Consumer Validation of an Index Characterizing the Functional Abilities of Young Children with Disabilities

Abstract

Current systems for characterizing infants and young children with disabilities have been associated with a number of problems. The ABILITIES Index was developed as a way to describe the functional abilities and limitations of children across nine domains. This article reports the results of a survey of parents and professionals in early intervention programs to determine their perceptions of the ABILITIES Index as a means of assessing its consumer validity. A total of 209 parents, 91 teachers, 93 therapists, and 55 Developmental Evaluation Center specialists in early intervention and preschool programs in North Carolina evaluated the ABILITIES Index. Mean satisfaction ratings across five dimensions were generally positive, with parents consistently rating the instrument more positively than other consumers. Subsequent analyses indicated that, overall, level of education did not predict positive appraisal of the ABILITIES Index. Consumers offered a number of suggestions for how the Index could be used in early intervention.

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References

Bailey, D.B. (1991). Issues and perspectives on family assessment. Infants and Young Children, 4(1), 26–34.

Bailey, D.B. (1989). Assessment and its importance in early intervention. In D.B. Bailey & M. Wolery (Eds.), Assessing infants and preschoolers with handicaps (pp. 1–21). Columbus, OH: Merrill Publishing Company.

Bailey, D.B. , & Blasco, P.M. (1990). Parents' perspectives on a written survey of family needs. Journal of Early Intervention, 14, 196–203.

Bailey, D.B. , Simeonsson, R.J. , Buysse, V. , & Smith, T.M. (in press). Reliability of an index of child characteristics. Developmental Medicine and Child Neurology.

Bloch, J.S. , & Seitz, M. (1989). Parents as assessors of children: A collaborative approach to helping. Social Work in Education, 11, 226–244.

Cornwall, A. (1990). Social validation of psychoeducational assessment reports. Journal of Learning Disabilities, 23, 413–416.

el-Guebaly, N. , Toews, J. , Leckie, A. , & Harper, D. (1983). On evaluating patient satisfaction: Methodological issues. Canadian Journal of Psychiatry, 28(1), 24–29.

Kazdin, A.E. , & Matson, J.L. (1981). Social validation in mental retardation. Applied Research in Mental Retardation, 2, 39–53.

Lebow, J. (1982). Pragmatic decisions in the evaluation of consumer satisfaction with mental health treatment. Evaluation and Program Planning, 5, 349–356.

10.

Loff, C. , Trigg, L. , & Cassels, C. (1987). An evaluation of consumer satisfaction in a child psychiatric service: Viewpoints of patients and parents. American Journal of Orthopsychiatry, 57, 132–134.

11.

Lorefice, L.S. , & Borus, J.F. (1984). Consumer evaluation of a community mental health service: Perceptions of clinical care. American Journal of Psychiatry, 141, 1449–1452.

12.

McCullagh, P. , & Nelder, J.A. (1983). Generalized linear models. London: Chapman Hall.

13.

McLean, M. , Smith, B.J. , McCormick, K. , Schakel, J. , & McEvoy, M. (1991). Developmental delay: Establishing parameters for a preschool category of exceptionality. Position paper for the Division for Early Childhood, Council for Exceptional Children.

14.

Russel, M.N. (1990). Consumer satisfaction: An investigation of contributing factors. Journal of Social Service Research, 13(4), 43–56.

15.

Schwartz, I.S. , & Baer, D.M. (1991). Social validity assessments: Is current practice state of the art. Journal of Applied Behavior Analysis, 24, 189–204.

16.

Simeonsson, R.J. , & Bailey, D.B. (1988). Essential elements of the assessment process. In T.D. Wachs & R. Sheehan (Eds.), Assessment of developmentally disabled infants and preschool children (pp. 25–41). New York: Plenum.

17.

Squires, J.K. , Nickel, R. , & Bricker, D. (1990). Use of parent-completed developmental questionnaires for child-find and screening. Infants and Young Children, 3(2), 46–57.

18.

Voeltz, L.M. , Wuerch, B.B. , & Bockhaut, C.H. (1982). Social validation of leisure activities training with severely handicapped youth. The Association for the Severely Handicapped Journal, 7, 3–13.

19.

Wolf, M.M. (1978). Social validity: The case for subjective measurement or how applied behavior analysis is finding its heart. Journal of Applied Behavior Analysis, 11, 203–214.