The children of seriously ill parents are at risk for emotional disturbances. This review covers five former reviews, three theoretical articles, five case studies and 39 sample studies from the last 15 years. Methodological problems and shortcomings of previously published studies are discussed in detail. Based on former reviews and theoretical approaches, a developmental framework for children’s adaptation processes is elaborated. Empirical studies are analysed with a differentiation of how various results were correlated with the types of parental diseases and children’s age groups studied, as well as with various methodological designs and instruments applied. It appeared evident that children of seriously ill parents had higher scores on symptom scales than did controls, with a tendency towards internalizing symptomatology. In several studies, adolescent daughters of ill mothers appeared to be at highest risk for maladjustment. Ill parents’ subjective perception of their impairment predicted children’s symptoms better than the objective degree of severity of their disease. Although subgroups of children adjusted well, covariant protective mechanisms could not be clearly identified. In conclusion, suggestions for further research include ethical standards, a profound theoretical framework for any hypothesis to be tested, a combination of qualitative and quantitative methodology, the integration of the child’s subjective dimension by semi-structured or open interviews, and the consideration of coping as a process through longitudinal designs.
Achenbach, T.
(1991a). Manual for the Child Behaviour Checklist and 1991 Profile. Burlington: University of Vermont.
2.
Achenbach, T.
(1991b). Manual for the Youth Self Report and 1991 Profile. Burlington: University of Vermont.
3.
Armistead, L.
, Klein, K., & Forehand, R. (1995). Parental physical illness and child functioning. Special Issue: The impact of the family on child adjustment and psychopathology. Clinical Psychology Review, 15(5), 409-422.
4.
Armistead, L.
, Klein, K., Forehand, R., & Wierson, M. (1997). Disclosure of parental HIV infection to children in the families of men with hemophilia: Description, outcomes, and the role of family processes. Journal of Family Psychology, 11(1), 49-61.
5.
Armsden, G.
, & Lewis, F.M. (1993). The child’s adaptation to parental medical illness: Theory and clinical implications. Patient Education and Counseling, 22(3), 153-165.
6.
Armstrong, J.
(1988). Emotional functioning of multiple sclerosis patients from a family life cycle stage perspective. Dissertation Abstracts International, 48/10B.
7.
Arnaud, S.
(1992). Some psychological characteristics of children of multiple sclerotics. Psychosomatic Medicine, 21, 8-22.
8.
Bauer-Seidel, B.
(1996). MS-Ratgeber, Praktische Probleme der Multiplen Sklerose. Gustav Fischer Verlag.
9.
Bowlby, J.
(1988). A secure base: Clinical applications of attachment theory. London: Tavistock.
10.
Brech, C. (1996). Die Bedeutung der Beziehungserfahrungen adoleszenter Mädchen und junger Frauen für ihre weibliche Identitätsfindung vor dem Hintergrund der Brustkrebserkrankung der Mutter. Unpublished Psychologische Diplomarbeit, Universität Hamburg, Hamburg.
11.
(SigmundFreud Standard Edition, Vol. 2). Frankfurt/M.: Fischer Taschenbuch Verlag.
12.
Burnfield, A.
(1995). The psychosocial impact of MS. International MSJ, 2, 1.
13.
Christ, G.
, Siegel, K., Freund, B., Langosch, D., Hendersen, S., Sperber, D., & Weinstein, L. (1993). Impact of parental terminal cancer on latency-age children. American Journal of Orthopsychiatry, 63(3), 417-425.
14.
Christ, G.
, Siegel, K., & Sperber, D. (1994). Impact of parental terminal cancer on adolescents. American Journal of Orthopsychiatry, 64(4), 604-613.
15.
Compas, B.
, Worsham, N., Epping-Jordan, J., Howell, D., Grant, K.E., Mireault, G., & Malcarne, V. (1994). When mom or dad has cancer: Markers of psychological distress in cancer patients, spouses and children. Health Psychology, 13, 507-515.
16.
Compas, B.
, Worsham, N., Ey, S., & Howell, D. (1996). When mom or dad has cancer: II. Coping, cognitive appraisals, and psychological distress in children of cancer patients. Health Psychology, 15(3), 167-175.
17.
Crittenden, P.M.
(1992). Quality of attachment in the preschool years. Development and Psychopathology, 4, 209-241.
18.
Crittenden, P.M.
(1995). Attachment and psychopathology. In S. Goldberg, R. Muir, & J. Kerr (Eds.), John Bowlby’s attachment theory: Historical, clinical and social significance (pp. 367-406). New York: The Analytic Press.
Dierks, H. (1996). Kinder neurodermitiskranker Eltern – eine qualitative Untersuchung der Entwicklung der Eltern-Kind-Beziehung. Unpublished Psychologische Diplomarbeit, Universität Hamburg.
21.
Drotar, D.
(1994). Impact of parental health problems on children: Concepts, methods, and unanswered questions. Special Issue: The impact of parental health risks on pediatric populations. Journal of Pediatric Psychology, 19(5) 525-536.
22.
Dura, J.
, & Beck, S. (1988). A comparison of family functioning when mothers have chronic pain. Pain, 35, 79-89.
23.
Erikson, E.
(1959). Identity and the life cycle. New York: International Universities Press.
24.
Evans, R.
(1978). Children of dialysis patients and selection of dialysis setting. American Journal of Psychiatry, 135, 343-345
25.
Faithfull, J.
(1997). HIV-positive and AIDS-infected women: challenges and difficulties of mothering. American Journal of Orthopsychiatry, 67(1), 144-151.
26.
Freud, A.
(1965). Normalcy and pathology in development. New York: International Universities Press.
27.
Friedlander, R.
, & Viederman, N. (1982). Children of dialysis patients. American Journal of Psychiatry, 139, 100-103.
28.
Goldman, R.
, Cohn, G., & Longnecker, R. (1980). The family and home hemodialysis: Adolescents’ reactions to a father on home dialysis. International Journal of Psychiatry in Medicine, 10(3), 235-254.
29.
Grant, K.
, & Compas, B. (1995). Stress and anxious-depressed symptoms among adolescents: Searching for mechanisms of risk. Journal of Consulting and Clinical Psychology, 63(6), 1015-1021.
30.
Halperin, E.
(1993). Denial in the children whose parents died of AIDS. Child Psychiatry and Human Development, 23(4), 249-257.
31.
Havighurst, R.J.
(1953). Human development and education. New York: Longmans Green.
32.
Herriger, N.
(1993). Die ‘unverwundbare’ Familie. Soziale Arbeit, 42(5), 146-152.
33.
Hilton, B.
, & Elfert, H. (1996). Children’s experiences with mothers’ early breast cancer. Cancer Practice, 4(2), 96-104.
34.
Hoover, P.
, MacElveen, P. & Alexander, A. (1975). Adjustment of children with parents on hemodialysis. Nursing Times, 71, 1374-1376.
35.
Kestenberg, J.
(1975). Children and parents: Psychoanalytic studies in development. New York: Jason Aronson.
36.
Kopp, M.
, Richter, R., Rainer, J., Kopp-Wilfing, P., Rumpold, G., & Walter, M. (1995). Differences in family functioning between patients with chronic headache and patients with chronic low back pain. Pain, 63, 219-224.
37.
Kovacs, M.
(1980). Rating scales to assess depression in schoolage children. Acta Paedopsychiatrica, 46, 305-315.
38.
Le Vieux, J.
(1993). Terminal illness and death of father: Case of Celeste, age 51/2. In N. Boyd Webb (Ed.), Helping bereaved children: A handbook for practitioners, (pp. 81-95). New York: Guilford Press.
39.
Levine Batten, H.
, & Krieger Gardner, J. (1993). Adjustment of adult children of parents with MS. MA: Institute for Health Policy.
40.
Lewandowski, L.A.
(1992). Needs of children during the critical illness of a parent or sibling. Critical Care Nursing Clinics of North America, 4, 573-585.
41.
Lewis, F.
(1986). The impact of cancer on the family: A critical analysis of the research literature. Patient Education and Counseling, 8, 266-289.
42.
Lewis, F.
, Ellison, E., & Woods, N. (1985). The impact of breast cancer on the family. Seminars in Oncology Nursing, 1(3), 206-213.
43.
Lewis, F.
, Hammond, M., & Woods, N. (1993). The family’s functioning with newly diagnosed breast cancer in the mother: The development of an explanatory model. Journal of Behavioral Medicine, 16(4), 351-370.
44.
Lewis, F.
, Zahlis, E., Shands, M., Sinsheimer, J., & Hammond, M. (1996). The functioning of single women with breast cancer and their school-aged children. Cancer Practice, 4(1), 15-24.
45.
Lussier, A.
(1980). The physical handicap and the body ego (1). International Journal for Psycho-Analysis, 61, 179-185.
46.
Mass, M.
, & Kaplan De-Nour, A. (1975). Reactions of families to chronic hemodialysis. Psychotherapy and Psychosomatics, 26, 20-26.
47.
Maurin, J.
, & Schenkel, J. (1976). A study of the family unit’s response to hemodialysis. Journal of Psychosomatic Research, 20, 163-168.
48.
Mikail, S.
, & von Baeyer, C. (1990). Pain, somatic focus, and emotional adjustment in children of chronic headache suffers and controls. Social Science and Medicine, 31, 51-59.
49.
Mlott, S.
, & Vale, W. (1982). Hemodialysis: Adjustment difficulties of patient and family. Southern Medical Journal, 75(11), 1366-1368.
50.
Moguilner, M.
, Baumann, A., & Kaplan De-Nour, A. (1988). The adjustment of children and parents to chronic hemodialysis. Psychosomatics, 29, 289-294.
51.
Morgan, J.
, Sanford, M., & Johnson, C. (1992). The impact of a physically ill parent on adolescents: Cross-sectional findings from a clinic population. Canadian Journal of Psychiatry, 37(6), 423-427.
52.
National Center for Health Statistics
. (1993). Advanced data from vital and health statistics: Numbers 111–120. National Center for Health Statistics Vital Health Statistics16(12).
53.
Power, P.
(1985). Family coping behaviours in chronic illness: A rehabilitation perspective. Rehabilitation Literature, 46, 78-83.
54.
Reynolds, C.
, & Richmond, B. (1978). What I think and feel: A revised measure of children’s manifest anxiety. Journal of Abnormal Child Psychology, 6, 271-280.
55.
Riedesser, P.
(1995). Die Reaktion auf die Krebserkrankung eines Elternteils. Pro Familia Magazin, 23(4), 7-9.
56.
Ritter, K.
(1976). Psychologische Probleme in Familien von Heimdialysepatienten. Therapiewoche, 26, 2593-2598.
57.
Romer, G.
, & Riedesser, P. (1999). Prävention psychischer Störungen bei Kindern und Jugendlichen: Perspektiven für die Beziehungsberatung. In G.J. Suess & W.-K.P. Pfeifer (Eds.), Frühe Hilfen – die Anwendung von Bindungs- und Kleinkindforschung in Erziehung, Beratung und Therapie (pp. 65-85). Gießen: Psychosozial Verlag.
58.
Rost, R. (1992). Psychosoziale Probleme von Kindern körperlich kranker Eltern – einLiteraturüberblick. Unpublished Medizinische Dissertation, Albert-Ludwigs-Universität Freiburg.
59.
Rotheram Borus, M.
, Murphy, D., Miller, S., & Draimin, B. (1997). An intervention for adolescents whose parents are living with AIDS. Clinical Child Psychology and Psychiatry, 2(2), 201-219.
60.
Rotheram-Borus, M.
, Robin, L., Reid, H., & Draimin, B. (1998). Parent–adolescent conflict and stress when parents are living with AIDS. Family Process, 37(1), 83-94.
61.
Roy, R.
(1990). Consequences of parental illness on children: A review. Social Work & Social Sciences Review, 2(2), 109-121.
62.
Rutter, M.
(1966). Children of sick parents. An environmental and psychiatric study. London: Oxford University Press.
63.
Schulte-Markwort, M.
(1996). Krankheitskonzepte von psychisch kranken Kindern. Habilitation für das Fach Kinder- und Jugendpsychiatrie. Medizinische Fakultät. Universität zu Lübeck.
64.
Siegel, K.
, Mesagno, F., Karus, D., Christ, G., Banks, K., & Moynihan, R. (1992). Psychosocial adjustment of children with a terminally ill parent. Journal of the American Academy of Child and Adolescent Psychiatry, 31(2), 327-333.
65.
Siegel, K.
, Karus, D., & Raveis V.H. (1996). Adjustment of children facing the death of a parent due to cancer. Journal of the American Academy of Child Adolescent Psychiatry, 35(4), 442-450.
66.
Siegel, K.
, Raveis V.H., & Karus, D. (1996). Pattern of communication with children when a parent has cancer. In L. Baider, G.L. Cooper, & A.K. De-Nour (Eds.), Cancer and the family (pp. 109-128). Chichester: John Wiley & Sons.
67.
Steck, B.
, Kappos, L., & Bürgin, D. (1998). Psychosoziale Auswirkungen Multipler Sclerose auf Fa milie und Kinder. Schweizer Archiv für Neurologie und Psychiatrie, 150(4), 161-168.
68.
Steele, R.G.
, Forehand, R., & Armistead, L. (1997). The role of family processes and coping strategies in the relationship between parental chronic illness and childhood internalizing problems. Journal of Abnormal Child Psychology, 25(2), 83-94.
69.
Steele, R.G.
, Tripp, G., Kotchick, B.A., Summers, P., & Forehand, R. (1997). Family members’ uncertainty about parental chronic illness: The relationship of hemophilia and HIV infection to child functioning. Journal of Pediatric Psychology, 22(4), 577-591.
70.
Tsaltas, M.
(1976). Children of home dialysis patients. JAMA, 236(24), 2764-2766.
71.
Weber, H.
(1992). Belastungsverarbeitung. Zeitschrift für Klinische Psychologie, 1, 17-27.
72.
Weinert, C.
, & Cantanzaro, M. (1994). Challenging assumptions about multiple sclerosis. Rehabiltation Nursing Research, 3, 122-129.
73.
Weingarten, K.
, & Worthen, M. (1997). A narrative approach to understanding the illness experiences of a mother and daughter. Families, Systems and Health, 15(1), 41-54.
74.
Welch, A.
, Wadsworth, M., & Compas, B. (1996). Adjustment of children and adolescents to parental cancer: Parents’ and children’s perspectives. Cancer, 77(7), 1409-1418.
75.
Winckowski, A.
(1976). The dialyzing father: A study of adolescent coping responses. Dissertation Abstract International, 37, 180-183.
76.
Worsham, N.
, Compas, B., & Sydney, E. (1997). Children’s coping with parental illness. In Wolichik & Sandler (Eds.), Handbook of children’s coping: Linking theory and intervention (pp. 195-213). New York: Plenum Press.
