Following the United Nations Convention on the Rights of the Child, there has been considerable growth in research with children about health and services that affect them. Creative methods to engage with children have also been developed. One area where progress has been slower is the inclusion of children’s perspectives in qualitative research in the context of clinical trials or feasibility studies. Addressing this gap, this article discusses experiences of, and reflections on, the process of researching children’s views as part of a clinical feasibility study. The article considers what worked well and highlights remaining dilemmas. A new continuum of children’s engagement in research is presented, designed to assist researchers to make explicit the contingent demands on their research, and to suggest a range of techniques from within the broader fields of health, childhood studies, and education research that could be used to forward qualitative research in clinical contexts.
AldersonP.HawthorneJ.KillenM. (2005). The participation rights of premature babies. International Journal of Children’s Rights, 13, 31–50. doi:10.1163/1571818054545231
2.
AuberyC.DahlS. (2006). Children’s voices: The views of vulnerable children on their service providers and the relevance of services they receive. British Journal of Social Work, 23, 21–39. doi:10.1093/bjsw/bch249
3.
BaeB. (2010). Realizing children’s right to participation in early childhood settings: Some critical issues in a Norwegian context. Early Years, 30, 205–218. doi:10.1080/09575146.2010.506598
4.
BladesR.RentonZ.La ValleI.ClementsK.GibbJ.LeaJ. (2013). We would like to make a change: Children and young people’s participation in strategic health decision making (Executive summary). London: Office of the Children’s Commissioner.
5.
Bradbury-JonesC.TaylorJ. (2015). Engaging with children as co-researchers: Challenges, counter-challenges and solutions. International Journal of Social Research Methodology, 18, 161–173. doi:10.1080/13645579.2013.864589
6.
BraunV.ClarkeV. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101.doi: 10.1191/1478088706qp063oa
7.
ChantlerT.LeesA.MoxonE. R.MantD.PollardA. J.FiztpatrickR. (2007). The role familiarity with science and medicine plays in parents’ decision making about enrolling a child in vaccine research. Qualitative Health Research, 17, 311–322. Retrieved from http://journals.sagepub.com/doi/abs/10.1177/1049732306298561
8.
ChristensenP.ProutA. (2002). Working with ethical symmetry in social research with children. Childhood, 9, 477–497. doi:10.1177/0907568202009004007
9.
ClarkA. (2005). Listening to and involving young children: A review of research and practice. Early Child Development and Care, 175, 489–505. doi:10.1080/03004430500131288
10.
ClarkA.MossP. (2011). Listening to young children: The mosaic approach (2nd ed.). London: National Children’s Bureau.
11.
CoadJ.FlayJ.AspinallM.BilverstoneB.CoxheadE.HonesB. (2008). Evaluating the impact of involving young people in developing children’s services in an acute hospital trust. Journal of Clinical Nursing, 17, 3115–3122. doi:10.1111/j.1365-2702.2008.02634.x
12.
CooperC.O’CathainA.HindD.AdamsonJ.LawtonJ.BairdW. (2014). Conducting qualitative research within Clinical Trials Units: Avoiding potential pitfalls. Contemporary Clinical Trials, 38, 338–343. doi:10.1016/j.cct.2014.06.002
13.
DonovanJ. L.MillsN.SmithM.BrindleL.JacobyA.PetersT.. . . HamdyF. (2002). Improving design and conduct of randomised trials by embedding them in qualitative research: ProtecT (prostate testing for cancer and treatment) study. British Medical Journal, 325, 766–770. doi:10.1136/bmj.325.7367.766
14.
DonovanJ. L.ParamasivanS.de SalisI.ToerienM. (2014). Clear obstacles and hidden challenges: Understanding recruiter perspectives in six pragmatic randomised controlled trials. Trials, 15, Article 5. doi:10.1186/1745-6215-15-5
15.
FieldJ. (2017). Losing the so-called paradigm war: Does our confusion, disarray and retreat contribute to the advance?Journal of Applied Hermeneutics, Article 5. doi: 10515/sy5fq9qp2
16.
GarbarinoJ.StottF. M. (1992). What children can tell us: Eliciting, interpreting, and evaluating information. San Francisco: Jossey-Bass.
17.
GeorgesonJ.PaylerJ. (2015). Work or play: How children learn to read the signals about activity type in today’s early years provision. In MoylesJ. (Ed.), The excellence of play (4th ed., pp. 159– 172). Maidenhead, UK: Open University Press.
18.
GibsonF. (2007). Conducting focus groups with children and young people: Strategies for success. Journal of Research in Nursing, 12, 473–483. doi:10.1177/1744987107079791
19.
GibsonJ. E. (2012). Interviews and focus groups with children: Methods that match children’s developing competencies. Journal of Family Theory & Review, 4, 148–159. doi:10.1111/j.1756-2589.2012.00119.x
20.
GrayC.WinterE. (2011). Hearing voices: Participatory research with preschool children with and without disabilities. European Early Childhood Education Research Journal, 19, 309–320. doi:10.1080/1350293X.2011.597963
21.
GubaE.G.LincolnY.S. (1989). Fourth generation evaluation. Newbury Park, CA: Sage.
22.
HammersleyM.AtkinsonP. (2007). Ethnography: Principles in practice. London: Routledge.
23.
HarcourtD.EinarsdóttirJ. (2011). Introducing children’s perspectives and participation in research. European Early Childhood Education Research Journal, 19, 301–307. doi:10.1080/1350293X.2011.597962
24.
HollwayJ.JeffersonT. (2000). Doing qualitative research differently. London: Sage.
25.
HornerS. D. (2000). Using focus group methods with middle school children. Research in Nursing & Health, 23, 510–517. doi:10.1002/1098-240X(200012)23:6<510::AID-NUR9>3.0.CO;2-L
26.
HorstmanM.AldissS.RichardsonA.GibsonF. (2008). Methodological issues when using the draw and write technique with children aged 6 to 12 years. Qualitative Health Research, 18, 1001–1011. Retrieved from http://journals.sagepub.com/doi/10.1177/1049732308318230
27.
HuangX.O’ConnorM.KeL. S.LeeS. (2016). Ethical and methodological issues in qualitative health research involving children: A systematic review. Nursing Ethics, 23(3), 339–356. doi: 10.1177/0969733014564102.
JohnT.HopeT.SavulescuJ.SteinA.PollardA. J. (2008). Children’s consent and paediatric research: Is it appropriate for healthy children to be the decision-makers in clinical research?Archives of Disease in Childhood, 93, 379–383. doi:10.1136/adc.2007.118299
KellettM. (2010). Rethinking children and research: Attitudes in contemporary society. London: Continuum.
32.
KellettM. (2011). Children’s perspectives on integrated services: Every child matters in policy and practice (Interagency working in health and social care). Basingstoke, UK: Palgrave Macmillan.
33.
KimC. Y. (2016). Why research “by” children? Rethinking the assumptions underlying the facilitation of children as researchers. Children & Society, 30, 230–240. doi:10.1111/chso.12133
34.
KleinertJ. O.HarrisonE. M.FisherT. L.KleinertH. L. (2010). “I can” and “I did”: Self-advocacy for young students with developmental disabilities. Teaching Exceptional Children, 43(2), 16–25. doi:10.1177/004005991004300202
35.
LahmanM.K.E. (2008). Always othered: Ethical research with children. Journal of Early Childhood Research, 6 (3), 281–300. doi: 10.1177/1476718X08094451
36.
LewinS.GlentonC.OxmanA. D. (2009). Use of qualitative methods alongside randomised controlled trials of complex healthcare interventions: Methodological study. British Medical Journal, 339, Article b3496. doi:10.1136/bmj.b3496
37.
LloydJ. J.WyattK. M. (2014). Qualitative findings from an exploratory trial of the Healthy Lifestyles Programme (HeLP) and their implications for the process evaluation in the definitive trial. BMC Public Health, 14(1), Article 578. doi:10.1186/1471-2458-14-578
38.
LundyL.McEvoyL.ByrneB. (2011). Working with young children as co-researchers: An approach informed by the United Nations Convention on the Rights of the Child. Early Education and Development, 22, 714–736. doi:10.1080/10409289.2011.596463
39.
MorganM.GibbsS.MaxwellK.BrittenN. (2002). Hearing children’s voices: Methodological issues in conducting focus groups with children aged 7–11 years. Qualitative Research, 2, 5–20.
NindM.HewettD. (2006). Access to communication: Developing the basics of communication with people with severe learning difficulties through intensive interaction. Abingdon, UK: David Fulton Publishers.
43.
PaylerJ. (2007). Opening and closing interactive spaces: Shaping four-year-old children’s participation in two English settings. Early Years: An International Journal of Research and Development, 27, 237–254. doi:10.1080/09575140701594392
44.
PaylerJ. (2009). Co-construction and scaffolding: Guidance strategies and children’s meaning-making. In MoylesJ.PapatheodorouT. (Eds.), Learning together in the early years: Exploring relational pedagogy (pp. 136–156). London: Routledge.
45.
PaylerJ. (2016, August31–September3). Positioning children in research: Continuum of children’s engagement with research. Dublin, Ireland: European Early Childhood Education Research Association, Dublin City University.
46.
PaylerJ.GeorgesonJ.WongS. (2015). Young children shaping interprofessional practice in early years settings: Towards a conceptual framework for understanding experiences and participation. Learning, Culture and Social Interaction, 8, 12–24. doi:10.1016/j.lcsi.2015.09.003
47.
PiercyH. (2004). Social research on the under-16s: A consideration of the issues from a UK perspective. Journal of Child Health Care, 8. 253–263. doi:10.1177/1367493504045824
PorterJ.DanielsH.MartinS.HackerJ.FeilerA.GeorgesonJ. (2010). Testing of disability identification tool for schools (Research Report, DFE-RR025). London. Retrieved from http://dera.ioe.ac.uk/11423/
50.
ProutA.JamesA. (1997). A new paradigm for the sociology of childhood? Provenance, promise and problems. In ProutA.JamesA. (Eds.), Constructing and reconstructing childhood: Contemporary issues in the sociological study of childhood (pp. 7–33). London: RoutledgeFalmer.
51.
PunchS. (2002). Interviewing strategies with young people: the secret box, stimulus material and task-based activities. Children and Society, 16(1), 45–56. doi: 10.1002/chi.685
52.
ShillingV.WilliamsonP. R.HickeyH.SowdenE.SmythR. L.YoungB. (2011). Processes in recruitment to randomised controlled trials of medicines for children (RECRUIT): A qualitative study. Health Technology Assessment, 15(15) 1–116. doi:10.3310/hta15150
WeilL. G.LemerC.WebbE.HargreavesD. (2015). The voices of children and young people in health: Where are we now?Archives of Disease in Childhood, 100, 915–917. doi:10.1136/archdischild-2014-307492
56.
WicksonF.CarewA. L.RussellA. W. (2006). Transdisciplinary research: Characteristics, quandaries and quality. Futures, 38, 1046–1059. doi:10.1016/j.futures.2006.02.011
57.
WilsonC.PowellM. (2001). A guide to interviewing children Essential skills for counsellors, police, lawyers and social workers. Abingdon,UK: Routledge.
58.
WoodgateR. (2001). Adopting the qualitative paradigm to understanding children’s perspective of illness: Barrier or facilitator?Journal of Pediatric Nursing, 16. 149–161. doi:10.1053/jpdn.2001.24178
59.
WoodheadM.FaulknerD. (2000). Subjects, objects or participants? Dilemmas of psychological research with children. In ChristensenP.AllisonJ. (Eds.), Research with children: Perspectives and practices (pp. 10–39). London: Falmer Press, Routledge.
