Reimagining Dementia and Inclusive Work Environments – Giving Voice to Those it Concerns

Abstract

Background

Dementia prevalence is rising globally, and more people experience symptoms while still employed. Fear of stigma and job loss often leads to premature retirement, despite evidence that brain-stimulating activities like work may slow cognitive decline. Continued employment benefits well-being, economic productivity, and reduces healthcare costs. Yet, vocational rehabilitation for people with dementia is underdeveloped, and knowledge on supporting work retention is limited.

Objective

To explore the perceived needs and challenges associated with regaining or maintaining employment for people with dementia, as understood by both those living with the conditions and key interest-holders.

Method

As part of the Danish project Meaningful And Dignified Employment for People with Dementia (MADE), two World Café workshops were conducted with 11 participants: people with dementia, relatives, employers, specialists, and representatives from user organizations. Data was analyzed using inductive content analysis.

Results

Three themes emerged: 1) Breaking the silence by challenging stigma, 2) Promoting inclusion through workplace diversity, and 3) Reimagining vocational rehabilitation. Findings highlight the need for inclusive practices, structural changes, and individualized support.

Conclusion

Inclusive employment requires reducing stigma, addressing systemic barriers, and shifting from deficit-focused to integration-focused strategies to keep people with dementia active in the workforce.