Fathers’ Ongoing Journey When a Child in the Family Has a Chronic Condition: A Meta-Synthesis

Abstract

This qualitative meta-synthesis was conducted with the aim to understand fathers’ experiences and involvement when their child has a chronic condition within family context. Family nurse researchers from five countries identified 19 studies through a systematic search. Inclusion criteria were: (a) fathers as primary informant; (b) children (<19 years) with a chronic condition; (c) written in English, Spanish, French, or Portuguese. Data were synthesized using thematic analysis. Four themes reflected fathers’ journey: “Juggling multiple roles” included protector, provider, and supporter; “Managing control” included relinquishing and regaining control; “Creating a new normal” addressed recovery; “Maintaining wellbeing” reflected multiple emotional responses and support found through partners, family, spirituality, and health care communities. Fathers desire to be involved in caring for their child with a chronic condition, yet involvement and experience are continually evolving due to various family needs. Health care providers should consider unconscious assumptions regarding fathers’ role in child care and encourage fathers’ involvement to facilitate family wellbeing.