MeTooMS: Sexual,physical,and emotional abuse experience among women with multiple sclerosis

Abstract

Background:

Sexual and physical violence against disabled individuals is widespread and linked to negative public health and social outcomes. The real-world prevalence of abuse in women with multiple sclerosis (MS) has not been well studied.

Objectives:

To explore abuse prevalence in a real-world cohort of females with MS attending an academic MS Center.

Methods:

Prospective and retrospective abuse data were confidentially collected during neurology clinic visits and extracted from medical records for women attending an academic MS Center. Self-reported and provider-documented prevalence of abuse experiences were correlated with socio-economic and disease-specific factors.

Results:

In total, 200 women completed prospective questionnaires, and 121 non-overlapping independent health records were retrospectively reviewed. Mean age (SD) was 49.055 (11.39). Seventy-six (38%) reported lifetime abuse incidents; 15% were abused within the previous year. Intimate partners were the most likely verbal (p ⩽ 0.01)) and physical (p = 0.04) abuse perpetrators. Neurologic disability correlated with greater likelihood of verbal abuse (p = 0.021) in prospective cohort. There was no billing or encounter documentation for any form of abuse.

Conclusion:

Intimate partner violence is common in women with MS, correlates with neurologic disability, and is underreported by the health system. Future research needs to focus on abuse detection and mitigation strategies.

Keywords

Multiple sclerosis emotional abuse physical abuse sexual abuse #MeToo

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References

Nosek

Foley

Hughes

, et al. Vulnerabilities for abuse among women with disabilities. Sexual Disabil 2001; 19(3): 177–189.

Okoro

Hollis

Cyrus

, et al. Prevalence of disabilities and health care access by disability status and type among adults—United States, 2016. Morb Mortal Wkly Rep 2018; 67(32): 882–887.

Breiding

Armour

. The association between disability and intimate partner violence in the United States. Ann Epidemiol 2015; 25(6): 455–457.

Plummer

Findley

. Women with disabilities’ experience with physical and sexual abuse: Review of the literature and implications for the field. Trauma Violence Abuse 2012; 13(1): 15–29.

Schulman

Depold

. The American Academy of Neurology position statement on abuse and violence. Neurology 2012; 78: 433–435.

Andrews

Veronen

. Sexual assault and people with disabilities. J Soc Work Hum Sex 1993; 8(2): 137–159.

Brownridge

. Partner violence against women with disabilities: Prevalence, risk, and explanations. Violence against Women 2006; 12(9): 805–822.

Curry

Hassouneh-Phillips

Johnston-Silverberg

. Abuse of women with disabilities: An ecological model and review. Violence against Women 2001; 7(1): 60–79.

Wallin

Culpepper

Campbell

, et al. The prevalence of MS in the United States: A population-based estimate using health claims data. Neurology 2019; 92(10): e1029–e1040.

10.

Riise

Mohr

Munger

, et al. Stress and the risk of multiple sclerosis. Neurology 2011; 76(22): 1866–1871.

11.

Copel

. Partner abuse in physically disabled women: A proposed model for understanding intimate partner violence. Perspect Psychiatr Care 2006; 42(2): 114–129.

12.

McCauley

Kern

Kolodner

, et al. The “battering syndrome”: Prevalence and clinical characteristics of domestic violence in primary care internal medicine practices. Ann Intern Med 1995; 123(10): 737–746.

13.

Minden

Frankel

Smith

, et al. Abuse of people with multiple sclerosis. Report to the National Multiple Sclerosis Society, 1999, https://www.nationalmssociety.org/NationalMSSociety/media/MSNationalFiles/Brochures/Clinical-Bulletin-Emotional-Disorders-5-5-14.pdf

14.

Rodino-Colocino

. Me too, #MeToo: Countering cruelty with empathy. Commun Crit Cult Stud 2018; 15(1): 96–100.

15.

Alejandra

Francisco

Zoila

. Domestic violence in multiple sclerosis: Barrier to neurorehabilitation. J Neurol Neurorehabil Res 2017; 2(1): 21–24.

16.

Sobsey

. Violence and abuse in the lives of people with disabilities: The end of silence acceptance? Toronto, ON, Canada: Paul H. Brookes Publishers, 1994.

17.

Sánchez-Guzmán

Paz-Rodríguez

Espinola-Nadurille

, et al. Domestic violence in dyads patient caregiver of neurological diseases. Med Gazet Mexico 2015; 151: 3–6.

18.

World Health Organization. World report on violence and health: Summary. Washington, DC: Pan American Health Organization, 2002.

19.

McFarlane

Hughes

Nosek

, et al. Abuse assessment screen-disability (AAS-D): Measuring frequency, type, and perpetrator of abuse toward women with physical disabilities. J Womens Health Gend Based Med 2001; 10(9): 861–866.

20.

World Health Organization. Violence against women, 2017, https://www.who.int/news-room/fact-sheets/detail/violence-against-women

21.

Buttell

Ferreira

. The hidden disaster of COVID-19: Intimate partner violence. Psychol Trauma 2020; 12(S1): S197–S198.

22.

Jewkes

Fulu

Tabassam Naved

, et al. Women’s and men’s reports of past-year prevalence of intimate partner violence and rape and women’s risk factors for intimate partner violence: A multicountry cross-sectional study in Asia and the Pacific. PLoS Med 2017; 14(9): e1002381.

23.

Findley

Plummer

. Women with disabilities’ experience with physical and sexual abuse: Exploring international evidence, 2013, https://socialwork.rutgers.edu/sites/default/files/research_report_10.pdf

24.

Pharr

Bungum

. Health disparities experienced by people with disabilities in the United States: A behavioral risk factor surveillance system study. Glob J Health Sci 2012; 4(6): 99–108.

25.

Coker

Smith

Fadden

. Intimate partner violence and disabilities among women attending family practice clinics. J Womens Health 2005; 14(9): 829–838.

26.

O’Leary

Lammers

Mageras

, et al. Relationship between domestic violence and multiple sclerosis. Int J MS Care 2008; 10(2): 27–32.

27.

Smith

. Disability, gender and intimate partner violence: Relationships from the behavioral risk factor surveillance system. Sexual Disabil 2008; 26(1): 15–28.

28.

Powers

Curry

Oschwald

, et al. Barriers and strategies in addressing abuse: A survey of disabled women’s experiences. J Rehabil 2002; 68(1): 4–13.

29.

Morrison

Sorkin

Mosqueda

, et al. Abuse and neglect of people with multiple sclerosis: A survey with the North American Research Committee on Multiple Sclerosis (NARCOMS). Mult Scler Relat Disord 2020; 46: 102530.

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