Exploring the psychological impact of Mayer–Rokitansky–Küster–Hauser syndrome on young women: An interpretative phenomenological analysis

Abstract

This study explored five young women’s experiences of living with Mayer–Rokitansky–Küster–Hauser to offer a unique insight into the social challenges of Mayer–Rokitansky–Küster–Hauser in the transition to adulthood. Non-directive semi-structured interviews took place within the National Health Service settings, and transcripts were analysed using interpretative phenomenological analysis. Four inter-related themes were identified: hindering independence, a sensitivity to difference, managing intimacy and managing threat to identity. The women managed their presentation to others in order to minimise the impact of their diagnosis. Recommendations for further research and implications for services are noted.