When a disease turns terminal, end-of-life care replaces questions of cure and healing. Patients and relatives face the transition from health care to end-of-life care and the decision for a type of care (family, hospital, hospice). When people with a specific cultural background tend not to use available institutional support, the question of barriers and their location should be raised. In a study, patients, relatives, and service providers were asked about such barriers in the access of palliative care for Russian-speaking immigrants in Germany. Barriers in the health care system and in the possible clients’ individual or cultural backgrounds and their diverging or overlapping perceptions as well as interpretive patterns of using hospices could be identified. This article demonstrates for what we need data in analyzing cultural and individual decision dilemmas in Neo-Liberal Times in the encounter of diverse cultural values for improving service situations.
BognerA.LittigB.MenzW. (2018). Generating qualitative data with experts and elites. In FlickU. (Ed.), The SAGE handbook of qualitative data collection (pp. 652-667). London, England: Sage.
3.
BuryM. (1982). Chronic illness as biographical disruption. Sociology of Health & Illness, 4, 167-182.
4.
CharmazK. (2010). Studying the experience of chronic illness through grounded theory. In ScamblerG.ScamblerS. (Eds.), New directions in the sociology of chronic and disabling conditions: Assaults on the lifeworld (pp. 8-36). Basingstoke, UK: Palgrave Macmillan.
5.
EwersM. (2005). End-of-life care und public-health. In EwersM.SchaefferD. (Eds.), Am Ende des Lebens [At the end of life] (pp. 41-67). Bern, Switzerland: Huber.
6.
FairclothC. A.BoylsteinC.RittmanM.YoungM. E.GubriumJ. (2004). Sudden illness and biographical flow in narratives of stroke recovery. Sociology of Health & Illness, 26, 242-261.
7.
FlickU. (2014). An introduction to qualitative research (5th ed.). London, England: Sage.
8.
FlickU. (2015). Qualitative inquiry—2.0 at 20? Developments, trends, and challenges for the politics of research. Qualitative Inquiry, 217, 599-608.
9.
FlickU. (2018). Doing Triangulation and Mixed Methods. London, England: Sage.
10.
FlickU.RöhnschG. (2014). Migrating diseases: Triangulating approaches—Applying qualitative inquiry as a global endeavor. Qualitative Inquiry, 20, 1096-1109.
11.
GlaserB.StraussA. (1971). Status passage. London, England: Routledge.
12.
GrammaticoD. (2008). Hospiz- und Palliativarbeit für Menschen mit Migrationshintergrund [Hospice and pallative care work for people with migration backgrounds]. Münster, Germany: Alpha-Westfalen.
13.
HolsteinJ. A.MillerG. (2003). Social constructionism and social problems work. In HolsteinJ. A.MillerG. (Eds.), Challenges and choices: Constructionist perspectives on social problems (pp. 70-91). New York, NY: Aldine de Gruyter.
14.
KohliM. (1985). Die Institutionalisierung des Lebenslaufs. Historische Befunde und theoretische Argumente. Kölner Zeitschrift Für Soziologie Und Sozialpsychologie [The institutionalization of the life course. Historical findings and theoretical arguments], 37(1), S1-29.
15.
KörberK. (2009). Puschkin oder Thora? [Jewish Life in Germany] Jüdisches Leben in Deutschland. In BrunnerJ.LaviS (Eds.), Juden und Muslime in Deutschland. Recht, Religion, Identität [Jews and Muslims in Germany. Law, Religion, Identit] (pp. 233-254). Göttingen, Germany: Wallstein Verlag.
16.
LlewellynH.LowJ.SmithG.HopkinsK.BurnsA.JonesL. (2014). Narratives of continuity among older people with late stage chronic kidney disease who decline dialysis. Social Science & Medicine, 114, 49-56.
17.
MigalaS.FlickU. (2018). Individual needs, cultural barriers, public discourses. In DenzinN. K.GiardinaM. (Eds.), Qualitative inquiry in the public sphere (pp. 90-107). New York, NY: Routledge.
18.
OehmeA. (2013). Übergangsmanagement [Managing transition]. In SchröerW.StauberB.WaltherA.BöhnischL.LenzK. (Eds.), Handbuch Übergänge [Handbook Transitions] (pp. 791-810). Weinheim, Germany: Beltz Juventa.
19.
PoundP.GompertzP.EbrahimS. (1998). Illness in the context of older age: The case of stroke. Sociology of Health & Illness, 20, 489-506.
20.
SchenkL. (2011). Rekonstruktion der Vorstellungen vom Altern und von Einstellungen zur (stationären) Pflege bei Personen mit Migrationshintergrund [Reconstruction of representations of aging and attitudes towards (in patient) care held by people with a migration background] (Endbericht, Unter Mitarbeit von Roger Meyer, Andrea-Sophie Maier, Polina Aronson und Kübra Gül). (ed. by CharitéZentrum fürQualität in der Pflege,). Berlin, Germany: Zentrum für Qualität in der Lehre.
21.
SchneppW.DuijnsteeM.GrypdonckM. (2005). Migrationsspezifische Transitionen und Angehörigenpflege. Pflege [Migration specific Transitions and Care by Relavtives], 18, 305-312.
22.
SchönhuthM.KaiserM. (2015). Zuhause? Fremd? Eine Bestandsaufnahme [At home? Strange? A Stocktaking]. In KaiserM.SchönhuthM. (Eds.), Zuhause? Fremd?: Migrations- und Beheimatungsstrategien zwischen Deutschland und Eurasien [At home? Strange: Strategies of Migration and Providing a Home between Germany and Eurasia] (pp. 9-24). Bielefeld, Germany: Transcript.
Van GennepA. (1908/1960). The Rites of Passage (Translated by VizedomMonika B.CaffeeGabrielle L.). Chicago: Chicago University Press.
25.
VogelC. (2012). Generationenbeziehungen der (Spät-)Aussiedler. Forschungsstand und exemplarische Befunde zu Einstellungen [Generational relations of (late) repatriates. State of the research and exemplary findings about attitudes]. In Baykara-KrummeH.SchimanyP.Motel-KlingebielA. (Eds.), Viele Welten des Alterns. Ältere Migranten im alternden Deutschland (pp. 289-313). Wiesbaden, Germany: VS Verlag für Sozialwissenschaften.
26.
WilliamsS. J. (2000). Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept. Sociology of Health & Illness, 22,40-67.
