Can a health-care website stimulate its members to become a `community of care and caring', facilitating both medical `information' and personal `support'? This study of MSWatch.com provides conceptual distinctions about `ties' to a `community' and raises questions about communications designed to serve patients with Multiple Sclerosis. An online survey of members of the website shows that members tend to: (1) make use of both its health-care information (care) and support (caring) functions, especially the former; (2) evaluate the website more highly overall if they make use of both information and support; (3) use the website the most during early stages of the disease; and (4) enhance their ties to the virtual community through using communication information and support.
Baym, N. (1995). The emergence of community in computer-mediated communication. In S. G. Jones (Ed.), Cybersociety: Computer-mediated communication and community (pp. 138-163). Thousand Oaks, CA: Sage.
2.
Bergeron, B. (1999). Where to find practical patient education materials . Postgraduate Medicine, 106(6), 35-38.
3.
Boczkowski, P. (1999). Mutual shaping of users and technologies in a national virtual community. Journal of Communication, 49(2), 86-108.
4.
Burrows, R., Nettleton, S., & Pleace, N. (2000). Virtual community care? Social policy and the emergence of computer mediated social support. Information, Communication & Society, 3(1), 95-121.
5.
Chamberlain, M.A. (1996). Health communication: making the most of new media technologies-an international overview. Journal of Health Communication, 1, 43-50.
6.
Dev, P., Winzelberg, A., Celio, A., & Taylor, C. (1999). Student bodies: Psycho-education communities on the Web. Proceedings AMIA Annual Symposium, pp. 485-494. Accessed from http://www.amia.org/pubs/symposia/0005741.pdf
7.
Edelstein, A., & Larsen, O. (1960). The weekly press' contribution to a sense of urban community. Journalism Quarterly, 37, 489-498.
8.
Eng, T., Maxfield, A., Patrick, K., Deering, M., Ratzan, S., & Gustafson, D. (1998). Access to health information and support: A public highway or a private road? Journal of the American Medical Association, 280(15), 1371-1375.
9.
Ferguson, T. (1997). Health online and the empowered medical consumer . Joint Commission Journal on Quality Improvement, 23, 251-257.
10.
Finn, J. (1999). An exploration of helping processes in an online self-help group focusing on issues of disability. Health & Social Work, 24(3), 220-231.
11.
Gonzalez-Heydrich, J., Bromley, D., Strohecker, C., Marks, J., DeMaso, D.R., Ackermann, E., Gibson, S., Shen, C., & Umaschi, M. (1998). Experience journal using computers to share personal stories about illness and medical intervention. Medinfo, 9(Pt 2), 1325-1329.
12.
Guard, J., Morris, T., Schick, L., Marine, S., Kaya, B., Haag, D., Shoemaker, S., & Tsipis, G. (1997). A community approach to serving health information needs: NetWellness. Health Care on the Internet, 1(1), 73-82.
13.
Henry, N. (1997). Getting acquainted with support and self-help groups on the Internet. Health Care on the Internet, 1(2), 27-32.
14.
Hillary, G. (1955). Definitions of community: Areas of agreement. Rural Sociology, 26, 779-791.
15.
Hillary, G. (1959). A critique of selected community concepts. Social Forces, 37(3), 237-242.
16.
Hillary, G. (1961). The folk village: A comparative analysis. Rural Sociology, 26, 335-353.
17.
Hillary, G. (1963). Villages, cities and total institutions. American Sociological Review, 28, 779-791.
18.
Janowitz, M. (1967). The community press in an urban setting, 2nd edn. Chicago, IL: University of Chicago Press.
19.
Jones, Q. (1997). Virtual-communities, virtual settlements and cyber archaeology: A theoretical outline. Journal of Computer-Mediated Communication, 3(3). Accessed 14 December 2001 from http://www.ascusc.org/jcmc/vol3/issue3/jones.html
20.
Jones, S.G. (1995). Understanding community in the information age. In S. G. Jones (Ed.), Cybersociety: Computer-mediated communications and community (pp. 10-35). Thousand Oaks, CA: Sage.
21.
Klemm, P., Repper, K., & Visich, L. (1998). A non-traditional cancer support group: The Internet . Computers in Nursing, 16(1), 31-36.
22.
Kraut, R., Lundmark, V., Patterson, M., Kiesler, S., Mukopadhyay, T., & Scherlis, W. (1998). Internet paradox: A social technology that reduces social involvement and psychological well-being? American Psychologist, 53, 1017-1031.
23.
Kurtz, L. (1997). Self-help and support groups: A handbook for practitioners . Thousand Oaks, CA: Sage.
24.
Lamberg, L. (1997). Online support group helps patients live with, learn more about the rare skin cancer CTCL MF. Journal of the American Medical Association, 277(18), 1422-1423.
25.
Lapachet, J.A.H. (2001). Virtual Communities: The 90's mind altering drug or facilitator of human interaction? Accessed 14 December 2001 from http://nestroy.wi-inf.uni-essen.de/Lv/seminare/ss96/jaye_asis.html
26.
Landro, L. (1999). Alone together: Cancer patients and survivors find treatment and support online. Oncologist, 4(1), 59-63.
27.
Lynch, G., Palmiter, S., & Tilt, C. (1999). The max model: A standard web site user model . Available at http://zing.ncsl.nist.gov/hfweb/proceedings/lynch/index.html
28.
McKay, H., Feil, E., Glasgow, R., & Brown, J. (1998). Feasibility and use of Internet support service for diabetes self-management. Diabetes Educator, 24(2), 174-179.
29.
Merton, R. (1950). Patterns of influence: A study of interpersonal influence and of communications behavior in a local community. In P. Lazarsfeld & F. Stanton (Eds.), Communications research 1948-49 (pp. 180-219). New York: Harper.
30.
Nadler, R. (2002). Private communication, Perseus Development Corporation, Braintree, MA, 4 February.
31.
Nilan, M., Kongsmak, K., Yusof, S., Mohd, S., & Annabi, H. (2002). Internet-based virtual communities: An examination of digital imaging communities. Paper presented at 52nd International Conference of International Communication Association , July, Seoul, Korea.
32.
Park, R. (1925). Community organization and the romantic temper . In R. Park, E. W. Burgess, & R. D. McKenzie (Eds.) The city (pp. 10-15). Chicago, IL: University of Chicago Press.
33.
Radin, P. (1998). So softly bind up the wound: An emerging communications model. Nova Scotia: BCANS Discussion Forum. Accessed 12 December 2001 from http://ns.ca/softly1.html
34.
Rainie, L., & Packel, D. (2001). More online, doing more. Washington, DC: Pew. Accessed 14 December 2001 from http://www.pewinternet.org/reports
35.
Reece, R. (1999). The Internet as an equalizing, energizing, and transforming force in patient and physician relationships. Connecticut Medicine, 63(11), 683-688.
36.
Reingold, H. (1993). The virtual community: Home-steading on the electronic frontier. Reading, MA: Addison-Wesley .
37.
Rothenbuhler, E., Mullen, L., DeLaurell, R., & Ryu, C. (1996). Communication and community attachment and involvement . Journalism and Mass Communication Quarterly, 73, 445-466.
38.
Sarason, B., Sarason, I., & Pierce, G. (1990). Social support: An interactional view. Wiley: New York.
39.
Shepherd, G., & Rothenbuhler, E. (2001). Communication and community . Mahwah, NJ: Erlbaum.
40.
Smith, C., Stamm, K., Weis, R., Nilan, M., Kennedy, K., Clark, F., & Weis, J. (2000). Disease state management on the Internet: Community survey at MSWatch.com. Poster presentation, Consortium of MS Centers, Halifax, Nova Scotia.
41.
Smith, M., & Kollock, P. (Eds.) (1998). Communities in cyberspace . London: Routledge.
42.
Stamm, K. (1985). Newspaper use and community ties: Toward a dynamic theory. Norwood, NJ: Ablex.
43.
Stamm, K. (2001). Of what use civic journalism: Do newspapers really make a difference in community participation? In G. Shepherd & E. Rothenbuhler (Eds.), Communication and Community (pp. 217-234). Norwood, NJ : Ablex.
44.
Stamm, K., Emig, A., & Hesse, M. (1997). The contribution of local media to community involvement . Journalism & Mass Communication Quarterly, 74, 97-107.
45.
Stamm, K., & Fortini-Campbell, L. (1979). Readership and community identification. Paper presented to Theory and Methodology Division, Association for Education in Journalism convention, August, Houston.
46.
Stamm, K., & Fortini-Campbell, L. (1983). The relationships of community ties to newspaper subscribing and use. Journalism Monographs, 84.
47.
Turner, J., Grube, J., & Meyers, J. (2001). Developing an optimal match within online communities: An exploration of CMC support communities and traditional support. Journal of Communication, 51(2), 231-251.
48.
Walther, J. (1995). Relational aspects of computer-mediated communication: Experimental observations over time. Organization Science , 6, 186-203.
49.
Walther, J. (1996). Computer-mediated communication: Impersonal, interpersonal and hyper-personal interaction. Communication Research, 21, 460-487.
50.
Weis, R. (1982). A dynamic view of questioning in an organization. Doctoral Dissertation, University of Washington.
51.
Weis, R., & Stamm, K. (1982). The relationship of specific news interests to stages of settling in a community. Newspaper Research Journal , 3(3), 60-68.
52.
Widman, L., & Tong, D. (1997). Requests for medical advice from patients and families to health care providers who publish on the World Wide Web. Archives of Internal Medicine, 157(2), 209-212.
53.
Wright, K. (2000). Computer-mediated social support, older adults, and coping. Journal of Communication, 50(3), 100-119.
54.
Zimmerman, D. (1987). Effects of computer conferencing on the language use of emotionally disturbed adolescents. Behavior Research Methods, Instruments, & Computers, 19, 224-230.
