Many women with gynecological cancer report psychosocial distress, and clarification of the risks, vulnerabilities, and protective factors is required. The aim of this study was to investigate the lived experience of gynecological cancer patients and to understand the factors that underlie psychosocial distress. Semi-structured interviews with seven women diagnosed with gynecological cancer revealed the role of social support, or its absence, selective withholding of information, and existential loneliness in women’s experience of distress. Social support provided a buffer against distress, while feelings of alienation and being alone exacerbated distress. Interventions to address these concerns may lead to improved quality of life for this patient group.
AlferiSCarverCAntoniM. (2001) An exploratory study of social support, distress, and life disruption among low-income Hispanic women under treatment for early stage breast cancer. Health Psychology20: 41–46.
2.
Australian Institute of Health and Welfare & Cancer Australia (2012) Gynaecological cancers in Australia: An overview. Cancer series no. 70. Cat. no, CAN 66. Canberra, ACT, Australia: Australian Institute of Health and Welfare & Cancer Australia.
3.
BellK (2014) The breast-cancer-ization of cancer survivorship: Implications for experiences of the disease. Social Science & Medicine110: 56–63.
BroomAToveyP (2007) The dialectical tension between individuation and depersonalization in cancer patients’ mediation of complementary, alternative and biomedical cancer treatments. Sociology41: 1021–1039.
6.
BultzBHollandJ (2006) Emotional distress in patients with cancer: The sixth vital sign. Community Oncology3: 311–314.
7.
CullenKFergusKDasGuptaT. (2012) From “sex toy” to intrusive imposition: A qualitative examination of women’s experiences with vaginal dilator use following treatment for gynecological cancer. Journal of Sexual Medicine9: 1162–1173.
8.
DeckxLvan den AkkerMBuntinxF (2014) Risk factors for loneliness in patients with cancer: A systematic literature review and meta-analysis. European Journal of Oncology Nursing18: 466–477.
9.
EkwallETernestedtBSorbeB (2007) Recurrence of ovarian cancer—Living in limbo. Cancer Nursing30: 270–277.
10.
FerlayJSoerjomataramIErvikM. (2013) GLOBOCAN 2012 v1.0, cancer incidence and mortality worldwide. IARC CancerBase No. 11 (Internet). Lyon: International Agency for Research on Cancer. Available at: http://globocan.iarc.fr (accessed 30 October 2015).
11.
GoncalvesVJaysonGTarrierN (2008) A longitudinal investigation of psychological morbidity in patients with ovarian cancer. British Journal of Cancer99: 1794–1801.
12.
GuestGBunceAJohnsonL (2006) How many interviews are enough? An experiment with data saturation and variability. Field Methods18: 59–82.
13.
HelgesonVCohenS (1996) Social support and adjustment to cancer: Reconciling descriptive, correlational, and intervention research. Health Psychology15: 135–148.
14.
HipkinsJWhitworthMTarrierN. (2004) Social support, anxiety and depression after chemotherapy for ovarian cancer: A prospective study. British Journal of Health Psychology9: 569–581.
15.
JohnsonRGoldMWycheK (2010) Distress in women with gynecologic cancer. Psycho-Oncology19: 665–668.
16.
MayersASvartbergM (2001) Existential loneliness: A review of the concept, its psychosocial precipitants and psychotherapeutic implications for HIV-infected women. British Journal of Medical Psychology74: 539–553.
17.
PistrangNJayZGesslerS. (2012) Telephone peer support for women with gynaecological cancer: Recipients’ perspectives. Psycho-Oncology21: 1082–1090.
18.
PistrangNJayZGesslerS. (2013) Telephone peer support for women with gynaecological cancer: Benefits and challenges for supporters. Psycho-Oncology22: 886–894.
19.
PolusznyDBaumAEdwardsR. (2011) Posttraumatic growth in women one year after diagnosis for gynaecologic cancer or benign conditions. Journal of Psychosocial Oncology29: 561–572.
20.
QSR International (2012) NVivo Qualitative Data Analysis Software (10th edn). Doncaster, VIC, Australia: QSR International.
21.
SekseRGjengedalERaheimM (2013) Living in a changed female body after gynecological cancer. Health Care for Women International34: 14–33.
22.
SteeleRFitchM (2008) Supportive care needs of women with gynaecologic cancer. Cancer Nursing31: 284–291.
23.
UrbaniecOCollinsKDensonL. (2011) Gynecological cancer survivors: Assessment of psychological distress and unmet supportive care needs. Journal of Psychosocial Oncology29: 534–551.
24.
WenzelLDonnellyJFowlerJ. (2002) Resilience, reflection, and residual stress in ovarian cancer survivorship: A gynecologic oncology group study. Psycho-Oncology11: 142–153.
25.
WrayNMarkovicMMandersonL (2007) Discourses of normality and difference: Responses to diagnosis and treatment of gynaecological cancer of Australian women. Social Science & Medicine64: 2260–2271.
