Around the United States, carceral medical records are often sequestered from incarcerated patients and their external physicians, hampering the provision of both acute and transitional care. Despite laws meant to ensure better ownership and portability of electronic health records (EHRs), many carceral institutions have not implemented interoperable systems, nor do incarcerated patients have easy access to their medical information. These issues can compromise care for a patient population that experiences higher rates of many diseases, hospitalization, and death compared with the general public. This article provides a review of health information legislation by a multidisciplinary group of attorneys and physicians with a targeted literature review discussing the current state of medical record access for patients behind bars, the health dangers associated with this lack of access, and solutions to improve the equity of EHR access.
Arvisais-AnhaltS., LauM., LehmannC. U., HolmgrenA. J., MedfordR. J., RamirezC. M., & ChenC. N. (2022). The 21st Century Cures Act and multiuser electronic health record access: Potential pitfalls of information release. Journal of Medical Internet Research, 24(2), e34085. 10.2196/34085
BurdeH. (2011). The HITECH Act: An overview. Virtual Mentor, 13(3), 172–175. 10.1001/virtualmentor.2011.13.3.hlaw1-1103
4.
ButlerB. (2014). Health information exchange between jails and their communities: A bridge that is needed under healthcare reform. Perspectives in Health Information Management, 11(Winter), 1b. https://www.ncbi.nlm.nih.gov/pubmed/24808809
DumontD. M., BrockmannB., DickmanS., AlexanderN., & RichJ. D. (2012). Public health and the epidemic of incarceration. Annual Review of Public Health, 33, 325–339. 10.1146/annurev-publhealth-031811-124614
7.
FrankJ. W., LinderJ. A., BeckerW. C., FiellinD. A., & WangE. A. (2014). Increased hospital and emergency department utilization by individuals with recent criminal justice involvement: Results of a national survey. Journal of General Internal Medicine, 29(9), 1226–1233. 10.1007/s11606-014-2877-y
8.
GlowallaG., & SubbianV. (2022). Data sharing between jail and community health systems: Missing links and lessons for re-entry success. Studies in Health Technology and Informatics, 290, 47–51. 10.3233/SHTI220029
9.
GoldsteinM. M. (2014). Health information privacy and health information technology in the US correctional setting. American Journal of Public Health, 104(5), 803–809. 10.2105/AJPH.2013.301845
10.
HaddenK. B., PuglisiL., PrinceL., AminawungJ. A., ShavitS., PflaumD., CalderonJ., WangE. A., & ZallerN. (2018). Health literacy among a formerly incarcerated population using data from the Transitions Clinic Network. Journal of Urban Health: bulletin of the New York Academy of Medicine, 95(4), 547–555. 10.1007/s11524-018-0276-0
11.
MartelleM., FarberB., StazeskyR., DickeyN., ParsonsA., & VentersH. (2015). Meaningful use of an electronic health record in the New York City jail system. American Journal of Public Health, 105(9), 1752–1754. 10.2105/AJPH.2015.302796
12.
MaruschakL., BronsonJ., & AlperM. (2021). Survey of prison inmates, 2016: Disabilities reported by prisoners (No. NCJ 252642). U.S. Department of Justice Office of Justice Programs. https://bjs.ojp.gov/content/pub/pdf/drpspi16st.pdf
NevesA. L., FreiseL., LaranjoL., CarterA. W., DarziA., & MayerE. (2020). Impact of providing patients access to electronic health records on quality and safety of care: A systematic review and meta-analysis. BMJ Quality & Safety, 29(12), 1019–1032. 10.1136/bmjqs-2019-010581
OjedaV. D., GronemanA., Hiller-VenegasS., MorenoM., SchulerB., BarksdaleJ., BerliantE., RomeroN., EdwardsT. M., ListerZ., GilmerT., GainesT., & BazziA. (2024). A randomized clinical trial testing a health literacy intervention to reduce disparities in access to care among justice-impacted adults (JIA). Health & Justice, 12(1), 34. 10.1186/s40352-024-00284-7
18.
OlakunleO., GourisankarA., SpencerM., ZeidanA., & KumarN. (2024). Like the rest of us, incarcerated people should have access to their medical records. Health Affairs. 10.1377/forefront.20240606.345904
19.
OrrD., & HellersteinD. (2002). HIPAA in state correctional systems. Journal of Correctional Health Care, 9(3), 345–359. 10.1177/107834580200900309
20.
PattersonE. J. (2013). The dose-response of time served in prison on mortality: New York State, 1989–2003. American Journal of Public Health, 103(3), 523–528. 10.2105/AJPH.2012.301148
21.
TapuriaA., PoratT., KalraD., DsouzaG., XiaohuiS., & CurcinV. (2021). Impact of patient access to their electronic health record: Systematic review. Informatics for Health & Social Care, 46(2), 192–204. 10.1080/17538157.2021.1879810
22.
U.S. Department of Health and Human Services. (2007). To whom does the Privacy Rule apply and whom will it affect? National Institutes of Health. https://privacyruleandresearch.nih.gov/pr_06.asp
23.
WalkerJ., LeveilleS., BellS., ChimowitzH., DongZ., ElmoreJ. G., FernandezL., FossaA., GerardM., FitzgeraldP., HarcourtK., JacksonS., PayneT. H., PerezJ., ShucardH., StametzR., DesRochesC., & DelbancoT. (2019). OpenNotes after 7 years: Patient experiences with ongoing access to their clinicians’ outpatient visit notes. Journal of Medical Internet Research, 21(5), e13876. 10.2196/13876
24.
WoodsG. T., CrossK., WilliamsB. C., & WinkelmanT. N. A. (2019). Accessing prison medical records in the United States: A national analysis, 2018. Journal of General Internal Medicine, 34(11), 2331–2332. 10.1007/s11606-019-05137-w
