladstone

Happe

Hoekstra

R. A.

Lee

L. C.

Rattazzi

Stapel-Wax

Stone

W. L.

Tager-Flusberg

Thurm

Tomlinson

Shih

(2015). Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide. Autism Research, 8(5), 473–476. https://doi.org/10.1002/aur.1575

36.

*Eigsti

I.-M.

Bennetto

(2009). Grammaticality judgments in autism: Deviance or delay. Journal of Child Language, 36(5), 999–1021. https://doi.org/10.1017/S0305000909009362

37.

*Eigsti

I.-M.

Bennetto

Dadlani

M. B.

(2007). Beyond pragmatics: Morphosyntactic development in autism. Journal of Autism and Developmental Disorders, 37(6), 1007–1023. https://doi.org/10.1007/s10803-006-0239-2

38.

*Ellawadi

A. B.

Ellis Weismer

(2015). Using spoken language benchmarks to characterize the expressive language skills of young children with autism spectrum disorders. American Journal of Speech-Language Pathology, 24(4), 696–707. https://doi.org/10.1044/2015_AJSLP-14-0190

39.

*Ellis Weismer

Gernsbacher

M. A.

Stronach

Karasinski

Eernisse

E. R.

Venker

C. E.

Sindberg

. (2011). Lexical and grammatical skills in toddlers on the autism spectrum compared to late talking toddlers. Journal of Autism and Developmental Disorders, 41(8), 1065–1075. https://doi.org/10.1007/s10803-010-1134-4

40.

*Ellis Weismer

Kover

S. T

. (2015). Preschool language variation, growth, and predictors in children on the autism spectrum. Journal of Child Psychology and Psychiatry, 56(12), 1327–1337. https://doi.org/10.1111/jcpp.12406

41.

*Ellis Weismer

Lord

Esler

. (2010). Early language patterns of toddlers on the autism spectrum compared to toddlers with developmental delay. Journal of Autism and Developmental Disorders, 40(10), 1259–1273. https://doi.org/10.1007/s10803-010-0983-1

42.

Flanagin

Frey

Christiansen

S. L

., & AMA Manual of Style Committee. (2021). Updated guidance on the reporting of race and ethnicity in medical and science journals. JAMA, 326(7), 621–627. https://doi.org/10.1001/jama.2021.13304

43.

*Gagnon

Zeribi

Douard

É.

Courchesne

Rodríguez-Herreros

Huguet

Jacquemont

Loum

M. A.

Mottron

(2021). Bayonet-shaped language development in autism with regression: A retrospective study. Molecular Autism, 12(1), 1–12. https://doi.org/10.1186/s13229-021-00444-8

44.

George

Duran

Norris

(2014). A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders. American Journal of Public Health, 104(2), e16–e31. https://doi.org/10.2105/AJPH.2013.301706

45.

Girolamo

Castro

Hendricks

A. E.

Ghali

Eigsti

I. M.

(2022). Implementation of open science practices in communication sciences and disorders research with Black, Indigenous, and People of Color. Journal of Speech, Language, & Hearing Research. Advance online publication. https://doi.org/10.1044/2022_JSLHR-22-00272

46.

Girolamo

Ghali

Campos

Ford

(2022). Interpretation and use of standardized language assessments for diverse school-age individuals. Perspectives of the ASHA Special Interest Groups, 7(4), 981–994. https://doi.org/10.1044/2022_PERSP-21-00322

47.

Girolamo

Parker

T. C.

Eigsti

I.-M.

(2022). Incorporating DisCrit theory to combat systematic exclusion of BIPOC in clinical neuroscience. Frontiers of Neuroscience, 8, Article 988092. https://doi.org/10.3389/fnins.2022.988092

48.

*Girolamo

Rice

M. L.

(2022). Language impairment in autistic adolescents and young adults. Journal of Speech, Language, and Hearing Research, 65, 3518–3530. https://doi.org/10.1044/2022_JSLHR-21-00517

49.

*Girolamo

T. M.

Rice

M. L.

Warren

S. F.

(2020). Assessment of language abilities in minority adolescents and young adults with Autism Spectrum Disorder and extensive special education needs: A pilot study. American Journal of Speech-Language Pathology, 29(2), 804–818. https://doi.org/10.1044/2020_AJSLP-19-00036

50.

*Haebig

Sterling

(2017). Investigating the receptive-expressive vocabulary profile in children with idiopathic ASD and comorbid ASD and fragile X syndrome. Journal of Autism and Developmental Disorders, 47(2), 260–274. https://doi.org/10.1007/s10803-016-2921-3

51.

Hart

C.M.

Curtin

(2021). Trajectories of vocabulary development in children with autism spectrum disorder across multiple measures. Journal of Autism and Developmental Disorders, 53, 1347–1362. https://doi.org/10.1007/s10803-021-05379-w

52.

*Hartley

S. L.

Buckendorf

G. R.

Haines

Hall

T. A.

Sikora

D. M.

(2008). The Oral and Written Language Scales: Is it useful for older children with autism spectrum disorder? Research in Autism Spectrum Disorders, 2(1), 137–146. https://doi.org/10.1016/j.rasd.2007.04.003

53.

Henrich

Heine

S. J.

Norenzayan

(2010). The weirdest people in the world? Behavioral and Brain Sciences, 33(2–3), 61–83. https://doi.org/10.1017/S0140525X0999152X

54.

Hollingshead

A. B.

(1957). Two factor index of social position (Mimeographed). Hollingshead.

55.

Hollingshead

A. B.

(2011). Four factor index of social status. Yale Journal of Sociology, 8, 21–51.

56.

*Huang

Finestack

(2020). Comparing morphosyntactic profiles of children with developmental language disorder or language disorder associated with autism spectrum disorder. American Journal of Speech-Language Pathology, 29(2), 714–731. https://doi.org/10.1044/2019_AJSLP-19-00207

57.

Individuals with Disabilities Education Improvement Act of 2004, 20 U.S.C. § 1400 et seq. (2018).

58.

Interagency Autism Coordinating Committee (IACC). (2020). IACC strategic plan for Autism Spectrum Disorder (ASD) 2018-2019 update. National Institutes of Health, U.S. Department of Health and Human Services. http://iacc.hhs.gov/strategic-plan/2019/

59.

JAMA Network Editors. (2020). AMA manual of style: A guide for authors and editors (11th ed.).

60.

*Jiménez

Haebig

Hills

T. T.

(2021). Identifying areas of overlap and distinction in early lexical profiles of children with autism spectrum disorder, late talkers, and typical talkers. Journal of Autism and Developmental Disorders, 51(9), 3109–3125. https://doi.org/10.1007/s10803-020-04772-1

61.

*Jokel

Armstrong

Gabis

Segal

(2021). Associations and dissociations among phonological processing skills, language skills and nonverbal cognition in individuals with Autism Spectrum Disorder. Folia Phoniatrica et Logopaedica, 73(3), 222–232. https://doi.org/10.1159/000505744

62.

Jones

D. R.

Mandell

D. S.

(2020). To address racial disparities in autism research, we must think globally, act locally. Autism, 24(7), 1587–1589. https://doi.org/10.1177/1362361320948313

63.

Joseph

Dohan

(2009). Diversity of participants in clinical trials in an academic medical center: The role of the “good study patient?” Cancer, 115(3), 608–615. https://doi.org/10.1002/cncr.24028

64.

*Jyotishi

Fein

D. A.

Naigles

L. R.

(2017). “Didn’t I just say that?” Comparing parent report and spontaneous speech as indicators of grammatical development. Research in Developmental Disabilities, 61, 32–43. https://doi.org/10.1016/j.ridd.2016.12.013

65.

*Kjelgaard

M. M.

Tager-Flusberg

(2001). An investigation of language impairment in autism: Implications for genetic subgroups. Language and Cognitive Processes, 16(2–3), 287–308. https://doi.org/10.1080/01690960042000058

66.

*Klusek

Martin

G. E.

Losh

(2014). A comparison of pragmatic language in boys with autism and fragile X syndrome. Journal of Speech, Language, and Hearing Research, 57(5), 1692–1707. https://doi.org/10.1044/2014_JSLHR-L-13-0064

67.

*Kover

S. T.

Ellis Weismer

(2014). Lexical characteristics of expressive vocabulary in toddlers with autism spectrum disorder. Journal of Speech, Language, and Hearing Research, 57(4), 1428–1441. https://doi.org/10.1044/2014_JSLHR-L-13-0006

68.

*Kover

S. T.

Haebig

Oakes

McDuffie

Hagerman

R. J.

Abbeduto

(2014). Sentence comprehension in boys with autism spectrum disorder. American Journal of Speech-language Pathology, 23(3), 385–394. https://doi.org/10.1044/2014_AJSLP-13-0073

69.

*Kover

S. T.

McDuffie

A. S.

Hagerman

R. J.

Abbeduto

(2013). Receptive vocabulary in boys with autism spectrum disorder: Cross-sectional developmental trajectories. Journal of Autism and Developmental Disorders, 43(11), 2696–2709. https://doi.org/10.1007/s10803-013-1823-x

70.

*Landa

R. J.

Goldberg

M. C.

(2005). Language, social, and executive functions in high functioning autism: A continuum of performance. Journal of Autism and Developmental Disorders, 35(5), 557–573. https://doi.org/10.1007/s10803-005-0001-1

71.

Lee

Meadan-Kaplansky

Sands

Terol

A. K.

Martin

M. R.

Yoon

(n.d.). The Cultural Adaptation Checklist (CAC): Quality indicators for cultural adaptation of intervention and practice. https://doi.org/10.31219/osf.io/r592m

72.

Lee

J. D.

Meadan

Sands

M. M.

Terol

A. K.

Martin

M. R.

Yoon

C. D

. (2023). The cultural adaptation checklist (CAC): Quality indicators for cultural adaptation of intervention and practice. International Journal of Developmental Disabilities. Advance online publication. https://doi.org/10.1080/20473869.2023.2176966

73.

*Lindgren

K. A.

Folstein

S. E.

Tomblin

J. B.

Tager-Flusberg

(2009). Language and reading abilities of children with autism spectrum disorders and specific language impairment and their first-degree relatives. Autism Research, 2(1), 22–38. https://doi.org/10.1002/aur.63

74.

Long

Renbarger

(2023). Persistence of poverty: How measures of socioeconomic status have changed over time. Educational Researcher, 52, 144–154. https://doi.org/10.3102/0013189X221141409

75.

*Luyster

Lopez

Lord

(2007). Characterizing communicative development in children referred for autism spectrum disorders using the MacArthur-Bates Communicative Development Inventory (CDI). Journal of Child Language, 34(3), 623–654. https://doi.org/10.1017/S0305000907008094

76.

*Luyster

R. J.

Kadlec

M. B.

Carter

Tager-Flusberg

(2008). Language assessment and development in toddlers with autism spectrum disorders. Journal of Autism and Developmental Disorders, 38(8), 1426–1438. https://doi.org/10.1007/s10803-007-0510-1

77.

Maenner

M. J.

Shaw

K. A.

Baio

Washington

Patrick

DiRienzo

Christensen

D. L.

Wiggins

L. D.

Pettygrove

Andrews

J. G.

Lopez

Hudson

Baroud

Schwenk

White

Rosenberg

C. R.

Lee

L. C.

Harrington

R. A.

Huston

. . . Dietz

P. M.

(2020). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2016. MMWR Surveillance Summaries, 69(4), 1–12. https://doi.org/10.15585/mmwr.ss6904a1

78.

Maenner

M. J.

Shaw

K. A.

Bakian

A. V.

Bilder

D. A.

Durkin

M. S.

Esler

Furnier

S. M.

Hallas

Hall-Lande

Hudson

Hughes

M. M.

Patrick

Pierce

Poynter

J. N.

Salinas

Shenouda

Vehorn

Warren

Constantino

J. N.

…Cogswell

M. E.

(2021). Prevalence and characteristics of autism spectrum disorder among children aged 8 years—autism and developmental disabilities monitoring network, 11 sites, United States, 2018. MMWR Surveillance Summaries, 70(11), 1–16. https://doi.org/10.15585/mmwr.ss7011a1

79.

Magiati

Tay

X. W.

Howlin

(2014). Cognitive, language, social and behavioural outcomes in adults with autism spectrum disorders: A systematic review of longitudinal follow-up studies in adulthood. Clinical Psychology Review, 34(1), 73–86. https://doi.org/10.1016/j.cpr.2013.11.002

80.

Malone

K. M.

Pearson

J. N.

Palazzo

K. N.

Manns

L. D.

Rivera

A. Q.

Mason Martin

D. L.

(2022). The scholarly neglect of Black autistic adults in autism research. Autism in Adulthood, 4, 271–280. https://doi.org/10.1089/aut.2021.0086

81.

Maye

Boyd

B. A.

Martínez-Pedraza

Halladay

Thurm

Mandell

D. S.

(2022). Biases, barriers, and possible solutions: Steps towards addressing autism researchers under-engagement with racially, ethnically, and socioeconomically diverse communities. Journal of Autism and Developmental Disorders, 52, 4206–4211. https://doi.org/10.1007/s10803-021-05250-y

82.

*McGregor

K. K.

Berns

A. J.

Owen

A. J.

Michels

S. A.

Duff

Bahnsen

A. J.

Lloyd

(2012). Associations between syntax and the lexicon among children with or without ASD and language impairment. Journal of Autism and Developmental Disorders, 42(1), 35–47.

83.

*Minshew

N. J.

Goldstein

Siegel

D. J.

(1995). Speech and language in high-functioning autistic individuals. Neuropsychology, 9(2), 255–261. https://doi.org/10.1037/0894-4105.9.2.255

84.

*Modyanova

Perovic

Wexler

(2017). Grammar Is differentially impaired in subgroups of Autism Spectrum Disorders: Evidence from an investigation of tense marking and morphosyntax. Frontiers in Psychology, 8, Article 320. https://doi.org/10.3389/fpsyg.2017.00320

85.

*Nadig

Mulligan

(2017). Intact non-word repetition and similar error patterns in language-matched children with autism spectrum disorders: A pilot study. Journal of Communication Disorders, 66, 13–21. https://doi.org/10.1016/j.jcomdis.2017.03.003

86.

National Institutes of Health. (2021). NIH-wide strategic plan for fiscal years 2021-2025. https://www.nih.gov/sites/default/files/about-nih/strategic-plan-fy2021-2025-508.pdf

87.

*Nevill

Hedley

Uljarević

Sahin

Zadek

Butter

Mulick

J. A.

(2019). Language profiles in young children with autism spectrum disorder: A community sample using multiple assessment instruments. Autism, 23(1), 141–153. https://doi.org/10.1177/1362361317726245

88.

Norbury

C. F.

Gooch

Wray

Baird

Charman

Simonoff

Vamvakas

Pickles

(2016). The impact of nonverbal ability on prevalence and clinical presentation of language disorder: Evidence from a population study. Journal of Child Psychology and Psychiatry, 57(11), 1247–1257. https://doi.org/10.1111/jcpp.12573

89.

Oetting

J. B.

(2020). From my perspective/opinion: General American English as a dialect: A call for change. ASHA Leader. https://leader.pubs.asha.org/do/10.1044/leader.FMP.25112020.12/

90.

Office of Management and Budget. (1997). Revisions to the standards for the classification of federal data on race and ethnicity (Federal Register Notice, Issue). https://obamawhitehouse.archives.gov/omb/fedreg_1997standards

91.

Oleson

J. J.

Brown

G. D.

McCreery

(2019). The evolution of statistical methods in speech, language, and hearing sciences. Journal of Speech, Language, and Hearing Research, 62(3), 498–506. https://doi.org/10.1044/2018_JSLHR-H-ASTM-18-0378

92.

Page

M. J.

McKenzie

J. E.

Bossuyt

P. M.

Boutron

Hoffmann

T. C.

Mulrow

C. D.

Shamseer

Tetzlaff

J. M.

Akl

E. A.

Brennan

S. E.

Chou

Glanville

Grimshaw

J. M.

Hróbjartsson

Lalu

M. M.

Loder

E. W.

Mayo-Wilson

McDonald

. . . Moher

(2021). The PRISMA 2020 statement: An updated guideline for reporting systematic reviews. PLoS Med, 18(3), Article e1003583. https://doi.org/10.1371/journal.pmed.1003583

93.

*Paul

Chawarska

Cicchetti

Volkmar

(2008). Language outcomes of toddlers with autism spectrum disorders: A two year follow-up. Autism Research, 1(2), 97–107. https://doi.org/10.1002/aur.12

94.

*Perovic

Modyanova

Wexler

(2013). Comparison of grammar in neurodevelopmental disorders: The case of binding in Williams syndrome and autism with and without language impairment. Language Acquisition, 20(2), 133–154. https://doi.org/10.1080/10489223.2013.766742

95.

*Plesa Skwerer

Jordan

S. E.

Brukilacchio

B. H.

Tager-Flusberg

. (2016). Comparing methods for assessing receptive language skills in minimally verbal children and adolescents with autism spectrum disorders. Autism, 20(5), 591–604. https://doi.org/10.1177/1362361315600146

96.

*Prescott

K. E.

Ellis Weismer

(2022). Children with ASD and communication regression: Examining pre-loss skills and later language outcomes through the preschool years. Journal of Autism and Developmental Disorders, 52(5), 1956–1970. https://doi.org/10.1007/s10803-021-05098-2

97.

*Rapin

Dunn

M. A.

Allen

D. A.

Stevens

M. C.

Fein

(2009). Subtypes of language disorders in school-age children with autism. Developmental Neuropsychology, 34(1), 66–84. https://doi.org/10.1080/87565640802564648

98.

*Reinhartsen

Tapia

Watson

Crais

Bradley

Fairchild

Herring

Daniels

(2019). Expressive dominant versus receptive dominant language patterns in young children: Findings from the study to explore early development. Journal of Autism and Developmental Disorders, 49(6), 2447–2460. https://doi.org/10.1007/s10803-019-03999-x

99.

*Riley

Paynter

Gilmore

(2019). Comparing the Mullen Scales of Early Learning and the Preschool Language Scale—Fifth Edition for young children with autism spectrum disorder. Advances in Neurodevelopmental Disorders, 3(1), 29–37. https://doi.org/10.1007/s41252-018-0084-2

100.

Rivera-Figueroa

Marfo

N. Y. A.

Eigsti

I.-M.

(2022). Parental perceptions of Autism Spectrum Disorder in Latinx and Black sociocultural contexts: A systematic review. American Journal on Intellectual and Developmental Disabilities, 127(1), 42–63. https://doi.org/10.1352/1944-7558-127.1.42

101.

*Roberts

J. A.

Rice

M. L.

Tager-Flusberg

(2004). Tense marking in children with autism. Applied Psycholinguistics, 25(3), 429–448. https://doi.org/10.1017/S0142716404001201

102.

Roberts

S. O.

Mortenson

(2022). Challenging the white = neutral framework in psychology. Perspectives on Psychological Science. Advance online publication. https://doi.org/10.1177/17456916221077117

103.

Roberts

S. O.

(in press). Dealing with diversity in psychology: Science and ideology. Perspectives on Psychological Science. https://doi.org/10.31234/osf.io/xk4yu

104.

Robinson

G. C.

Norton

P. C.

(2019). A decade of disproportionality: A state-level analysis of African American students enrolled in the primary disability category of speech or language impairment. Language, Speech, and Hearing Services in Schools, 50(2), 267–282. https://doi.org/10.1044/2018_LSHSS-17-0149

105.

Russell

Mandy

Elliott

White

Pittwood

Ford

(2019). Selection bias on intellectual ability in autism research: A cross-sectional review and meta-analysis. Molecular Autism, 10(1), 1–10. https://doi.org/10.1186/s13229-019-0260-x

106.

Saul

Norbury

(2020). Does phonetic repertoire in minimally verbal autistic preschoolers predict the severity of later expressive language impairment? Autism, 24(5), 1217–1231. https://doi.org/10.1177/1362361319898560

107.

Schott

Nonnemacher

Shea

(2021). Service use and unmet needs among adults with autism awaiting home-and community-based medicaid services. Journal of Autism and Developmental Disorders, 51, 1188–1200. https://doi.org/10.1007/s10803-020-04593-2

108.

Schott

Tao

Shea

(2022). Co-occurring conditions and racial-ethnic disparities: Medicaid enrolled adults on the autism spectrum. Autism Research, 15(1), 70–85. https://doi.org/10.1002/aur.2644

109.

Selin

C. M.

Rice

M. L.

Girolamo

T. M.

Wang

C. J.

(2022). Work setting effects on speech-language pathology practice: Implications for identification of children with specific language impairment. American Journal of Speech-Language Pathology, 31(2), 854–880. https://doi.org/10.1044/2021_AJSLP-21-00024

110.

Shaw

K. A.

McArthur

Hughes

M. M.

Bakian

A. V.

Lee

L. C.

Pettygrove

Maenner

M. J.

(2022). Progress and disparities in early identification of Autism Spectrum Disorder: Autism and developmental disabilities monitoring network 2002–2016. Journal of the American Academy of Child & Adolescent Psychiatry, 61, 905–914. https://doi.org/10.1016/j.jaac.2021.11.019

111.

Shenouda

Barrett

Davidow

A. L.

Halperin

Silenzio

V. M.

Zahorodny

(2022). Prevalence of autism spectrum disorder in a large, diverse metropolitan area: Variation by sociodemographic factors. Autism Research, 15(1), 146–155. https://doi.org/10.1002/aur.2628

112.

Shogren

K. A.

Wehmeyer

M. L.

Palmer

S. B.

Rifenbark

G. G.

Little

T. D.

(2015). Relationships between self-determination and postschool outcomes for youth with disabilities. The Journal of Special Education, 48(4), 256–267. https://doi.org/10.1177/0022466913489733

113.

Steinbrenner

J. R.

McIntyre

Rentschler

L. F.

Pearson

J. N.

Luelmo

Jaramillo

M. E.

Boyd

B. A.

Wong

Nowell

S. W.

Odom

S. L.

Hume

K. A.

(2022). Patterns in reporting and participant inclusion related to race and ethnicity in autism intervention literature: Data from a large-scale systematic review of evidence-based practices. Autism, 26, 2026–2040. https://doi.org/10.1177/13623613211072593

114.

*Sterling

(2018). Grammar in boys with idiopathic autism spectrum disorder and boys with fragile X syndrome plus autism spectrum disorder. Journal of Speech, Language, and Hearing Research, 61(4), 857–869. https://doi.org/10.1044/2017_JSLHR-L-17-0248

115.

Tager-Flusberg

Kasari

(2013). Minimally verbal school-aged children with autism spectrum disorder: The neglected end of the spectrum. Autism Research, 6(6), 468–478.

116.

*Thurm

Lord

Lee

L.-C.

Newschaffer

(2007). Predictors of language acquisition in preschool children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 37(9), 1721–1734. https://doi.org/10.1007/s10803-006-0300-1

117.

*Thurm

Manwaring

S. S.

Swineford

Farmer

(2015). Longitudinal study of symptom severity and language in minimally verbal children with autism. Journal of Child Psychology and Psychiatry, 56(1), 97–104. https://doi.org/10.1111/jcpp.12285

118.

*Thurman

A. J.

Hoyos Alvarez

(2020). Language performance in preschool-aged boys with nonsyndromic autism Spectrum disorder or fragile X syndrome. Journal of Autism and Developmental Disorders, 50(5), 1621–1638. https://doi.org/10.1007/s10803-019-03919-z

119.

Tomblin

J. B.

Records

N. L.

Buckwalter

Zhang

Smith

O’Brien

(1997). Prevalence of specific language impairment in kindergarten children. Journal of Speech, Language, and Hearing Research, 40(6), 1245–1260. https://doi.org/10.1044/jslhr.4006.1245

120.

Tomblin

J. B.

Records

N. L.

Zhang

(1996). A system for the diagnosis of specific language impairment in kindergarten children. Journal of Speech, Language, and Hearing Research, 39(6), 1284–1294. https://doi.org/10.1044/jshr.3906.1284

121.

Veritas Health Innovation. (2021). Covidence. https://www.covidence.org

122.

Viswanathan

Ansari

Berkman

Chang

Hartling

McPheeters

Santaguida

P. L.

Shamliyan

Singh

Tsertsvadze

Treadwell

(2012). Assessing the risk of bias of individual studies in systematic reviews of health care interventions: Methods guide for comparative effectiveness reviews. Agency for Healthcare Research and Quality. http://www.effectivehealthcare.ahrq.gov/

123.

*Volden

Smith

I. M.

Szatmari

Bryson

Fombonne

Mirenda

Roberts

Vaillancourt

Waddell

Zwaigenbaum

. (2011). Using the Preschool Language Scale to characterize language in preschoolers with autism spectrum disorders. American Journal of Speech-Language Pathology, 20(3), 200–208. https://doi.org/10.1044/1058-0360(2011/10-0035)

124.

Walsh

R. J.

Krabbendam

Dewinter

Begeer

(2018). Brief report: Gender identity differences in autistic adults: Associations with perceptual and socio-cognitive profiles. Journal of Autism and Developmental Disorders, 48(12), 4070–4078. https://doi.org/10.1007/s10803-018-3702-y

125.

Warrier

Greenberg

D. M.

Weir

Buckingham

Smith

Lai

M. C.

Allison

Baron-Cohen

(2020). Elevated rates of autism, other neurodevelopmental and psychiatric diagnoses, and autistic traits in transgender and gender-diverse individuals. Nature Communications, 11(1), 3959. https://doi.org/10.1038/s41467-020-17794-1

126.

West

E. A.

Travers

J. C.

Kemper

T. D.

Liberty

L. M.

Cote

D. L.

McCollow

M. M.

Stansberry Brusnahan

L. L.

(2016). Racial and ethnic diversity of participants in research supporting evidence-based practices for learners with autism spectrum disorder. The Journal of Special Education, 50(3), 151–163. https://doi.org/10.1177/0022466916632495

127.

*Whitehouse

A. J.

Barry

J. G.

Bishop

D. V.

(2008). Further defining the language impairment of autism: Is there a specific language impairment subtype? Journal of Communication Disorders, 41(4), 319–336. https://doi.org/10.1016/j.jcomdis.2008.01.002

128.

Wilton

L. S.

Bell

A. N.

Vahradyan

Kaiser

C. R.

(2020). Show don’t tell: Diversity Dishonesty harms racial/ethnic minorities at work. Personality and Social Psychology Bulletin, 46(8), 1171–1185. https://doi.org/10.1177/0146167219897149

129.

Wolfram

Ward

(2006). American voices: How dialects differ from coast to coast. Blackwell.

130.

*Worth

Reynolds

(2008). The assessment and identification of language impairment in Asperger’s syndrome: A case study. Child Language Teaching and Therapy, 24(1), 55–71. https://doi.org/10.1177/0265659007084568

131.

*Woynaroski

Yoder

Watson

L. R.

(2016). Atypical cross-modal profiles and longitudinal associations between vocabulary scores in initially minimally verbal children with ASD. Autism Research, 9(2), 301–310. https://doi.org/10.1002/aur.1516

132.

Zamora

Williams

M. E.

Higareda

Wheeler

B. Y.

Levitt

(2016). Brief report: Recruitment and retention of minority children for autism research. Journal of Autism and Developmental Disorders, 46(2), 698–703. https://doi.org/10.1007/s10803-015-2603-6

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